Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, August 29, 2006



Waiting Is No Fun

We do not have a Care Conference set up, yet. We are getting frustrated. Clinic has been really busy with new patients and one of the doctors on vacation. Today has been a week since we first asked for the Care Conference.

Rebekah’s classes started up yesterday for the year. She did really well with staying and Mommy leaving. Sarah wasn’t so fond of leaving (she really enjoys playing for a few minutes when she can). If Sarah were a year older, she could stay as a "typical peer", but she would have to be three and she’s not quite 2.

We have asked for some testing to see where Rebekah’s skills are at after her chemo treatments (to get a baseline) and the teacher and therapists are planning to do much of that this week. It will be good to see where she is at, although I know it will be somewhat difficult to hear. It is never fun to know how far behind your child is.

Our friend Genia, who has been with us for three weeks, is heading home today. It is sad to see her go. She has been a great help and the girls have loved having her around. (Mommy and Daddy have enjoyed having her here as well and she has been great!) This morning, Genia and Daddy were out the door about 6:30 to get to the airport. The girls were just waking up, so they got to say "bye bye" to Genia. They made it very clear that they didn’t want her to go. After Daddy and Genia left, the girls kept asking for Genia and didn’t want Mommy’s help.

Grandma M and Grandma A are back to school this week in preparation for the new school year. It has been great to have them available to help more, so Mommy could make appointments and not have to take both girls or just be able to get more done around the house.

Grandpa and Grandma C have been bringing out fresh veggies once a week or so for the last few weeks. It has been great! Last night’s dinner was fresh corn, tomatoes, cucumbers, fruit salad and boy was it delicious. Genia really enjoyed the fresh fruits and vegetables.

This afternoon, I’m taking Rebekah to the ENT. One of her scans, I think the MRI, showed a little bit of a sinus infection and the last few days it has been evident that she is having issues. I’m going to guess that she’ll be put on an antibiotic for it, but we’ll have to wait and see. I suspect that infections like this will be an ongoing issue for her.

Thanks so much for all the prayers and comments. It is a great encouragement to us. We are not totally freaking out at this point, but we are having trouble planning very far ahead. We just don’t like being in limbo. It’s not a fun place to be.

10 Shared:

At Tuesday, August 29, 2006 8:11:00 PM, Blogger The other me Left a thought...

I hope all goes well with Rebekah's ENT appt, having sinus trouble is horrible, I hope they clear that up for her quickly.
As for hearing how behind Rebekah is, I think she has learned more than most of us do in a lifetime! She is an A student in my eyes.

 
At Tuesday, August 29, 2006 9:17:00 PM, Anonymous Jayleigh Left a thought...

hugs and prayers for you

 
At Tuesday, August 29, 2006 9:17:00 PM, Blogger My Kid's Mom Left a thought...

Thanks so much for the update. The uncertainty is horrible, I know. Please know that all of us are praying for you and your family.

 
At Wednesday, August 30, 2006 4:08:00 AM, Blogger Danny Sims Left a thought...

I'm with the other me in her comment... Rebekah (and all of you ) have passed some of life's hardest tests.

Keep the faith and know we pray for you.

 
At Wednesday, August 30, 2006 8:19:00 AM, Anonymous Debbie Left a thought...

You've all been in our thoughts and prayers.

 
At Wednesday, August 30, 2006 9:37:00 AM, Blogger Katie Left a thought...

praying for quick answers

 
At Wednesday, August 30, 2006 12:18:00 PM, Blogger Julie Q Left a thought...

Waiting is hard.

Glad to hear she likes to go to school.

Continuing to keep you all in my thoughts and prayers.

 
At Wednesday, August 30, 2006 11:37:00 PM, Anonymous Teresa M. Left a thought...

Hanging on to each moment along with you...

 
At Thursday, August 31, 2006 12:56:00 PM, Blogger Deb Left a thought...

Still praying in Pennsylvania!!

Trusting that you'll get some answers soon --that the care conference will get scheduled --and that Rebekah's sinuses clear up.

As for where she is ability-wise, my goodness, she has taught me so many lessons in this past year and a half! Regardless of where the 'experts' say she falls on the 'charts' --know that you are blessed with a little girl who has touched the world!!!

 
At Friday, September 01, 2006 4:43:00 AM, Anonymous Tammy and Family Left a thought...

You continue to be in our thought's and prayer's on a daily basis and we know that with faith you will make it through this !

 

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