Friday Final Update (Now known as THE MOVEMENT)

More Than Final Update 10:30pm: After putting up the last update I went back to the room. Allie (see many previous comments) had come to sit with Rebekah and Frances this evening which was a great blessing - especially since she will come back Sunday too!!! Uncle Mark and Aunt Tiffany where also there and brought mommy ice cream which makes them higher in her eyes than daddy - and it was chocolate no less.

After Rebekah had gone to bed peacefully, or so we thought, Allie took off and Mark and TT where just about out the door and Rebekah moved. No, I mean she REALLY MOVED! Everything that had been building up inside her for more than a week and all of the food we have been pumping into the G-Tube for the last three days came out at once and quite explosively. We had always said that the rooms needed a bit more color and apparently Rebekah thought so too. The bed, the walls, the floor, mommy, mark, the nurse Lyndsee were covered. TT and daddy where standing back and daddy literally ran for the door. Out came enough that 5 diapers could not have dreamed of holding it. HOUSEKEEPING TO ROOM 3524 STAT!

I am sorry the picture painted may be gross but it was heaven to us as it means her systems are starting to work again. After we had put the last dose of fiber and colace in her (minutes before) the nurse said "if she is taking all this in it has to come out..." PROPHESY! Rebekah did not like all of the scrubbing up that had to be done but we are so excited about it. We are also very grateful that TT and Mark where there to help as it took all of us plus an extra nurse or two plus housekeeping to get things under control.

Thanks for delighting in the gross with us. It is the weirdest things that give great joy right now.

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7:24pm It is after dinner and I just took a quick trip out to the trailer to try and get an update up. Mommy now has a laptop in the room and has downloaded all of your comments for her to be able to read for some inspiration.

Rebekah continues to not be doing well. She is in the pain med patch and some additional morphine down her G-Tube. Just before dinner she went into a complete hysterical fit and could not be consoled. It might have been another reaction to some Benadryl that had just been given her or it might have been that she was running out/low on pain meds. It's very hard to say for certain.

Her chest xray did not reveal anything in the lungs or lower airway which is good. The trip downstairs seemed to be very soothing to her. She enjoyed being out of the room and moving as much as possible. I say "enjoyed" which is really weird if you saw her as you could only tell she was enjoying it because there was not so much pain in her eyes. In fact we were treated to a few moments of the sparkle that so many of her pictures show.

Her airway and oxygenation issues are still not solved. We are holding off, for now, on a tracheotomy but we are not improving at all. Hopefully another day or two of rest will do a lot.

There are two other Ewing's patients in the hospital right now and each of them is at a different stage. Gage is just a bit behind Rebekah and Joshua is a bit ahead. We don't know a lot about Gage or his family except that we ask that you pray for them in some unsaid needs. Joshua is also in need of some extra prayer as his blog demonstrates. Joshua's blog also addressed a bit about Rebekah today. I know that so many of you are devoting so much to Rebekah but I ask that you at least take a quick look at Joshua's page and add a line to your prayers for each of them tonight - we are.

Sorry, no more pictures today. She hasn't changed from yesterday (which is a GOOD thing!)