Waiting Is No Fun

We do not have a Care Conference set up, yet. We are getting frustrated. Clinic has been really busy with new patients and one of the doctors on vacation. Today has been a week since we first asked for the Care Conference.

Rebekah’s classes started up yesterday for the year. She did really well with staying and Mommy leaving. Sarah wasn’t so fond of leaving (she really enjoys playing for a few minutes when she can). If Sarah were a year older, she could stay as a "typical peer", but she would have to be three and she’s not quite 2.

We have asked for some testing to see where Rebekah’s skills are at after her chemo treatments (to get a baseline) and the teacher and therapists are planning to do much of that this week. It will be good to see where she is at, although I know it will be somewhat difficult to hear. It is never fun to know how far behind your child is.

Our friend Genia, who has been with us for three weeks, is heading home today. It is sad to see her go. She has been a great help and the girls have loved having her around. (Mommy and Daddy have enjoyed having her here as well and she has been great!) This morning, Genia and Daddy were out the door about 6:30 to get to the airport. The girls were just waking up, so they got to say "bye bye" to Genia. They made it very clear that they didn’t want her to go. After Daddy and Genia left, the girls kept asking for Genia and didn’t want Mommy’s help.

Grandma M and Grandma A are back to school this week in preparation for the new school year. It has been great to have them available to help more, so Mommy could make appointments and not have to take both girls or just be able to get more done around the house.

Grandpa and Grandma C have been bringing out fresh veggies once a week or so for the last few weeks. It has been great! Last night’s dinner was fresh corn, tomatoes, cucumbers, fruit salad and boy was it delicious. Genia really enjoyed the fresh fruits and vegetables.

This afternoon, I’m taking Rebekah to the ENT. One of her scans, I think the MRI, showed a little bit of a sinus infection and the last few days it has been evident that she is having issues. I’m going to guess that she’ll be put on an antibiotic for it, but we’ll have to wait and see. I suspect that infections like this will be an ongoing issue for her.

Thanks so much for all the prayers and comments. It is a great encouragement to us. We are not totally freaking out at this point, but we are having trouble planning very far ahead. We just don’t like being in limbo. It’s not a fun place to be.