Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, November 30, 2005



Eye Appointment, Etc...

Rebekah did not have a good night last night. She woke up many times and threw up again about 2 am. Mommy didn't get much sleep.

We were off to see the opthamologist at about noon, dropping Sarah off at Aunt TT's on the way. Rebekah got sick in the van a couple of times on the way. It wasn't looking real well for her to cooperate with the eye doctor. I had tried to medicate her so that she would be a little more calm during the appointment, but it didn't seem to work.

She wasn't real cooperative, but the doctor was able to do some looking/testing. She reiterated some of the potential concerns with the radiation that Rebekah has had - cataracts, blindness, laziness, the need for correction, etc...

There are no signs, yet, of cataracts. Those would be expected later.

The left eye (the one that got the worst of the radiation) does not appear to be irritated and her eye is moist, so we don't need to be giving her eye drops right now. (Previously, they warned us about dry eye and gave us drops to put in her eye. I haven't been using them because she has been tearing so much, but I wasn't sure if the tearing was from irritation and the drops would help with that. Rebekah is not a fan of eye drops, so I didn't want to force them on her if they were not necessary.)

The tear duct on the lower eye lid seems to be constricted or plugged. This is something that can often be corrected.

The orbit around her left eye is smaller than around her right eye. There may be some ability to stretch it.

The doctor wasn't able to determine if Rebekah should have some vision correction, since Rebekah wasn't cooperating.

The doctor is referring us to a doctor at Casey Eye Institute (at OHSU - Oregon Health Sciences University) who can deal with the tear duct, determine what should be done about the orbit around the eye and have the ability to do some testing/evaluation under sedation and have several pediatric specialists in one location. She was going to call the other doctor and have his office contact us to schedule an appointment. We will expect to go in for a consultation and then potentially schedule another appointment for further testing and possibly correcting the tear duct. With it being December and Rebekah continuing with chemo, who knows what kind of scheduling we will be able to make happen.

We called the oncology clinic this morning about Rebekah's face swelling. It is a little bothersome to Mommy and Daddy and Rebekah seems to be irritated by it as well. Her mouth seems to be sore as she is drooling again and when she coughs she often expels mucous. She is not using many of her words and I think that is mostly due to a sore mouth. The nurse at clinic wasn't overly concerned and checked with the doctor, who wasn't too concerned either but would expect to look at it on Friday during our appointment. So we wait...

7 Shared:

At Thursday, December 01, 2005 4:06:00 AM, Blogger JodiTucker Left a thought...

praying now and throughout the day...........Love to you, Jodi

 
At Thursday, December 01, 2005 5:55:00 AM, Blogger Alison Left a thought...

praying here as well.....

 
At Thursday, December 01, 2005 6:12:00 AM, Anonymous Teresa Left a thought...

I'm praying for the Lord to do some specific intervention in Rebekah's mouth. Heal the sores and sore tissues Lord. Go to the source of the swelling in her face and restore the tissues as well. Continue blessing this family with your grace,mercy and peace. For your glory,Thank you Lord.

 
At Thursday, December 01, 2005 6:37:00 AM, Blogger Sarah Left a thought...

Prayers for Rebekah.

 
At Thursday, December 01, 2005 10:48:00 AM, Anonymous Chris Left a thought...

...and so we wait...and we pray.

Know that you have lots of prayers.

: ) Chris

 
At Thursday, December 01, 2005 11:39:00 AM, Blogger Katie Left a thought...

waiting is hard and I know you've had to do a lot of it so far. Prayers for patience and peace as you wait and that answers will come quickly.

 
At Thursday, December 08, 2005 10:17:00 AM, Anonymous Anonymous Left a thought...

I am worried about why there haven't been any recent entrys from anyone?

Praying here for all of you.

 

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