Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, December 01, 2005



We're Staying in the Hospital

Her counts are even lower than earlier this week, which really isn't any surprise. White Blood Count is 0.2, so her ANC is even less and I'm not sure they even count it when it is that low. Platelets are really low at 13 so she just got a Platelet transfusion. Her fever was down a little by the time we got to clinic, but spiked again once we were admitted. After the fever spiked again, they gave her some tylenol, so that will help keep the fever down for now, hopefully.

They drew blood for cultures at clinic, so they will start those growing. And they started her on antibiotics as well - the same two she was on earlier this week. They also added one more antibiotic that she was on when she had the C.Diff (bacteria in her colon) since she has continued to have diarrhea. They want to test her stool, so we need a stool sample (when we get a chance) to culture and they want a urine sample to culture as well. All sorts of fun.

She will not continue the antibiotic that we went home on, because the IV antibiotics will cover the sinus infection too. Maybe this time, something will grow in the cultures so we don't have to guess what is wrong and can treat the specific problem.

It looks like we will be here for at least 48 hours.

Debbie met Rebekah, Sarah and I at clinic and helped us out while we waited to figure out what was going on and then she took Sarah home with her. Once, again, she and her family have come to the rescue. Thanks soooooo much!

Melissa, the Child Life specialist, came in shortly after we were admitted and asked Rebekah if she wanted her to come back and play. Rebekah said yes and said Suzi. Suzi is the doll that Melissa brings with her that Rebekah can put bandages on and has a central line that can get "drinks". She has never asked for Suzi like that, so that was good to see. However, when Melissa brought Suzi in, Rebekah just layed in bed and wanted Melissa to give Suzi bandages, her tubes drinks, etc... Not the playful girl that she usually is.

Kristina, the Art Therapist, stopped by later and asked Rebekah if she wanted her to bring some things in so that they could do some art and she told her no. Kristina asked if she was sure and she replied with an emphatic YES. Again, not typical for Rebekah.

An hour ago or so, one of the other Child Life specialists was in and asked Rebekah if she wanted her to come back with some books and she said yes. She was playing with them a little and wanted more and more. More like the Rebekah we usually see. Some of the change could be due to the Platelets and Tylenol. We'll continue to see how she's doing.

She was so tired earlier, that she layed down on the exam table at clinic and fell asleep.

8 Shared:

At Thursday, December 01, 2005 8:31:00 PM, Anonymous Kate Left a thought...

I am keeping you in my thoughts. I hope tomorrow is a better day. Take care!

 
At Thursday, December 01, 2005 8:36:00 PM, Blogger Deb Left a thought...

Father, I pray that You would wrap Your arms around Rebekah, Frances, Scott and Sarah ---hold them close --let them know You love them with an everlasting love --give them strength and ease their struggling. Touch Rebekah with Your healing touch ---may every part of her body function the way You created her to function - perfectly whole. I pray especially tonight for Frances. Refresh and revive her --give her Your supernatural ability to deal with everything in both the emotional and physical realm. Allow her to have the rest she needs tonight. I pray that You would work miracles in this situation...and we'll give You the glory --for You are worthy. In Jesus' name, amen.

....praying continually!
Deb

 
At Thursday, December 01, 2005 9:07:00 PM, Blogger thequeen Left a thought...

Always always always praying. I am still working on getting the flkr badge back up. For some reason the badges were causing problems on my blog, There are continual prayers coming. Rest as much as possible. It is healing.

 
At Friday, December 02, 2005 3:41:00 AM, Blogger Alison Left a thought...

Echoing Deb's prayers, and adding my own. These days have not been easy for you in the least, and I wish there was something I could do practically speaking!

 
At Friday, December 02, 2005 7:04:00 AM, Anonymous Teresa Left a thought...

Few words, my heart and prayers are with you. God Bless you all.

 
At Friday, December 02, 2005 10:04:00 AM, Blogger Katie Left a thought...

I echo Deb. Please know you are lifted up by many and your sweet family is always in my thoughts and prayers.

 
At Friday, December 02, 2005 5:49:00 PM, Anonymous Molly Left a thought...

hi dear little Rebekah and family.
Please know you are always in my thoughts and prayers, even when I am not able to come and visit your site as much as I would like to .. you are never far ...
I hope you are feeling better very soon and back to playing and laughing with your sister.
hugs to you all,
Molly

 
At Saturday, December 03, 2005 12:47:00 AM, Blogger Lora Left a thought...

Hello Scott, You visited my blog and left a comment for me (My Beautiful Child Griffin & Autism). You have an incredibly beautiful child in Rebekah, what a strong spirit she has. Reading this blog has virtually left me speechless, I don't know what to say except that I am moved beyond words. I started reading from April and some of the present and all I can say is that you and your family are so special.....and that's an understatement. I will be visitng and reading regularly. Griffin and I send hugs and a sea of love to you and your lovely family especially Rebekah. I added you to my blogroll. Lora & Griffin
p.s. If either of you would like to e-mail me and discuss autism I would be more than happy to talk with you or if there is anything that I can do to help out Please let me know:
msterriousgirl@hotmail.com

 

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