Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, August 30, 2005



Bad News Strikes Again

We are sorry for no updates throughout the day.  It has been a very frustrating day.  

Rebekah went down for a CT Scan because they thought that a chest xray was not going to be detailed enough.  The good thing is that she was actually able to have the 5 second scan with mommy by her side and not have to need a generally anesthetic like she has for every other CT Scan.

The bad thing, however, are the results.  Rebekah has pneumonia in one lung.  They are waiting right now for her next batch of morphine so they can then put a tube up her nose and down her throat in order to get “a deep culture” to find out what kind and what to do to treat it.  They will immediately after that start her on some antibiotics.  They can’t start them until after the culture.  Then, when the culture comes back tomorrow morning they will hope that the antibiotics that they started her on were the right ones.

We feel so much for this little girl.  We know that _we_ just want to go home but cannot imagine how much she wants to.  And at this point they cannot even give us a best guess as to when we might get out of here.  

Mommy is running out of clothes and the trailer and daddy are running out of just about everything INCLUDING food and water.  Since we already had a double triple ugh I guess this one needs to be a quadruple UGH UGH UGH UGH!  

Update- 6:32pm.  Well wasn’t that an experience.  Tiny lubricated tube up the nose and ½ down the throat – just enough to trigger her gag reflex so she would cough and the tube could go into the lungs.  Sucky sucky and up comes the culture.  And then UP COMES BREAKFAST LUNCH AND DINNER.  It was hilarious to watch nurse Stephanie trying to suck up pints of “stuff” with a tiny suction catheter as daddy was grabbing for towels and lots of them.  Rebekah is no clean, has new sheets and is sleeping in mom’s arms in the rocker.  

And because tonight is “video night” I will put in a plug for Hollywood Video.  They have donated a movie room and a couple of times a week come around and show a video and provide pop, popcorn and candy to all of the kiddos and their families.  Next time you have choice of where to rent please go to Hollywood and thank them for their donations – when you are stuck in here it is a HUGE thing to look forward to.  In fact, much of the candy and popcorn is donated by their own “guests” or customers – ask them how you can donate.      

26 Shared:

At Tuesday, August 30, 2005 5:49:00 PM, Blogger Shelley L. MacKenzie Left a thought...

I am still praying and have asked some others to pray for her too. God bless you all.

 
At Tuesday, August 30, 2005 5:51:00 PM, Blogger Heather/SHTEZQ Left a thought...

I am SSSSSSSSSSOOOOOOOOOOOOOOO sorry to hear this news. I know you are probably approching the end of your ropes and I am seriously praying for your strength when my son was in the hospital my 2 1/2 year old was bounced around and I never left except to work because i was a single mom. but my family was such a huge help. Thank the lord for your wonderful supportive loving husband, and all your family. I will still kepp praying and encouraging others to do so as well.hang in there mom and dad. God has a plan it is hard to see but it is slowly unfolding for you.

 
At Tuesday, August 30, 2005 6:00:00 PM, Anonymous Anonymous Left a thought...

When trials and toruble challenge you and life seems so unfair. Hand in hand we'll see you through. "He whoo is a friend is always a friend, and a brother (or sister) is born for the time of stress." Proverbs 17:17.

When I read the update today this was the scripture that came as I prayed for Rebekah and you three. You don't know me but I am here with you everyday praying and keeping track and may that help with your stress today and each day forth. At my least I'm praying. Kari

 
At Tuesday, August 30, 2005 6:07:00 PM, Blogger Alison Left a thought...

Great is thy faithfulness oh God my Father, there is no shadow of turning with thee....
Thou changest not, Thy compassions they fail not,As Thou hast been , Thou forever will be....
Pardon for sin and a peace that endureth,Thine own dear presence to cheer and to guide,
Strength for today and bright hope for tomorrow, Blessings all mine and ten thousand besides......

 
At Tuesday, August 30, 2005 6:13:00 PM, Blogger Darlene Schacht Left a thought...

