Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, November 28, 2005



Monday Morning

It was a rough night. By the time we got Rebekah settled into her room, Resident seen, blood cultures drawn, antibiotics administered it was nearly 1am - well past Rebekah's bed time. Then Mommy had to get her stuff from the van and it was nearly 2am before Mom got to bed. Then there were alarms going off throughout the night and by 7am, Rebekah was awake and raring for the day.

They started her on IV Fluids, but chose to hold off on the nutrition until morning.

We went down for a Chest X-Ray early this morning, which showed a little bit of something in her airway - not too bad, but something. The antibiotics that she is on may help with that - if it is bacterial.

During the Endoscopy last week, they took a little bit of tissue for biopsy. The biopsy showed some acid reflux, so we will begin to treat Rebekah for that with Reglan.

The Ear/Nose/Throat doctor came in this morning to look at Rebekah. He wants a CT, so we will be going down for that in a little while. She hadn't been started on the nutrition, yet, so we were able to get the CT scheduled pretty quickly. Because she will need anesthesia, she needs to have an empty stomach. We had just gotten everything we needed to start it up, when doc came in.

We will be here until at least tomorrow night, but there is some hope that we might get out of here tomorrow night. I'm not going to hold my breath. Meanwhile, Rebekah has an appointment with the Opthamologist Wednesday afternoon. I'm not cancelling it yet, but we will have to wait and see. It all depends on whether anything shows in the cultures and if her fevers continue. She has to be fever free for at least 24 hours, have 48 hours of antibiotics and clear 48 hour cultures.

Daddy is at home working and frustrated that he is not here with us and not sure whether to bring the trailer down later. It would be nice to know for sure when we would be able to leave, but we just can't know for sure.

5 Shared:

At Monday, November 28, 2005 11:00:00 AM, Blogger Alison Left a thought...

Praying God's comforting arms will wrap around you, and that you will feel His presence today more than ever before!

 
At Monday, November 28, 2005 11:57:00 AM, Blogger steve Left a thought...

Lets pray that we can get ya home tomorrow. praying that all goes well today!

 
At Monday, November 28, 2005 1:19:00 PM, Blogger Eva Left a thought...

Praying for you.

 
At Monday, November 28, 2005 1:33:00 PM, Blogger Heather Left a thought...

Hopefully you'll be able to get out of there tomorrow and have a nice weekend at home.

 
At Monday, November 28, 2005 5:38:00 PM, Blogger Deb Left a thought...

We are praying!

Just this morning in my Bible study group, we were reminded that we, as Christians, have authority over ALL the power of the enemy. So, by the authority that I have as a child of the Most High God, I take authority over whatever is causing Rebekah's fever and command it to leave, in the name of Jesus! Father, I ask that you INFUSE Rebekah with your healing power --increase her white count so her immune system will be boosted. Reduce her fever - take away her nausea --give her peaceful rest. Also refresh and renew Frances and Scott. Fill them with Your peace as they rest in the knowledge that You have Your hand in this situation. Be their refuge and strong tower and envelope them with Your love.
I pray these things in Jesus' name, Amen.

...continuing to uplift you in prayer!
Deb

 

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