Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Sunday, December 04, 2005



We Made It Home

Rebekah's White Blood Count was up today, so we were able to go home. Her other counts were down a bit, but because her White Count was improving we figure the others will improve, too, on their own and we did not need to have a Red Blood transfusion (and the risk that always accompanies it).

Rebekah continues to have a very sore mouth and is clearly in pain with it. Her pain medication seems to be wearing off before time for the next dose. The doctor has allowed us to give the meds a little more often, which is good. It is hard to see her in pain. The improvement in her White Blood Count will help her to mouth to heal. Please pray that it happens quickly.

She continues to suffer from diarrhea (thanks to the antibiotics). It can make a really big mess. Please pray that she gets back to normal quickly. I'm not looking forward to the middle of the night diaper and bedding changes.

I am feeling better, but I'm still not back to "normal" - or the generally exhausted that I've been for the last many months. At least the nausea has subsided. Now it appears that Daddy is sick. Uugh!

It was early this afternoon when we were able to head for home. Daddy came down late morning to help pack up. Debbie and her girls brought Sarah to the hospital to meet up with us. Sarah helped them decorate and pick out a Christmas tree this morning and early afternoon. According to Debbie, she behaved herself very well.

When we got home, Rebekah and Sarah had a new toy box full of Princess Dress Up items. It was delivered yesterday by a group from Our Place Christian Church. The girls sure seemed to enjoy checking out what was there and playing with the pretend makeup and trying some of the things on. I'm sure it will be a lot of fun for them. They haven't seen the jewelry box, yet. That will be a Mommy and girls play time activity since there are too many small items.

Another group from Our Place Christian Church came and helped around the house. The ladies helped with laundry and cleaning and the gentlemen helped with getting the trim cut for the girls play room as well as taking down some wallpaper in preparation for painting the living room. It is progress and we are very thankful for that. Friend Dave came to help with the trim as well. Thanks to everyone. I felt bad, knowing that the house was such a disaster area (it is tough to keep it clean when we are at the hospital half the time especially when the hospital stays are unplanned).

Wednesday, we will need to go into clinic for counts and general check in. Thursday, Sarah has a regular doctor's appointment. Then next Monday, it is back into the hospital for chemo. One day at a time...

I have been trying to get this post up for quite a while and keep getting interrupted, so I don't know how coherent it is. Sarah has been waking up and crying and I've needed to check on her. Rebekah has been crying off and on and wanted up for a little while. With her nutrition connected, she can get herself into trouble, so we need to be careful when she is awake. It is hard to keep my train of thought with so many interruptions. That is the way things are around here, though, most of the time.

11 Shared:

At Sunday, December 04, 2005 10:14:00 PM, Blogger Eva Left a thought...

Praying everyone gets to feeling better soon.

 
At Monday, December 05, 2005 3:17:00 AM, Blogger Alison Left a thought...

At least you are home, all together again!

 
At Monday, December 05, 2005 4:21:00 AM, Blogger JodiTucker Left a thought...

Continuing to pray.....I ache for you all..............love, Jodi

 
At Monday, December 05, 2005 9:41:00 AM, Blogger My Kid's Mom Left a thought...

So glad you are home for the time being, and that Rebekah's white blood count continues to improve. You are ALWAYS in my prayers - wish I could just be there physically to help out somehow!

 
At Monday, December 05, 2005 11:24:00 AM, Blogger Lora Left a thought...

So glad to hear that you are all home together and that Rebekah's white cell coounts are up. I hope that she continues to do better & better each day. We send lots of love & hugs to you all.
Lora & Griffin
please take a look at the post on my blog of Rebekah, I would like to know if you approve.
http://griffinblaise.blogspot.com

 
At Monday, December 05, 2005 12:05:00 PM, Anonymous chris Left a thought...

Glad you made it home...Praying for a pain free mouth.

: ) Chris

 
At Monday, December 05, 2005 1:09:00 PM, Blogger Deb Left a thought...

I'm praying for Rebekah's sore mouth and for her system to get back to normal again as far as the diarrhea is concerned.

Frances --you mentioned that you felt bad because you felt that your house was "a disaster". I have one three year old --and I consider it a HUGE accomplishment if I'm able to keep up with just keeping my dishes washed! I truly don't know HOW you do all that you do and want to say that you deserve the SUPERMOM award should anyone decide to bestow one upon you! Please don't be so hard on yourself. It's okay if your house looks like a disaster --my goodness, look at ALL you have to deal with. People understand. Just let it go --and as would be said of Scarlet O'Hara --"don't worry your pretty little head about it!"

...praying continually for you all!
(for restored good health for Mom and Dad too!)
Deb

 
At Monday, December 05, 2005 8:12:00 PM, Blogger Derek Johnson Left a thought...

Thank God that you were all able to go home. Hopefully, you can get some rest!

Peaceful, deep, undisturbed sleep for all of you. That is my holiday wish for you.

In God's light,

Derek Johnson

 
At Tuesday, December 06, 2005 2:35:00 AM, Anonymous kaje Left a thought...

Praying for you all over here in England. Take Care.

 
At Tuesday, December 06, 2005 6:07:00 AM, Blogger Jojo Left a thought...

Oh how I wish I could do something physically to help you. I understand what you are going thru and how hard and exhausting it is. God bless you. I will continue to pray for all of you. I wish there was some magical way to take it all away and make it better. My heart and prayers are with you all.
Father, it hurts my heart to hear all the things this family is enduring. Please give them strength and rest. Please touch Rebekah's little mouth and help it to heal quickly. Please continue to elevate her blood counts so her body can feel better. Continue to give the Drs wisdom in Rebekah's treatments. Keep her protected always from harm. I ask that you bless each and every person who reaches out to help them and keep providing willing servants whose hearts are full of mercy and compassion. Provide caretakers for the girls so the parents can get the rest they so desparately need. All these things I ask in the name of Jesus - our salvation and hope - Amen.

 
At Tuesday, December 06, 2005 6:57:00 AM, Anonymous Teresa Left a thought...

Dear Frances, please don't be so hard on yourself about your house. I know it's a wife/mother thing, but I believe everyone understands. I pray that God continues to strengthen you and Scott and binding you up with His peace and love.

 

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