Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, December 29, 2005



Lazy At Home Day Today

Today was a day to stay home and not do much. Grandma M came out this afternoon and stayed until both girls were in bed. That allowed Mom to do some dishes, laundry, reorganizing and actually cook dinner. Now, this evening, I've been sitting and relaxing and browsing several web sites catching up on some of the other cancer kids and learning about another one in our area who is just a little older than Rebekah. There are way too many kids with cancer! Each one has a touching story.

Rebekah has seemed to feel pretty well most of the day. She continues to sneeze and have a very runny nose. She has had way too many poopy diapers today and the diaper rash is a little worse today.

This evening, she wanted to go to bed about 6:30 pm, so we started getting her ready. It took about a half hour to get everything done (diaper change, into jammies, medications in her central line and into her stomach, good night hugs and kisses, etc...) and get her tucked in and ready to sleep. She slept just fine for about an hour and then was crying and half asleep. I gave her some pain medication, stopped her feeds and disconnected them.

A little while later she came out of her room asking for Grandma. We explained that Grandma had gone home. She wasn't happy about it, but accepted it. I told her that she could come sit next to me and snuggle and watch TV for a little while. So she did just that. It made me feel good. The last few days, Rebekah has wanted Daddy to do most things for her and was not happy when Mommy was doing anything. Today, while Grandma was here, she wanted Grandma to do everything for her. So, it was nice for her to want to sit next to Mommy and snuggle and rest her head on Mom.

7 Shared:

At Thursday, December 29, 2005 11:42:00 PM, Blogger Eva Left a thought...

That snuggle time is so important and precious. So glad you got some tonight.

 
At Friday, December 30, 2005 4:26:00 AM, Blogger Alison Left a thought...

So glad she felt up to snuggles. I love ending the day that way.

 
At Friday, December 30, 2005 9:31:00 AM, Anonymous Anonymous Left a thought...

Does ANYONE else see the irony in Mommy's posting? Calling it a lazy day and then saying:

"That allowed Mom to do some dishes, laundry, reorganizing and actually cook dinner"

MOMMY works her tukous off every day - there is no lazy!

-Daddy

 
At Friday, December 30, 2005 10:23:00 AM, Blogger Jeff H Left a thought...

Glad to hear Rebekah's doing OK.

Snuggling w/ Mommy is good. :-)

 
At Friday, December 30, 2005 2:43:00 PM, Blogger Dawn Left a thought...

Snuggling with mom is the best for any child at any age. So glad you got snuggle time in. After reading this makes me want to call mom....thanks for sharing! God Bless all of you!

 
At Friday, December 30, 2005 8:30:00 PM, Anonymous Teresa Left a thought...

God is good, He is good indeed. Glad for a calm in the midst of your storm.

 
At Friday, December 30, 2005 9:35:00 PM, Blogger Lora Left a thought...

So happy for you all that you got to have some respite from the storm and especially glad that you got some snuggles in. There's nothing that compares to snuggles. May you all have a beautiful, healthy, and happy new year. Griffin and I send our biggest hugs to Rebekah, Sarah, Frances and Scott. We love you all and I know that God's grace will continue to shine upon you :)

 

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