Another Day

Rebekah's diaper rash is a little better today. Her temperature is still borderline, so we are keeping an eye on it. She's not sleeping real well at night, so I'm lucky if I get 4 hours straight to sleep. Makes me pretty tired.

She slept for a few minutes on the couch this afternoon and then a little later fought going down for a nap (however she really needed it and Mommy wouldn't let her up).

She continues to have a bit of a cough which irritates her and can make her want to throw up. She threw up a little after dinner, but has otherwise been tolerant of her food. I think her stomach was feeling too full and caused the upset. She continues to be upset when I give her bolus feeds and I hope that she begins to accept them without the struggle.

Friends Sandy and Maurice made us a very nice dinner which friends LaDonna and Royal dropped off along with a nice gift. It was a wonderful surprise. We are so thankful for wonderful friends like Sandy and Maurice and LaDonna and Royal. LaDonna stopped by earlier this week with gifts from her family and work.

Rebekah wants to be such an independent little girl. As an example, she wants to wipe her own nose after getting the tissue out of the box herself and then she wants to throw the tissue away all by herself. She is pretty frustrated that the kitchen cabinet with the trash can is locked (for safety reasons) and she can't get into it.

When Daddy was making himself lunch, she was pretty sure that he needed a fork and she was determined to get one for him. Daddy already had one and that got her upset.

Rebekah has been clumsy the last few days and gotten a number of bumps. We have a couple of gel freezer boo boo pals to put on the owies. They have become her friend. She constantly wants one for her boo boo. I almost think that she will make up an owie if that means that she could have the boo boo pal. They sit on her lap as much as they are actually on the boo boo.

Sarah has had a bit of a runny nose and cough the last few days. Not really what we want, but can't help it. She's been getting medicine for that.

We continue to pray that her appointment goes well tomorrow and that her counts are starting up, so that we can discontinue the daily shots. We'll have to see how her counts are doing to make decisions about Christmas celebrations.