Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, January 04, 2006



The End Is Not The End

Just received a phone call from mommy. Last night was a “difficult night” with throwing up, machines beeping, crabby girl(s?), poking nurses and who knows what else she didn’t say. She didn’t sound too rested. Rebekah, however, sounded rearing and ready to go. Wouldn’t that figure. I did get to talk with Rebekah on the phone and for the first time ever she put “bye bye” and “love you” together before she handed mommy back the phone.

Sitting here at the office while they are in the hospital is very difficult for me emotionally. On top of not being with them I am trying to get my office cleaned and organized and was looking for a photo album into which to put pictures that many of my families sent me over Christmas. I went to the house and looked for an “empty” with all of the family albums. Of course that started a trip down memory lane as I browsed all of them. It’s amazing “how long ago” the past seems and how fond I remember much of it but at the same time how unimportant it is compared to the here and now and the few precious moments we have with our children.

In my conversation with mommy she told me that the “post chemo scans” have been scheduled for the week of February 6th. This is really the first time since July that we will know whether all of this is doing any good. Actually we know it is doing good because Rebekah is still alive and there was a very large likelihood she would not be. We (or at least I) are/am scared to death about this. It’s almost like we are totally back at the beginning sitting on pins and needles wondering “What If…” I thought we would be excited to be done and now I am emotionally drained just thinking about it the last few minutes.

I hope the prayer requests are obvious.

14 Shared:

At Wednesday, January 04, 2006 1:49:00 PM, Blogger Alison Left a thought...

The prayer requests are obvious.

We now have one to ask of you as well. On taking Sam to preschool this morning we learned that one of his playmates, the son of one of his teachers, has been experiencing pain in his foot. During the holidays, he got up in the morning unable to walk on it. They took him to the hospital only to have him diagnosed with Leukemia. He is the same age as Rebekah. At this point the prognosis is good, although it is a two year and a half years course of treatment. One really never knows until the end how things will turn out.

We would covet your prayers as this newest little warrier is added to the too long list of sick kids. His name is Daniel.

 
At Wednesday, January 04, 2006 1:53:00 PM, Blogger Katie Left a thought...

and while the response of prayer for you might not feel so obvious, know that sweet Rebekah and your famliy are never far from my mind, heart, and are in my prayers

 
At Wednesday, January 04, 2006 9:09:00 PM, Blogger Darlene Left a thought...

You really need some prayers now. Not just for peace this time, but a bill of good health. I'm on it!

 
At Wednesday, January 04, 2006 9:34:00 PM, Anonymous Anonymous Left a thought...

Lifting you up in prayer as always that you will have peace about the upcoming chemo scans. That they will show all clean and clear of this terrible disease and that there will never ever be any return of it. You have shown such bravery through it all. I am so in awe of the three of you. This has to be the hardest of all things to live through for a family. God Bless and continue to be with you. Leanne from Pa.

 
At Wednesday, January 04, 2006 10:02:00 PM, Anonymous Teresa Left a thought...

Got caught up on your posts and glad things are well at your end of it (as can be anyways). STill here for you and still praying.

 
At Wednesday, January 04, 2006 10:35:00 PM, Blogger Lucy Stern Left a thought...

My thoughts are with you. I hope everything goes well and you get the news you want to hear! Good Luck.

 
At Thursday, January 05, 2006 5:03:00 AM, Blogger Jayleigh Left a thought...

Still praying for you continually, though I may not show up here every day. **hugs** for all of you and prayers for encouragement.

 
At Thursday, January 05, 2006 8:03:00 AM, Blogger Marla Bean Left a thought...

I received a new prayer/study journal a few months ago. Rebekah's name and your family is at the top of my prayer list. Next to your names, is a blank space for the date when my prayers are answered. I am looking forward to putting a date there soon! Thank you so much for the note.

 
At Thursday, January 05, 2006 8:59:00 AM, Blogger Dawn Left a thought...

I don't know you, but I pray for all of you at night and the first thing I do in the morning is check on you. I know and believe God answers our prayers. Sending you many well wishes and non-stop prayers!

 
At Thursday, January 05, 2006 9:16:00 AM, Anonymous Paul Laroche Left a thought...

Hi Rebekah and Family
Sending you many many prayers my friends.Big hugs to all

 
At Thursday, January 05, 2006 12:35:00 PM, Blogger Eva Left a thought...

Praying for miraulous new in February.

 
At Thursday, January 05, 2006 1:00:00 PM, Blogger mommyguilt Left a thought...

No need to ask. We always pray for you and your family. We hope to hear the news from you that all is well. Strength, healing, and continued health always!

Christina

 
At Thursday, January 05, 2006 4:59:00 PM, Blogger David Left a thought...

praying for you again as i write this

 
At Thursday, January 05, 2006 11:38:00 PM, Blogger Lora Left a thought...

You said it well, Scott, about how unimportant the past is compared to the here and now and how few the precious moments are that we have with our children. Never has the truth been spoken so eloquently. If we all would just live in the "here and now" and cherish it then we would know the treasures we have in our children. There is nothing more real than looking into their eyes and feeling what quentessential love truly is. They are perfect in their own way and a gift to us all, and what a gift for Rebekah to say "bye bye" and "love you" together. That is so beautiful and touching - it made me cry tears of joy! Rebekah is the epitome of unconditional love. the rarest of all. Please give Rebekah big big hugs from Griffin and me and a sweet kiss right on her forehead :) (That's what my mom used to do and it made me feel special)

 

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