Hectic Week

It has been a hectic week. Rebekah was in class/testing 4 days this week. It seems we've been running ragged. Welcome to our new routine. The teachers and therapists seem to be making good progress with the testing. I don't know any of the results, yet.

In addition to that, we are trying to get ready for camping this weekend. Candlelighters (a support group for familes affected by cancer) is sponsoring a camp outside Eugene (2 hours south of us). We are looking forward to the camp. It will be a little different for us, since they are providing family style meals and the group is pretty big (a little more than 200). We're taking the camping trailer, but most people are staying in cabins. I'm sure the girls will have fun playing and making new friends.

We have a Care Conference set up for next Friday afternoon. Hopefully, we will get some much needed answers. Please pray that it goes well and that the people who need to be there will be.

Rebekah's eating hasn't really changed much. She is still drinking the juice boxes and when she has visitors they can get her to eat more. We still need to do some pediasure through her g-tube and I can only do a little at a time (not more than 1/4 cup).

The appointment with the ENT went well. He wasn't too concerned with where she was currently, but gave us a prescription for an antibiotic in case she got worse or started running a fever. I haven't filled it, but will have it with us this weekend just in case. Last night, she had a little bit of a fever 99.9 but today is back down to normal. We will keep an eye on it. As he told me, sinus infections can be from viruses and therefore antibiotics won't help.

It is really becoming apparent that we need to give Rebekah ways to communicate without relying on her verbal skills. So, we are looking at options. Her comprehension is so much better than her ability to express. There are so many options - sign language, pictures, a device. We are trying to sort it out a bit.

Hope you all enjoy the holiday weekend. We are sure going to try.