Saturday Update

3:30pm. I just want to fill in a little bit. There is the "unimportant" stuff - Doc has been here and things are going good. Chemo and Radiation are day to day but still scheduled for Monday, which means we will be here through Tuesday at least. Doc doesn't see any more problems that need addressed only curing that means we need to stay the course right where we are.

And then there is the important stuff. For about 15 minutes we had our little girl back. She was playing, yes actually playing in the bed. I was taking a picture of her with a digital camera and she wanted to see the pictures. She started looking through them (new camera that we borrowed from Grandma but Rebekah figured out how to page through them one by one). She kept saying "uh oh" at the ones that showed more of her boo boos. She would not let us take it away from her. She even asked for and let dolly lay down next to her.

That only lasted a short time and she threw the camera across the room, sorry Grandma, and started a fit again but SHE IS IN THERE! When I figure out how I will pull some video of this from my palm and link to it here - keep checking back.

VIDEO HERE (About 1 Meg)

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12:30pm Mommy, daddy and Grandma A are all here with Rebekah this morning. Rebekah had a little bit better night. Her oxygen sats were staying up around 90 most of the time, and recovering pretty quickly when they did drop. Her heart rate has stayed a bit lower as well.

She has also continued to "go" but I promise not to belabor that point any more.

This morning she has actually had a few more lucid moments as Grandma A just said. She has actually asked for her sister "chi chi" and has held and looked at (and crumpled) a picture of her. In addition, she is now actually holding onto a baby doll that the head of the Childrens Cancer Association Chemo Pals program brought to her this morning.

We met with Kate, the "Chemo Pal Gal" and she is going to work on hooking Rebekah up with a Chemo Pal to come see her and spend some time with her when in the hospital. We have known this program was available since April and have been asking for it since then but never followed up until now. We are glad that is getting started as it means one more person to spend some time with Rebekah in the hospital.

I had forgot to mention in yesterday's summary that Rebekah had a blood transfusion. That may be part of the reason that she is feeling just a bit better. It's really hard to look at her right now and say "better" as bad as she looks - but she is better and we are excited about that.

We still have not seen the doctor today and do not exactly know what our schedule is going to look like the next few days to a week. Maybe home, maybe not. Maybe back for Chemo, maybe not. Not knowing is difficult but it is the normal situation for us since April. It is difficult for a control freak (daddy) to live life this way but he is being taught a lot. Trying to plan schedules, especially something for Sarah, is tough under these circumstances. Grandma's (two are teachers) are going back to work and babysitting choices are getting slim.

More to you when we hear more. Thank you for sticking with us.