Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, August 22, 2006



Not Great News - But Not Horrible Either

Well, we received the call from the doctor's office earlier this morning. It was not the great "everything disappeared overnight" news that we have been praying for, but not exactly bad either.

The tumor board reviewed the scans and apparently had a more detailed report from some more radiologists. Yes, there are areas of activity throughout different places in her body. But there is some rating system (in numbers) that assigns how much activity. What we had received earlier was just "activity." The numbers tell how active the activity is and the numbers are apparently not that high. What this means is that THEY are not that worried and want another set of scans again in a month.

What it does not do is remove a lot of concern on our part. There is still some activity. We don't know what, we don't know why, and it seems that maybe we are not going to for short while. We know we will be able to, but are not sure exactly how we are going to cope with this "unknown" for another month. Sometimes it seems like "nothing" or "everything" is better than "just a little bit let's wait and see".

We don't know what scans they are going to want in a month and we have asked for a "care conference" where WE sit down with all of the docs and case manager so we can have a little bit more of a better understanding of what has been done, what is going to be done, and what OTHER options there are.

18 Shared:

At Tuesday, August 22, 2006 1:08:00 PM, Blogger Jeff H Left a thought...

I'll be praying you get the clarity you need.

And just FYI: I was doing the "Next Blog" button thing, and this is the first time I've ever come across a blog I already knew quite well by that method!!!

 
At Tuesday, August 22, 2006 3:11:00 PM, Blogger The other me Left a thought...

A whole lot of praying can be done all around the world in a month! I know I will praying. God bless your family.

 
At Tuesday, August 22, 2006 7:10:00 PM, Blogger My Kid's Mom Left a thought...

A "CAre Conference" is a wonderful idea! Be sure to make a list of questions before you go. The uncertainty is the worst - that's the most difficult place to be in. I shall keep praying, and ask others to join me as well. Thank you for your update.

 
At Tuesday, August 22, 2006 9:19:00 PM, Anonymous Anonymous Left a thought...

I have to agree with "the other me"... I was thinking the same thing!! I will be praying this month lots for Rebekah, info being made known and clearly communicated to you and peace all around. God Bless You!!! ~Kelli W

 
At Tuesday, August 22, 2006 9:46:00 PM, Anonymous Anonymous Left a thought...

OK everyone, it's time that we all storm Heaven with prayer for Rebekah. I know I will be praying and God covetes our prayers so don't hold back. He can do migthily what we can't.

 
At Tuesday, August 22, 2006 11:19:00 PM, Blogger Deb Left a thought...

Not only has Olivia been praying for "that nasty old devil to leave Rebekah alone" but now she has made up a song about an angel and how the angel chases the devil and Rebekah gets all better....and she sings the song all the time.

...the faith of a child....

...still praying here in Pennsylvania! ---and will continue!

 
At Wednesday, August 23, 2006 6:51:00 AM, Anonymous Teresa M. Left a thought...

I believe that no matter what the enemy appears to do by deception or by destruction....the bottom line...God IS victorious. He has done great things and continues to be the awesome I AM. I pray for all of us to continue to stand in the gap of intercession with praise and thanksgiving, knowing how great is our God and how much he loves Rebekah and her family.

Scott and Frances you are HIS beloved as HE is yours. I pray that you continue to find peace and comfort under the shadow of His wings. Our family is there for you as well.

 
At Wednesday, August 23, 2006 7:54:00 AM, Anonymous Sarah Left a thought...

Thank you so much for the update. I will continue to pray that everything is fine. Prayer is powerful and each one of us praying can only help. I will also pray that God gives you peace as you wait. I've always said that when God says wait it's sometimes worse than when God says no.

With Love,
Sarah from Missouri

 
At Wednesday, August 23, 2006 8:38:00 AM, Blogger Mike & Mari Left a thought...

If there is one thing I've learned alot about these days is patience, and that we have to wait on the Lord. With Mike, that's what it's been, and continues to be. I will continue to pray for Rebekah as I do every day as I pray for Mike. We can never guess why God makes us wait, but usually when it is finally revealed to us, there is a good reason. Hang in there, we are all out here praying for all of you. Love to all, Mari

 
At Wednesday, August 23, 2006 5:07:00 PM, Blogger Eva Left a thought...

God has promised to never give you more than you can handle (with His help), and in our darkest hour His light can be seen brightest as it breaks through the darkness. Rebekah is His as you are His and no matter what happens - He will be your strength and peace. And in our difficult moments, that is when His miracles can been seen and recognized by those who DON'T know Him. What you are going through is not a coincidence or an accident though at times it does not seem fair. You may not know til heaven the lives that are being changed by watching your life and Rebekah's courage. By watching your faith lived out through the storms you face.

Praying...

 
At Wednesday, August 23, 2006 9:02:00 PM, Anonymous Jayleigh Left a thought...

Still praying for you all.

 
At Thursday, August 24, 2006 8:04:00 AM, Blogger jel Left a thought...

count me in for praying for Baby Doll! and for you all


God Bless

huggs

 
At Thursday, August 24, 2006 8:53:00 AM, Blogger Shelley Left a thought...

I'll keep praying!

 
At Thursday, August 24, 2006 3:18:00 PM, Blogger gabatha Left a thought...

im praying for you..!!

 
At Thursday, August 24, 2006 3:19:00 PM, Blogger gabatha Left a thought...

im praying for you..!!

 
At Thursday, August 24, 2006 10:31:00 PM, Anonymous Collie Left a thought...

Dear Lord:

We don't understand why these things happen to good people. We don't know why this illness have settled on an innocent child. Your ways are mysterious and no one has ever fathomed your mind. This is where we will put our whole trust and faith in you foryou alone know what the future holds. May the spirit of healing be upon Rebekah. May you touch her and make her whole.
In Jesus' name we pray, amen.

 
At Monday, August 28, 2006 6:33:00 AM, Blogger Julie Q Left a thought...

I continue to keep you all in my thoughts and prayers.

 
At Wednesday, August 30, 2006 10:57:00 AM, Blogger David Schantz Left a thought...

We want Rebekah and her family to know that they will all be in our thoughts and prayers. Several members of our family have had health problems in the past and we have seen the power of prayer at work many times. God Bless all of you.

God Bless America, God Save The Republic.

 

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