Mid Afternoon Update
2:oopm. Rebekah is still mostly sleeping from the anesthesia this morning and probably a lot from being worn out from our little jaunt outside yesterday.
Chemo is still not running which starts to put into question our ability to leave tomorrow. We need at least 24 hours from the start of chemo to be able to leave. She had a fever this morning and at lunch and that could have something to do with the time things are getting started. Right now we are running additional fluids through her to try and get the specific gravity of her urine to a point where we can start chemo (another requirement along with blood counts, no fever, etc...)
Rebekah still seems to be digesting her food at a decent rate and she has gained weight - nearly a full kilo - from our admittance last Monday. She is now back at 14.6k (32 pounds). When we started this in April she was 16.1k (35.5 pounds).
Daddy came over to the room at lunch time and mommy and Rebekah were both sleeping. That was a good thing except daddy did not get to love on either of them. Oh well, he will have to come back for some later.
Thank you again for the kind words and encouragement.
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16 Shared:
I hope you get to 'love on them' when they wake up. It's wonderful for her to see the love her family has. My son just turned four and he doesn't tell his brother "I love you" unless he just finished punching him and is facing 'I love you' or some couch time. (Usually both) I was warmed by the fact that Rebekah told Sarah she loved her the other day, that is a sign that there's a strong bond in your family.
My thoughts are with you all day.
I am just reminded of your prayers not long ago Scott that Rebekah would start gaining her weight back.
Sometimes they are hard to see but prayers are being answered through all of this. I am continually AMAZED at the prayer your family is getting. It warms my heart to see that people have responded to the requests for prayer.
Here's to more answered prayers!
I'll be praying that the fever recedes and that chemo will come quickly and that your release even quicker.
I am just thrilled with everything that has happen these past few days and now..now she is gaining wt. Oh Rebekah...how wonderful to hear of and see the positive changes. Oh Rebekah...blessings and blessings and blessings. Daddy and Mommy...Chi Chi...blessings and blessings and blessings.
Father, thank you...words fail me, you know my heart, you hear my praise
Heavenly Father, thank You for your touch on precious Rebekah. Thank You for hearing and answering our prayers. You are faithful to completion and we can't wait to see what good news comes next. You have great plans for Rebekah, a little child leading us all to you. Thank You for your gift to us, Amen
Glad to hear Mommy and Rebekah were both getting some rest.
Wonderful news about Rebekah gaining weight! I'll say some "extra" prayers as you face those decisions.
You know what I was just thinking...how remarkable this is going to be in the future to read to Rebekah (or when she can read herself) of her struggle and just how much she is loved!
Father, we pray for Rebekah's healing, for a miracle that only You can give. Thank you for her weight gain. Grant wisdom to the doctors and nurses and all who are involved in this situation and guide their hands. Please give strength and courage and peace to the family and help them all to feel Your Blessed Presence with them. In Jesus name, amen.
hope she comes home soon will pray about her fever and strength we all care so much about her
Courage, strength and peace to all of you. May the Lord of All guard your hearts and minds in Christ Jesus and give you true rest.
Amen.
our whole congregation lifted you guys up by name in our service on Sunday. the outside adventure sounded likek just what you needed. think of you many times during the day and lift u up to the throne. xok8
Sending God Praises for the weight gain !!!!!! How wonderful !! Prayers are still being sent for continued healing and strength for the days ahead. THANKS for the continued updates. I know your time is little and so valuable ........... It is appreciated so much.
Dale and Leslie Mickley
I can not even imagine the weariness and the exhaustion you must feel as this crisis goes on. All the sacrifices you have made for your child. I stand in awe of your strength, but I know it's not your own strength, but the Lord's. So many lives have already been changed by this family. God alone knows how many are to follow. My prayers continue to be with you and Rebekah.
Hello from California. We have internet access where we are staying and have been checking in on you guys when we get the chance to get a free computer. I am so happy she has gained weight!:) I pray for continued rejoicing in the Lord always for all things. We love you guys.
Continuing to pray several times a day for healing for Rebekah and strength and hope for mom and dad.
Continue to trust in the Lord for He is mighty. Leanne
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