Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, December 06, 2005



Tuesday Morning

Rebekah continues to be painful, although it does seem to be doing better. Night before last, she was up at least every 3 hours complaining about owies. Last night, she actually slept for about 6 hours straight. At least I'm assuming she did, because I (Mommy) didn't hear her and I got a 6 hour stretch of sleep. WooHoo!

She is using a few more words and not keeping her mouth clenched so tightly. This morning, I asked her if I could look in her mouth and she opened it up a little. I didn't get a good look, but her lips were looking better. And before today, when anyone asked to look into her mouth she got very tight lipped, so she must be feeling a little better.

Rebekah continues to have diarrhea and now has a diaper rash to go along with it.

She has been tolerating her nutrition pretty well and hasn't been throwing up. That is good. She has figured out how to operate the pump, which is not a good thing. She can shut it off, but she can't get it started again (that takes some buttons which she hasn't figured out) by herself. I have tried explaining to her that she can only change it if Mommy asks her to and that if she wants it stopped she should ask Mommy. Can't say that I'm getting through to her, but one day it will sink in.

Daddy's not feeling well and spent most of yesterday sleeping. He had little or no energy for anything. He's off running errands and going to Court today.

Mommy's not feeling much better, but was able to care for the girls and get a load of dishes into the dishwasher and a load of laundry going yesterday. That was about it.

Sarah has a bit of a cough which seems to wake her up a bit, so she's not sleeping great.

Both girls have been enjoying their princess clothes and Rebekah has had a couple of opportunities to play with the jewelry and enjoyed that, too.

Last night, Rebekah saw a bin of toys that had been sitting in the living room for several weeks (since the carpet was put in) and decided that she wanted them. So the bin went into the playroom for her. She didn't seem to miss any of the toys, until she saw them... Then she had to have them.

Friend LaDonna brought us dinner last night. That was truly a blessing. I don't think any of us had the energy to cook anything. Thanks LaDonna!

Yesterday afternoon, friend Ginger called. She wants to come out today and try to help to give Mom a break. She is planning on bringing dinner and then spending TWO nights so that Mom and Dad can get a couple of nights of decent sleep. Please pray that Rebekah cooperates with that plan and that everything works out. That will be a much needed break. HUGE Thank You to Ginger.

16 Shared:

At Tuesday, December 06, 2005 11:15:00 AM, Blogger steve Left a thought...

I am praying that all goes well so you two can get some rest. I hope Scott is feeling better soon!

 
At Tuesday, December 06, 2005 2:16:00 PM, Anonymous Tiffany Schwander Left a thought...

Thank you so much Ginger! Scott and Frances wear ear plugs and sleep throughout each night! Ginger, thank you for your willingness and availability to give overly needed respite for Scott and Frances! Ginger, may you have the strength, patience and gentleness to handle these two nights!

Heavenly Father, heal the Adams family!
Love lots,
The Schwander Family

 
At Tuesday, December 06, 2005 6:21:00 PM, Blogger Jayleigh Left a thought...

Praying as always for healing and rest.

 
At Tuesday, December 06, 2005 7:56:00 PM, Blogger JodiTucker Left a thought...

Yep!....I fully agree with the first three comments from steve, tiffany, and jayleigh....Rest for all of you, healing, and thank you, Ginger!!

 
At Tuesday, December 06, 2005 9:01:00 PM, Anonymous Debbie Left a thought...

Thank you, Ginger!! I hope you both Scott and Frances take advantage of this opportunity to sleep. I'm sure Ginger can handle everything for a few hours. Relax and enjoy!

 
At Tuesday, December 06, 2005 10:44:00 PM, Blogger Eva Left a thought...

Thank God for friends who can help share the load.

 
At Wednesday, December 07, 2005 7:54:00 AM, Anonymous Paul Laroche Left a thought...

Hi Rebekah,Sarah and family
Nice to hear Mommy got some much needed rest.Hope Daddy feels better soon,and hope all is well with Sarah.And as always,saying a prayer for dear sweet Rebekah
Big hugs for all

 
At Wednesday, December 07, 2005 11:15:00 AM, Blogger fl13grl Left a thought...

Keeping you in my thoughts and prayers.. Best Wishes, Tiffany

 
At Wednesday, December 07, 2005 11:39:00 AM, Blogger Mike&Mari Left a thought...

We are here,keeping up with you, and praying. I hope Scott feels better soon, and of course, I hope and pray for healing for Rebekah! Thanks Ginger, would do the same if I didn't work the long hours I do! And, I still have Scott's cookie order in my head. Just waiting for use of my right hand! Love to you all, and I'm praying for rest for you as well!

 
At Wednesday, December 07, 2005 11:41:00 AM, Anonymous chris Left a thought...

Thank God for his angels...

Hope everyone is feeling better soon..

: ) Chris

 
At Wednesday, December 07, 2005 11:45:00 AM, Anonymous Teresa Left a thought...

Yes, Lord. Bless them with rested sleep. Peace, peace and more peace.

 
At Wednesday, December 07, 2005 8:04:00 PM, Blogger EmmaSometimes Left a thought...

Always praying....by Your stripes Lord we are healed!!

I felt very compelled to lay my hands on the computer screen over this blog and pray for strength for your family. I am also claiming victory for Rebekah in Jesus name. AMEN!!!!!

 
At Thursday, December 08, 2005 9:36:00 AM, Anonymous Anonymous Left a thought...

Happy Birthday Rebekah! I hope you are feeling well enough today to enjoy your birthday! With Love,
Wyla, Sandy, Amanda, and Seth.

 
At Thursday, December 08, 2005 11:52:00 AM, Blogger Darlene Left a thought...

I came by to wish Rebekah a happy birthday! I hope she is feeling well today. Maddy is having a birthday too, she's eight today.

 
At Thursday, December 08, 2005 11:58:00 AM, Blogger Carol Warlick Left a thought...

Happy Birthday Rebekah! I hope you are feeling well enough to dress up in your princess clothes and be queen for a day!.
THANK YOU GINGER for all that you do. I hope Scott and Frances were able to get some much needed rest and that everyone is feeling better. I pray that God continues to give each of you strength and patience.

 
At Thursday, December 08, 2005 12:43:00 PM, Blogger Katie Left a thought...

Praying for rest and restoration.

Looks like it is a very special girl's birthday. Happy Birthday Rebekah, I hope your day is filled with joy, smiles, and so much fun you sleep for hours on end (although that might be a gift to mom and dad).

 

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