Monday Night In The Hospital

I'm going to make this brief, because I'm tired and crabby, I have a daughter who is screaming at the moment because mommy is not letting her have her way and it has been a long day.

Her counts were good enough to be admitted. The hospital ward is full, so they put us in the "isolation" room. This room is small, no room for a rocker chair, and no shower. When we got here, there was a regular adult bed in the room instead of the toddler bed that we usually have, so we had to wait for that to be switched out. They put a blind on the window in the door a month ago, which was broken when we got here. The sink in the ante room doesn't work. The internet connections in the rooms are not working, so I have to use dial up. I can receive email, but I have to go through a bunch of hoops to send email. At 3:00 this afternoon, Rebekah threw up all over everything. We called for housekeeping and they still have not been here.

This morning, at clinic, the Oncologist and I discussed the eye procedure scheduled for this afternoon. They were planning to do it in the room using Versed and Fentanyl. I didn't really think it through to realize that she needed to have an empty stomach and had been feeding her throughout the day. After I got Rebekah cleaned up from throwing up, the Social Worker told me that she was supposed to have been without food. Uugh! She was checking with the eye doctor to see if he was still willing to proceed. We went ahead with it.

The exam went reasonably well. Rebekah cooperated mostly and the doctor was able to do most of the exams that he wanted. The good news is that there really isn't anything that needs corrected immediately. The tear duct can be corrected later, probably after chemo is done. We need to watch for signs of infection, but otherwise it can wait. We know that we will need to have an ongoing relationship with the eye doctor, because of all the potential issues from the radiation.

Chemo wasn't started until 9pm tonight. It needed to wait until after the eye exam and then it was the middle of shift change, so they put it off. Usually, they will try to start each days' chemo 2 hours earlier than the day before, so that we can leave earlier on Saturday. However, 2 hours earlier puts it right at shift change, so I don't know what will happen.

It has just been one of those days where nothing seems to be going well and I've been in tears several times.