Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, December 19, 2005



Monday - But A Good One

Today was Monday and like many Mondays it was hard to get started.  Note that it was not hard to get up – mommy was up from about 3:45am on.  Between the girls and just not  being able to sleep she was up.  However being up is not the same as getting started.  Once daddy got off to the office (20 feet away) and breakfast was made things kind of got started.

The girls did well playing together and were really excited about our visitors Jill and Dave Renton and their two boys Will and Patrick.  Will is a Leukemia survivor for a year now – AWESOME!  It was nice to be able to spend some social time just talking with someone who understands what you are going through.  It was nice to have social time period!  That was on top of a phone call that daddy received earlier in the day from someone who wanted our address so they could send us “a little something.”  In talked with them we found out they were a cancer survivor and had picked up one of Rebekah’s cards at her pancake breakfast and she had been on their mind for a while.  

After Sarah went to bed Rebekah was getting really cranky.  Mommy wanted her to go to bed and Rebekah was pretty sure she didn’t want to.  Daddy had a talk with her about being cranky, fussy, screaming and crying.  He talked with her about how those were signs of being tired and needing to go to bed and that if she wanted to stay up for a while longer she should sit up and act like a big girl stopping all of the tears and fits.  They INSTANTLY turned off and she became a beautiful little lady sitting on the couch and being very nice.  

Then mommy brought over her medicine including shots and she started to throw a fit until daddy reminded her about being a big girl.  She wasn’t happy about it but she went through like a trooper.  She didn’t even scream and cry over her shot and when given a choice as to whether mommy would hold her or she would bend over herself she laid right down and even tried to pull up her pant leg so daddy could give her a shot in her leg instead of her arm.  She then got up and went to bed nice and calm – at least relatively.  We were  so proud of her trying to be a big girl.

Unfortunately her temperature is starting up and her diaper rash is getting pretty bad.  Either of these things have the possibility of landing us back in the hospital at any moment.  Please pray that we remain home and safe and sound.  

9 Shared:

At Monday, December 19, 2005 10:52:00 PM, Anonymous Anonymous Left a thought...

Lord God, I hold up little Rebekah to you and I pray that you will take control of the rising temperature that she is having. Allow her to have a complete nights sleep, pain free and nausia free so that mommy, daddy, and Sarah will enjoy the rest that they need. Also clear up the diaper rash that has been a problem for so long. I ask these things in your name Lord, Amen

 
At Tuesday, December 20, 2005 12:07:00 AM, Blogger Eva Left a thought...

I'm so glad Rebekah did so well today. Praying for her to get better - rash, etc.

 
At Tuesday, December 20, 2005 12:13:00 AM, Blogger Lora Left a thought...

Way to go Rebekah for being such a big girl, everyone is so very proud of you! It's not easy being a big girl but you sure did it! I will pray that you are healthy, that your temperature lowers, and that your diaper rash goes away. You and your family are always in my thoughts and prayers. I wish for you to have good days, no, great days like you did today. That you smile,laugh, and have lots of fun no matter what you do. Frances and Scott you are such loving and kind individuals that your love for your girls is beyond compare. I want to thank you for your support, your prayers, and your compassion because it makes all the difference in the world to me and it gets me through the day just to read you your kind words. Take care and God Bless.

 
At Tuesday, December 20, 2005 2:02:00 AM, Anonymous T. Johnson Left a thought...

I just wanted to wish you and your family a very Merry Christmas and let you know that I check Rebekah's page daily and continue to keep her and your family in my prayer's. Tis the season for miracles, so keep the faith !

God bless,

Tammy and Family

 
At Tuesday, December 20, 2005 3:37:00 AM, Blogger Alison Left a thought...

~Will do~

 
At Tuesday, December 20, 2005 6:06:00 AM, Anonymous Teresa Left a thought...

Lord,give this family the gift of being home. Restore the natural flora of Rebekah's body with healthy bacteria and blood. Heal her bottom, covering her body with your healing power. By your grace and mercy fill them all with your peace, fill their home with the light of your love and may your joy give them a "merry heart that doeth good like a medicine" for them all. In Jesus name, amen.

 
At Tuesday, December 20, 2005 2:29:00 PM, Blogger Katie Left a thought...

prayers always, now specifically for this

 
At Tuesday, December 20, 2005 4:31:00 PM, Anonymous Anonymous Left a thought...

Wow, this is so neat, I will lift Rebekah up in my prayers from now on.

Rebekah Tarbutton

 
At Tuesday, December 20, 2005 9:26:00 PM, Anonymous toni Left a thought...

Dear Rebekah and fam-
I am so glad to hear that you are all back at home safe and sound! I am sorry that Rebekah's feaver is commin back and diaper rash (that can get ugly real quick) my daughter has one right now from not goin on the toilet shes quite stubborn. Anyhow,she is always in my thoughts and prayers as you all are as well. Take care and God bless. I hope we can get together after Christmas. Lets touch base after the new yr! :)

 

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