Crazy Days
We have been running ragged. Rebekah has in school 3 days a week for the last 2 weeks as well as this week. In addition to school, we've been doing Speech Therapy and Horse Riding Therapy and trying to work on PT and OT activities at home. Then, we've been working with insurance on additional therapy dollars and understanding what has been approved as well as looking at other possibilities for services such as Shriner's hospital. It seems like taking care of Rebekah and her needs is more than a full time job and I still have Sarah and a house to run in addition to trying to help Daddy out.
We have had another heat spell. Finally, today wasn't so bad - it only got up to about 90 today. We've had 4 days with temperatures higher than 100 degrees. Friday, our thermometer said 112 and Sunday it read 109. Mommy and the girls spent a few nights in the camping trailer, since it has air conditioning. That made it much more comfortable for sleeping, but didn't help Mommy get anything done around the house.
Wednesday (tomorrow), Rebekah has an appointment with a dietician to look at her nutritional requirements and help us get there. Meanwhile, over the last week or so Rebekah has not been eating well at all. I don't know if it is the heat, or if there is something else going on. So, I'm a bit concerned. Wish I had all the answers. She has been drinking the juices and doing pretty well with it. She still isn't getting enough calories.
Rebekah's 6 month MRI is scheduled for next Friday August 4th. Hopefully, we will be able to get her Panorex and Chest Xray done earlier that week. Then we have our clinic appointment the following Tuesday. Please pray for clear scans.
Next Wednesday, Rebekah has an eye appointment to have a look at the issues that her developmental specialist noted. I don't know what that will bring, but we'll take it a day at a time.
In some ways, life seems so normal and then in other ways it seems so NOT normal.
Share a thought or prayer: 12 Comments
12 Shared:
I've been searching and reading through this blog for a little while now and I just wanted to extend my prayers and well wishes for beautiful, brave little Rebekah. I'm going to add your link to my own blog so that others may learn about her and pray for her and the family also.
Take care, God bless.
Jess
Praying for all of you, especially Rebekah. Thank you for keeping this blog going so we can keep updated and pray specifically, too!
Love to all, Jodi
Father God, maker of all, sow peace in the hearts of your servants so that in days of war and calamity they can have rest in knowing you hold the shaky world in your hands.
Give this Mom supernatural love that leaps across the chasm of fear and doubt into the safety of your promises and onto the solid rock of faith in Christ jesus. Most of all, give them the gift of praise. Amen
Hi everyone, sorry I haven't been around, the girls have grown,
and I will be praying for a clean scan!
take care
and God bless
I'm still here checking your blog and praying daily. Caron
I betcha she's not eating that much due to the heat. I'll keep her and all of you in my prayers for clear scans. I definitely know what you mean when you say life seems normal and yet not normal. It's the life of living with an illness which can come back out of hiding at any given moment.
Glad all is well you guys!
My new CD is out! Come check it out!
...just letting you know that I'm still here and still praying!!
God is faithful...always!
Deb
I'm still keeping up with your blog and still holding you and your little ones (espicially Rebekah)up in prayer. God Bless, Leanne in Pa.
I know the Rebekah's 6 month MRI is on FRiday, so I'm saying some extra-special prayers right now. Please keep us posted!
Just wanted to let you know I am still checking up on this precious girl. what strength she has! An example to us all. It is such a joy that she is doing so well, playing with her sister, she is in my thought so often (as is your whole family) The pictures of her loking so good and happy do my heart so much good.
I will pray for clear scans for sure. I think you had something when you said it could be the heat as to why she wasn't eating so well. Heat tends to do that, especially to those who aren't top of the line healthy. I am sure with the cooler weather that her appetite will come back. And she should go into a growing spurt too and that will help. Hope everything goes well with her eye too. Sorry its been so long since I stopped by....
Thank you from Rebekah...
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