Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Sunday, June 25, 2006



Weather is Hot, We are Laying Low

Here's the picture we promised from last weekend's Merry-go-round ride - that is JJ riding next to Rebekah.




The temperature yesterday was nearly 100 F, today was a little hotter and tomorrow even hotter. We are trying to stay cool. NO AC makes it a little difficult, but we are doing what we can.

Yesterday, we broke out the swimsuits, swimmer diapers and the wading pool. The girls really didn't want to do much with the pool, though. Rebekah would get her feet wet, but didn't want to sit in it or anything more. Sarah didn't even really want to get her feet wet. We even got out the bathtub boats, but that didn't get the girls into the pool either.

Instead they wanted to swing and play on the playset and we played some with bubbles. By the time we came in, both girls needed a bath.

Grandma C and Grandpa came out yesterday to see us and play with the girls and bring some fresh lettuce from their garden (always a treat).

Tonight, we headed over to Grandma M's for a little while to enjoy the AC and her company and we picked up dinner on the way, so none of us had to cook. Mommy actually got to rest a little bit - she was pretty tired.

We've made some progress this week with eating and moving toward being off the feeding tube. We've been working on giving Rebekah some higher calorie foods (cheetos, whole milk in her cereal, high fat/calorie salad dressing as dip for veggies or cheetos or whatever). She seems to really like the cheetos (not my favorite) and would eat them all day long if given the chance. Meanwhile, I've been trying to limit how much of those high calorie foods Sarah is getting, since she will eat much more than Rebekah if given the chance.

At the same time, the insurance has agreed to cover the Resource Breeze juice drink on a trial basis. We should have some from our home health company next week. Also, they are going to send some Banana Cream PediaSure. Hopefully, Rebekah will like the taste of that better and be more willing to drink it, too. Meanwhile, she has actually been drinking some of the Vanilla PediaSure the last few days. What a change that has been.

Rebekah had a little bit of a melt down this week during her horse back riding. She just wanted Mommy and wanted down from the horse. I'm not really sure what that was about. Then she wanted Sarah to ride the horse, so Sarah got one lap around the arena. Afterward, Rebekah got back on the horse and made another lap or two, but we finished up early because she just didn't seem to thrilled with it and we didn't want to end on an unhappy note. We'll see what happens. Some days, she is just more of a Mommy's girl than other days.

This week will be another kind of quiet one, hopefully. Hope you all are doing well.

8 Shared:

At Monday, June 26, 2006 3:32:00 PM, Blogger steve Left a thought...

ITS HOT!!!! ITS REALLY HOT!!!

Hope you all stay cool!

 
At Monday, June 26, 2006 5:38:00 PM, Blogger My Kid's Mom Left a thought...

Wow - I don't like it when it gets that HOT.

All is well here - glad to know things are doing well there, too.

 
At Monday, June 26, 2006 6:06:00 PM, Blogger JodiTucker Left a thought...

HI Oregon family,
Partial Adams and Tucker family posting from Fort Myers, FL now.
It's hot here, too but with ocean breeze, it's nice. Since when does OR get 100 degree temps??
Always good to know of Rebekah and Sarah's growth and progress!

 
At Thursday, June 29, 2006 1:56:00 PM, Blogger Lora Left a thought...

It is so nice to hear that Rebekah is off her feeding tube. I hope that you all are able to stay cool in that awful heat. Sorry I haven't been by to comment in awhile, it has been a really busy summer for us so far. We are having rather cool temperatures here, in the 60's which is perfect to me. Hope that the girls eventually will play in the little pool, they could have so much fun splashing around. Take care

 
At Thursday, June 29, 2006 8:54:00 PM, Blogger Darlene Left a thought...

She looks cute with her hair growing in.

 
At Friday, June 30, 2006 9:30:00 PM, Blogger Eva Left a thought...

Rebekah looks a lot like mommy in this picture. :) Very cute.

 
At Tuesday, July 04, 2006 8:06:00 AM, Blogger Deb Left a thought...

I just wanted to say Happy Independence Day! You are all consistently in our prayers - still!

Olivia is thrilled to hear that Cheetos are one of Rebekah's favorite snacks! Olivia loves them too and would eat an entire bag if I would let her! We have a bag on hand today for our 4th Festivities.

Rebekah's hair is growing!! Yeah!

God bless you all!
Deb in PA

 
At Tuesday, July 04, 2006 9:19:00 PM, Blogger My Kid's Mom Left a thought...

Just wanted to wish you a Happy Fourth!

 

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