Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, January 12, 2006



Another Day Drawing to a Close

Today has drawn nearly to a close.

After an early lunch, we (the girls and I) went into clinic early this afternoon. Unfortunately, Sarah did not nap in the van on the way in, like I hoped she would.

Her counts were up today, so it was a good thing that we had not given her a shot last night. Some of her complaints of pains could be from the high White Blood Count causing bone pain. Had we given her the shot, the counts would have gone higher and could cause even more pain. Doc said that with her platelet count up right now, she could have an occasional dose of Motrin which might help better with bone pain.

Doc gave us a prescription for another laxative (Miralax), so we will see if that helps. Also, we got a prescription for Claritin to see if that will help with the sneezing fits. We actually got an over the counter equivalent in liquid form.

After clinic, we dropped off the prescriptions and then headed up to visit with Josh and his mom. On the way, we saw Madeleine's mom and chatted with her for a few minutes. We took a little walk with Josh and his mom April and on our way, we saw Warren, his brothers, his sister and Mom. It is good to check in with other families, but we never really want to see anyone in the hospital. I didn't find out until after I got home that Kennedy was in the hospital, too. Otherwise we would have stopped in to see her, too, if she was up for company. Sorry Kennedy.

The other night, Rebekah was complaining of owies and when I asked her where she pointed to her tummy. That was a new one for her, usually she will point to her mouth or her bottom. When I asked her if she wanted some tummy medicine, she was adamant that she did NOT want tummy medicine. What she did seem to want was lotion. I'm not sure why, but that is what she wanted and with a little lotion, she settled down. Go figure! A couple of times today, she has complained about owies and pointed to her tummy. And, again, lotion is what she wanted to fix the problem. If it helps, I will go for it.

As we were leaving clinic, Sarah had been in the stroller and looked like she wanted to go to sleep. Rebekah said that she wanted to go in the backpack. Usually, I put Rebekah in the stroller and Sarah in the backpack. With Sarah trying to go to sleep and Rebekah wanting into the backpack, I decided we would try that. The backpack is rated to 40 pounds and Rebekah is just less than that, so we weren't over the limit. It was quite a bit more weight on my back and hips than I'm used to, but it worked out ok. This evening, my knee hurts but my back seems to be doing ok. We'll have to see about tomorrow. Sarah never did fall asleep in the stroller, but she was out pretty quick once we got back to the van.

Rebekah is not cooperating at all with bed time. It is often taking two hours or more to actually get her to sleep. That makes it pretty rough.

Well, I feel like I've rambled on tonight. One day at a time...

10 Shared:

At Thursday, January 12, 2006 11:05:00 PM, Blogger Eva Left a thought...

Strange about the tummy. Who knows. She could have itchy skin. Hmmmm......

 
At Friday, January 13, 2006 5:07:00 AM, Blogger Danny Sims Left a thought...

We love your "ramblingvs"! Keep it up and keep the faith!

 
At Friday, January 13, 2006 5:07:00 AM, Anonymous Anonymous Left a thought...

ramble all you want, if you want too, it's good for the soul,
huggs
janice

 
At Friday, January 13, 2006 5:21:00 AM, Blogger Addison Left a thought...

ramble all you like, it's all relavant

 
At Friday, January 13, 2006 7:01:00 AM, Anonymous Teresa Left a thought...

Keep up with the good chin up Frances. Will pray for Scott to be well. I was thinking, maybe the tummy rub itself is soothing to Rebekah? I used massage on my kids when they were little for soothing tummies and calming them. Just a thought. God bless your family with healing and abundant joy.

 
At Friday, January 13, 2006 8:36:00 AM, Blogger ddddddddddddddddddddd Left a thought...

Hugs and love. Tummy rubs used to put my son to sleep even without lotion.

And I like your rambles.

 
At Friday, January 13, 2006 8:54:00 AM, Blogger Carol Warlick Left a thought...

Frances thank you for rambling. I hope your knees are feeling better today and you don't have any back pain. I have enjoyed reading the updates lately, I know the girls at times are trying your patience, but it's nice to hear they are being normal little girls. I am happy to hear that Rebekah's counts are up and it sounds like now she needs some little tummy rubs. I know my girls love it some nights when I just rub their tummies as they are falling asleep. I hope Scott is feeling better. Always in my thoughts and prayers.

 
At Friday, January 13, 2006 9:50:00 AM, Blogger steve Left a thought...

One day at a time is right...

That phrase sums it all up perfectly

Praying for you guys

 
At Friday, January 13, 2006 2:40:00 PM, Blogger vgarr Left a thought...

Thanks for keeping this updated!! I appreciate it!

 
At Friday, January 13, 2006 3:17:00 PM, Anonymous Anonymous Left a thought...

I just found you and I have read back a good ways. I want you to know that you and your family are in my prayers. I am a stay at home mom with 2 medically fragile children. Ramble all you want and need!

Prayers going up for you in Tennessee

 

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