Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, November 29, 2005



We are Home

Debbie brought Sarah by the hospital about 5:30 this evening, so that she could come home with us. Rebekah was free to go at about 6 this evening and by the time we had everything packed up and ready to go it was closer to 6:45.

We had to be careful on our way home as the temperature was hovering around freezing in some places and so foggy that you couldn't see very far ahead.

Daddy had the house all warmed up for us with a nice fire going. It is always nice to come home to a warm house.

Rebekah kept most of her food down today, which is good. Let's hope and pray that continues. She didn't get a lot of food, but it feels like progress even if small. We will have to see how the night goes. This afternoon, we moved from all pedialyte to about half and half pedialyte and pediasure.

She is now having some diarrhea - thanks to the antibiotics and the dose of colace she got yesterday. Yesterday it was constipation, today diarrhea. I guess that is why we will need to have pediasure with fiber and pediasure without fiber. How many times will I need to change the bed tonight? Only time will tell. ** 11pm update - at least once - she coughed, got upset and threw up everywhere.

Rebekah is sitting on the couch with us watching TV. She was in bed for a short period of time and then asked to get up. Because she was having some trouble breathing (with the congestion) and Mommy was a softie, we let her get back up. She has been sitting nicely. Justice (the kitty) was sitting next to her and she wanted him down. Then, when he got down, she wanted him back next to her. We tried explaining to her that he is a cat and you can't always control them. I'm not sure she understood.

The left side of Rebekah's face is puffy. It has us a little concerned. Not sure if it is from the sinus infection or what. Please pray that it is better in the morning.

Tomorrow, Rebekah will see the opthamologist. Please pray that she cooperates and that it is a good appointment. Some answers would be good.

9 Shared:

At Wednesday, November 30, 2005 6:13:00 AM, Blogger Alison Left a thought...

Glad you got to go home. Evevn if things are not great you have the comfort and warmth of familiar surroundings and I pray that things become more settled.

 
At Wednesday, November 30, 2005 7:53:00 AM, Anonymous Teresa Left a thought...

I am glad you are home safely and to a warm one too. Praying Rebekah will do well at home and no runs to the hospital. God's grace and peace on your appointment that all goes smoothly.

 
At Wednesday, November 30, 2005 7:53:00 AM, Blogger Carol Warlick Left a thought...

So glad to hear you made it home safely. I was up in your neck of the woods last night picking up the girls and it was freezing already around 6:00pm. How wonderful it is to come home to a nice warm cozy home. I pray that everyone slept well and that Rebekah's beautiful face isn't puffy when she wakes in the morning. Thinking of all of you and praying everyday.

 
At Wednesday, November 30, 2005 9:08:00 AM, Anonymous Toni Left a thought...

prayers are all around you! Even if I wanted to, I just can not stop praying for you all :)
Take care, and e-mail me when you are able. I sent you an e-mail last night. I am assuming that with all the business of everything, you may have not had time to read it.

 
At Wednesday, November 30, 2005 12:09:00 PM, Blogger Eva Left a thought...

So glad you're home.

 
At Wednesday, November 30, 2005 12:39:00 PM, Anonymous lucystern Left a thought...

It's a never ending struggle..Good luck. Keep praying.

 
At Wednesday, November 30, 2005 12:57:00 PM, Blogger Katie Left a thought...

praying for an easy visit to the eye doctor tomorrow and some much needed answers and insight

 
At Wednesday, November 30, 2005 5:07:00 PM, Anonymous chris Left a thought...

Praying the doctor has some answers for you...and I hope the answers are what you want to hear.

: ) Chris

 
At Wednesday, November 30, 2005 5:30:00 PM, Blogger JodiTucker Left a thought...

Praying daily........Love, Jodi

 

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