Lazy At Home Day Today

Today was a day to stay home and not do much. Grandma M came out this afternoon and stayed until both girls were in bed. That allowed Mom to do some dishes, laundry, reorganizing and actually cook dinner. Now, this evening, I've been sitting and relaxing and browsing several web sites catching up on some of the other cancer kids and learning about another one in our area who is just a little older than Rebekah. There are way too many kids with cancer! Each one has a touching story.

Rebekah has seemed to feel pretty well most of the day. She continues to sneeze and have a very runny nose. She has had way too many poopy diapers today and the diaper rash is a little worse today.

This evening, she wanted to go to bed about 6:30 pm, so we started getting her ready. It took about a half hour to get everything done (diaper change, into jammies, medications in her central line and into her stomach, good night hugs and kisses, etc...) and get her tucked in and ready to sleep. She slept just fine for about an hour and then was crying and half asleep. I gave her some pain medication, stopped her feeds and disconnected them.

A little while later she came out of her room asking for Grandma. We explained that Grandma had gone home. She wasn't happy about it, but accepted it. I told her that she could come sit next to me and snuggle and watch TV for a little while. So she did just that. It made me feel good. The last few days, Rebekah has wanted Daddy to do most things for her and was not happy when Mommy was doing anything. Today, while Grandma was here, she wanted Grandma to do everything for her. So, it was nice for her to want to sit next to Mommy and snuggle and rest her head on Mom.