Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, August 29, 2005



Late into the Evening

9:45pm.  I don’t know how to categorize today.  Rebekah is looking SO much better but there are still some signs that worry us.  She is still combative  at times and we don’t know for sure what the source of the irritation is.  She is clearly not happy but we don’t know whether it is pain or, as the doctors call it, hospital psychosis.  Hospital Psychosis is where you have been looking at cream color sterile walls for so long that your mind goes numb.  It very well could be.

We thought looking at her in such “bad” condition was difficult but it really is more difficult trying to hold her, or hold her down, when she is fighting something.  Do we give more medicine or take her off some?  We just don’t know.

There are many many things that have to get done before we can go home – maybe tomorrow.  We want it to be tomorrow, but then again we don’t.  If we do get to go home tomorrow it won’t be till the evening and then we will have to be back here at 6am and, as she is having problems coming out of the anesthetic, we will have to stay until about noon.  It almost seems easier to stay tomorrow night and then go home at noon on Wednesday.  But we want to go home?!?!?!?

This is the first time we have had to be at the hospital without baby Sarah.  It is really tough.  It is tough not seeing your baby girl every day.  It is also tough finding a place for baby girl to stay.  Thank you SO much to aunt TT and Grandma A for taking care of her today and tomorrow.  Thank you to Grandma/Grandpa and to Grandma M for taking care of her this weekend.  At this point I think we almost need childcare through the rest of the week and I just don’t know where to find that.  One day at a time and He will provide it – I hope and pray.

Just because I am enjoying it right now, my first real meal of the day, I want to again thank Jessica Deboer for the wonderful home made burritos she made us.  

And for those of you that have ordered but not received your bracelets yet, they are coming.  We just got a few envelopes back in the mail saying they needed more postage - $.12 more????  I thought an extra ounce was $.23  Is there an oversize change of $.12 that I don’t know about – how can it only be $.12 ???????  Have a good night.

5 Shared:

At Monday, August 29, 2005 11:03:00 PM, Blogger Queen on the run Left a thought...

Thinking of you...

 
At Monday, August 29, 2005 11:12:00 PM, Blogger Marla Bean Left a thought...

I wish I were closer (in friendship and in distance) to help with the babysitting. I KNOW God will provide you with all that you need. You will be in my prayers tonight.

 
At Monday, August 29, 2005 11:31:00 PM, Anonymous Anonymous Left a thought...

Our family of 6 ordered dinner 'to go' from PEPPERS last night and saw friends from Laurel Church there. The food was great! But even better was knowing how many people showed support for Rebekah and family by participating at PEPPERS this weekend. It will be interesting to hear how much was raised.

Keeping you all in our prayers,
Dane & Jo Petersen
Travis, Felicia, Matthew & Tyler Buckmaster
(Betty Crowthers' daughter and grandson and families)

 
At Tuesday, August 30, 2005 4:28:00 AM, Blogger Jenny Left a thought...

God bless you. Praying for you all.

 
At Tuesday, August 30, 2005 8:43:00 AM, Blogger Darlene Schacht Left a thought...

I'm glad that someone is making you meals. I read someone write on a blog yesterday that we need to help people in practical ways. Bless their hearts, and bless the people who look after baby Sarah. It's hard for us to let them go sleep at someone's house in situations like this, but for her, she's is probably enjoying a sleep over party.
When Graham was born, I was in hospital for a week and then eight weeks later I was back in with him for another week. I missed my 18 months old Maddy at the time. The older son Brendan 8 then understood and so it felt easier with him.

 

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