Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, June 07, 2006



Some Good Days

It has been a good few days. Neither of the girls have been requiring pain medications, which is good. Rebekah has been eating and tolerating her feeds. Still not much luck with potty training.

Last night, it was about an hour after bedtime by the time we actually got the girls into bed. Horse back riding, dinner and a bath just took longer than usual. Although it was a later than normal bedtime, they both cooperated very well and went right to sleep. That got me thinking that perhaps I was trying to put them to bed too early. So tonight, I kept them up for an extra hour and they seemed to go right to bed again. Maybe, just maybe, that is the trick to getting them to cooperate with bed time.

Monday night, however was NOT a good bedtime. They did not want to go to sleep. And then Rebekah pulled Sarah's hair and pulled a clump out. She got some severe talking to about that. I wasn't sure (and to some extent, I'm still not sure) if they will be able to continue to share a room. If Rebekah continues to be "rough" with Sarah and they pester each other at bed time, then they will need to be separated. We will have to see how it continues.

Rebekah seems to be figuring out our routine. Today, she was pretty sure that it was a school day. In addition, she knew she would need her backpack and we would go bye bye. Next Monday will be her last day of school until July and then there will be 2 and a half weeks of school and then another few weeks off before the regular year starts the last week of August. It will be a sad time for Rebekah, especially if she is truly learning the routine. I'm sure that we will find other ways to occupy our time!

Part of our night time routine includes saying prayers. Well, the girls have determined that they need to kneel in front of Sarah's bed for prayers. We had been sitting on one of the beds. Also, Rebekah has started saying the prayers for us. It is mostly unintelligible to me, but she has figured out that she needs to end with Amen. It is really rather cute to watch. And they certainly make sure that we get our prayers said.

She is using more and more words. Today, she actually strung two words together without any prompting. I can't remember what it was she said, but it impressed me. During her horse riding therapy, she was getting out some S and F sounds. F's are completely new and S's we haven't heard in a while. It is always good to see some progress.

7 Shared:

At Friday, June 09, 2006 5:45:00 AM, Blogger Danny Sims Left a thought...

We love those first words & first sentences!

God bless you all today!

 
At Friday, June 09, 2006 5:46:00 AM, Blogger JodiTucker Left a thought...

Yay for good days! Yay for progress for Rebekah (and Sarah, too)! So glad to hear of this! They are precious gifts from God, even at times when they may drive you bonkers.

 
At Friday, June 09, 2006 7:36:00 PM, Blogger My Kid's Mom Left a thought...

What a great post!!! Still praying for you here in Ohio!

 
At Saturday, June 10, 2006 12:10:00 PM, Blogger Jayleigh Left a thought...

I am moved to tears in reading this. May the Lord of all continue to bless your sweet family.

 
At Sunday, June 11, 2006 6:27:00 PM, Blogger Lora Left a thought...

I am so very happy to hear of Rebekah's progress with her speech. Way to go Rebekah! That's great that she was making the F & S sounds while on the horse. Maybe the horseback riding therapy is helping her in more ways than one.I am going to look into starting Griffin with horseback riding therapy he just loves horses and I think that there's a lot to be said for children and animals working together. Have a blessed day! ~Hugs from Alaska~

 
At Monday, June 12, 2006 7:17:00 AM, Blogger Jeff H Left a thought...

"It is mostly unintelligible to me, but she has figured out that she needs to end with Amen."

God hears--and understands--everything she says.

 
At Monday, June 12, 2006 8:52:00 AM, Anonymous Anonymous Left a thought...

Im really happy for the happy days..
God bless you!!
Praying for you.. Sonora, México

 

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