Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Friday, September 01, 2006



Hectic Week

It has been a hectic week. Rebekah was in class/testing 4 days this week. It seems we've been running ragged. Welcome to our new routine. The teachers and therapists seem to be making good progress with the testing. I don't know any of the results, yet.

In addition to that, we are trying to get ready for camping this weekend. Candlelighters (a support group for familes affected by cancer) is sponsoring a camp outside Eugene (2 hours south of us). We are looking forward to the camp. It will be a little different for us, since they are providing family style meals and the group is pretty big (a little more than 200). We're taking the camping trailer, but most people are staying in cabins. I'm sure the girls will have fun playing and making new friends.

We have a Care Conference set up for next Friday afternoon. Hopefully, we will get some much needed answers. Please pray that it goes well and that the people who need to be there will be.

Rebekah's eating hasn't really changed much. She is still drinking the juice boxes and when she has visitors they can get her to eat more. We still need to do some pediasure through her g-tube and I can only do a little at a time (not more than 1/4 cup).

The appointment with the ENT went well. He wasn't too concerned with where she was currently, but gave us a prescription for an antibiotic in case she got worse or started running a fever. I haven't filled it, but will have it with us this weekend just in case. Last night, she had a little bit of a fever 99.9 but today is back down to normal. We will keep an eye on it. As he told me, sinus infections can be from viruses and therefore antibiotics won't help.

It is really becoming apparent that we need to give Rebekah ways to communicate without relying on her verbal skills. So, we are looking at options. Her comprehension is so much better than her ability to express. There are so many options - sign language, pictures, a device. We are trying to sort it out a bit.

Hope you all enjoy the holiday weekend. We are sure going to try.

6 Shared:

At Saturday, September 02, 2006 11:25:00 AM, Blogger jel Left a thought...

hope you all have an Awesome weekend!


huggs!

 
At Saturday, September 02, 2006 6:33:00 PM, Anonymous Jayleigh Left a thought...

Praying for all of you!!!

 
At Sunday, September 03, 2006 5:45:00 AM, Anonymous Tammy Left a thought...

We are continuing to pray for your whole family and hope you enjoy this Holiday weekend. Sometimes the little things turn out to be the biggest blessings !

 
At Monday, September 04, 2006 11:18:00 AM, Blogger My Kid's Mom Left a thought...

Hoping you're enjoying this holiday weekend! I'll keep you in my thoughts and prayers over the next few days, and especially on Friday.

 
At Monday, September 04, 2006 12:52:00 PM, Anonymous Anonymous Left a thought...

We are praying for you here too. I hope that you get your meeting soon.

I hope that your holiday went well.

I was going through some things that I had put away & found a "Help Rebekah" poster that I had printed. Would you still like people to put these up???

-thebluestbutterfly
http://coffeehobby.blogspot.com
(I can't leave a message the normal way until after everyone goes through the Beta Blogger transition)

 
At Tuesday, September 05, 2006 1:02:00 PM, Blogger Lora Left a thought...

Praying for your family!

 

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