Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, November 28, 2005



Monday Evening

The CT scan didn't show anything significant, which is good.

We have started Rebekah on Reglan (sp?) to help with the acid reflux and will start her on Prilosec as well (they are working on the timing of it). We will hope that those two medications will solve the coughing/vomiting issues.

Meanwhile, she was on her nutrition for about an hour today when everything came back up. Uugh! Not a pretty sight. She has been coughing and dry heaving most of the day, so I wasn't convinced that it would stay down but I hoped for the best. Between last Monday and last night, she had lost a pound, which didn't exactly surprise me. I'm not panicking, yet, but I sure would like to get her tolerating her nutrition.

Her Hemoglobin and Hematocrit counts were very low, so she is receiving Red Blood. They split it into two "half units" and are infusing each half over 3 hours - instead of one unit over 4 hours. Apparently, when it is that low, they will often split it up. One more new thing learned today.

She has been tired and a little cranky (mostly because of the coughing) most of the day. Looking at her, I would not have known that her counts were that low.

5 Shared:

At Monday, November 28, 2005 7:15:00 PM, Blogger Marla Bean Left a thought...

Still praying for you. I am all too familiar with there processes. We're going through it, again, with my dad. So I can empathize with you - sometimes. I know it's harder for a little one to be going through this, but I want you to know that I have been and always will be praying for you and your family.

 
At Monday, November 28, 2005 8:16:00 PM, Blogger Darlene Left a thought...

I'm here for a little visit while I check on Rebekah.

 
At Monday, November 28, 2005 8:59:00 PM, Anonymous Tiffany Schwander Left a thought...

SWEET REBEKAH-
Family and friends are praying for you!
Rejoice always, pray without ceasing and give thanks to our Heavenly Physician!
Sweet dreams kiddo and mama!
Auntie TT

 
At Tuesday, November 29, 2005 3:16:00 AM, Blogger Alison Left a thought...

Still praying....

 
At Tuesday, November 29, 2005 9:35:00 AM, Anonymous Summer Marie Left a thought...

Hello! am glad to hear things are still going okay for you all...

My children have taken up praying for you all as well :)

Gods Bless :D

Summer

 

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