Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, November 23, 2005



No Real Answers Today

Rebekah had her Endoscopy today and it came out clear. She has nice pink tissue. That is good news, but doesn't answer the question about why she is having trouble swallowing and continues to have the coughing issues. The next step seems to be to involve an Ear/Nose/Throat doctor as well as a Speech Therapist to work with her on eating. We are concerned that encouraging eating might make matters worse. Uugh!

We still expect to go home this evening. Rebekah needs an antibiotic before she goes that will take two hours to run. We don't really want to hit rush hour traffic anyway, so we are not pushing too hard to get it started.

Once again, Rebekah woke up early (6:30 or so) and wouldn't go back to sleep. Mommy put on some cartoons for Rebekah and dozed a little. She has been a crabby girl most of the day. Not much different from the last couple of days. I think she is really starting to show the "not happy to be in the hospital" attitude. She has moments of being fine and then all of a sudden she is crabby and screaming.

The Versed that she was given for the Endoscopy didn't help with the attitude, either. And she took quite a bit of the Versed and Fentanyl to put her into lala land for the procedure. She seems to have built up quite a tolerance.

Very early this morning (just after midnight), she had another vomiting episode. She got it everywhere - her bed, the floor, Nurse Megan, Mommy, etc... It took quite a bit of clean up. Not really a good way to start then night. I suspect that it is from the chemo. We seem to be seeing more and more of it while we are in the hospital. A fact of life, I guess.

6 Shared:

At Wednesday, November 23, 2005 4:31:00 PM, Blogger Alison Left a thought...

Sorry today wasn't splendid......

 
At Wednesday, November 23, 2005 4:52:00 PM, Blogger Bar Bar A Left a thought...

Stopping by to wish you and your family a Happy Thanksgiving. I still pray for Rebekah and all of you almost every day. God bless you.

 
At Wednesday, November 23, 2005 8:54:00 PM, Anonymous Tiffany Schwander Left a thought...

Praying that all is well and that you guys get to come home tonight! Also praying that you get to join us tomorrow at mom's!
May you rest well on your own pillows in your own beds tonight!
Lots of love,
Tiff, Mark, Michael and Jacob

 
At Wednesday, November 23, 2005 10:33:00 PM, Blogger Pia Left a thought...

still praying for rebekah... wishing you and the whole family a happy thanksgiving day.

 
At Thursday, November 24, 2005 6:31:00 AM, Blogger JodiTucker Left a thought...

Just prayed for all of you....as you will be in our thoughts and prayers at Thanksgiving Dinner at your Aunt Nancy's and Uncle Paul's too. While thousands of miles away physically, you're just one prayer away really!!!.....With love and more prayers, Jodi

 
At Thursday, November 24, 2005 9:09:00 AM, Anonymous Anita Left a thought...

‘Give thanks to the Lord, for He is good! His Love endures forever.’ Psalm136:1

Happy Thanksgiving to you and those that you love… may all of your days be filled with big and small blessings, and may you always know that everything you need is already here… you just have to always remember it!
With Gratitude (Gratitude = Letting others know you see how they ‘ve helped you.)
-The Polish Pilgrim… Anita

 

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