Why this little baby? I feel for all of you and you're still in my prayers.

 
At Tuesday, August 30, 2005 6:32:00 PM, Anonymous Anonymous Left a thought...

I too feel so badly for Rebekah and all of you! This quotation has often been an encouragement to me. I hope it is to you too:

"Sometimes you might feel that it is impossible to endure to the end. That may be right! But when we come to the end of what is possible for us, then we can see God do the impossible. Faith has not begun until we believe God for the impossible. We don't need faith to do what is possible. So if you are facing impossible situations in your life, praise God, for now you can begin to exercise your faith."

-Floyd McClung, Jr.

I'm sure you must think that your faith has had enough exercise, but the Father knows what His children can bear, and He will bear you up on His wings. Praying that you will feel those everlasting arms around you. Heather in Ohio.

 
At Tuesday, August 30, 2005 6:36:00 PM, Anonymous Anonymous Left a thought...

Oops! That last comment was from Heather in Michigan, not Ohio (I grew up in Ohio). I also wanted to let you know that I received one bracelet! Thank you! I'll spread your story and ask for more prayer support.

 
At Tuesday, August 30, 2005 6:37:00 PM, Blogger Julie Q Left a thought...

Still praying and keeping Rebekah and your family in my thoughts.

 
At Tuesday, August 30, 2005 7:12:00 PM, Blogger Queen on the run Left a thought...

I am so sorry to hear that she has to go through this. I pray that she gets over the pneumonia quickly and easily. I hope you are all able to enjoy movie night as a family. Always in my prayers.

 
At Tuesday, August 30, 2005 7:23:00 PM, Anonymous Anonymous Left a thought...

Scott and Frances,
We can't imagine what you are going through.. Just know so many of us are praying for Rebekah, and for you. My heart is breaking for all of you. Back to the same old 'dance' two steps forward, one step back..
Our Glorious Father has a plan, He will carry you through.
Enjoy the movies, and the CANDY!! mmmm.. Reeses.. :)
We will be on our knees praying for your family again tonight.
Much Love,
Allie , The Twins, and Lanie

 
At Tuesday, August 30, 2005 7:25:00 PM, Blogger k8 Left a thought...

praying everyday, still, every time i think of you all.

xok8

 
At Tuesday, August 30, 2005 7:28:00 PM, Blogger Jeff H Left a thought...

Dear Lord, you can clear her lungs. We know you can. She needs clear lungs, dear Father, to strengthen her body to withstand the treatments. We pray in the name of Jesus, by the power of your Holy Spirit, to bring this to pass, as you see fit.

 
At Tuesday, August 30, 2005 7:34:00 PM, Blogger steve Left a thought...

here with you

 
At Tuesday, August 30, 2005 7:48:00 PM, Blogger Kathy Left a thought...

If Rebekah is immunosuppressed and has pneumonia, this is a very serious situation that requires serious prayer.

We can so identify with wanting to go home. We spent 9 months in Memphis 2000 miles from home, family, church and friends, trying to get our boy his cure, and we were homesick beyond all description.

We spent 3 weeks out of each month in the hospital, holding his head while he vomited, eating out of vending machines and wearing the same clothes over and over, washing them out in the hospital sink.

But we wouldn't trade one moment of that precious time we spent with our dear son. We'd do it all over again, that and more, 100-fold, if the result was healing.

We pray for perseverance and patience for Rebekah's parents. These things happen in the Lord's timeline.

We hold dear Rebekah close to our hearts as we pray for her complete healing.

 
At Tuesday, August 30, 2005 8:21:00 PM, Blogger Pam Left a thought...

A quadrupling of prayers...

 
At Tuesday, August 30, 2005 9:22:00 PM, Blogger Jojo Left a thought...

So glad to hear you now know the problem. Father, please allow the culture to quickly show what the Dr.'s need to know so they can effectively treat Rebekah with her pneumonia. To us it seems like one more setback - but Lord we trust your timing & ways to be perfect. We know you work ALL things for the good of those who love you, those who have been called according to your purpose. In that we trust. Thru Jesus we humbly pray - Amen

 
At Tuesday, August 30, 2005 9:37:00 PM, Blogger jomo Left a thought...

Scott and Frances,
Keep the faith. Your God will sustain you. "I am sorry" doesn't seem appropriate to say when you've been through so much, but my heart is broken for you and Rebekah. I know the Father is with you and there will be a victory in this.
My prayers are with you.

 
At Tuesday, August 30, 2005 10:45:00 PM, Blogger Live, Love, Laugh Left a thought...

"And He said unto me, My grace is sufficient for thee: for My strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."

2 Corinthians 12:9

When you run into an impossible situation, a situation you simply don't have the strength or the ability to handle or you are tempted to simply give up and accept defeat? Don't! Instead shout, "Glory!" because the Word says God's strength is about to be made perfect in you.

The word translated "strength" in this scripture is dunamis. It means "God's miracle-working power." Just think about that. When your human strength ends, God has promised that His miraculous power will bring you through!

I'm praying for all of you!!

 
At Wednesday, August 31, 2005 3:36:00 AM, Blogger Jenny Left a thought...

Even in the most dire circumstances, Lord, we praise you. We lift up Rebekah and ask that in your mercy you will clear this little girl's lungs.

I pray that Mommy and Daddy are cared for and that you heal their family- mind, body and spirit.

Father with so many praying for this family, we know you are here in our midst. The Bible says "where two or more are gathered, there You are." Right now it's so heartbreaking and so frustrating.

But instead of letting us cry and shout, please put in all our hearts a burning desire to pray MORE for Rebekah and to lift her up even more. Put in our hearts the desire to read your Word, to search for comfort for this family and for ourselves. Put in our hearts the desire to know you more and better, and in so doing, win those around us for Your Kingdom.

In Jesus Name, Amen.

 
At Wednesday, August 31, 2005 4:51:00 AM, Blogger Corry Left a thought...

2 Chronicles 20:9
‘If disaster comes upon us—sword, judgment, pestilence, or famine—we will stand before this temple and in Your presence (for Your name is in this temple), and cry out to You in our affliction, and You will hear and save.’

Our prayers are with you!

God's Grace.

 
At Wednesday, August 31, 2005 5:42:00 AM, Blogger Shelley Left a thought...

Isaiah 41:13
"For I am the LORD, your God, who takes hold of your right hand and says to you, Do not fear; I will help you."

Please hang in there and know there are many folks out here who care. With thoughts and loving prayers.

 
At Wednesday, August 31, 2005 6:15:00 AM, Blogger Katie Left a thought...

We offer comfort, community, and prayer, lots and lots of prayer. We're all still here, we're all still praying, your family is never far from our thoughts.

 
At Wednesday, August 31, 2005 6:39:00 AM, Blogger Ileana Left a thought...

Please know that you are on our hearts and minds and especially in our prayers. Rebekah is special to all of us!

 
At Wednesday, August 31, 2005 6:51:00 AM, Blogger Robin Left a thought...

Poor little baby!

 
At Wednesday, August 31, 2005 7:18:00 AM, Anonymous Anonymous Left a thought...

Holy Father,in Jesus name, please, no more suffering.I claim the power of the shed blood of Jesus that heals,protects and empowers to cover each member of this family. I pray that the light of your love (Jesus) would blind and confuse the enemy.We all claim victory in Rebekah's life. In the powerful name of Jesus. AMEN

 
At Wednesday, August 31, 2005 9:35:00 AM, Anonymous Anonymous Left a thought...

Heavenly Father comfort and guide this family through another day. Lord, I pray you guide the Doctors to ensure they are using the best medicines for our little Rebekah. Comfort Rebekah and place your healing hands on her today and clear her lungs. You Lord are all powerful, we trust in your every move.
Amen

 

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