Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Saturday, January 07, 2006

A Busy Saturday

Rebekah woke up this morning and I heard her knocking on her door. Daddy, who was in the living room, panicked. He thought she was still connected to her nutrition and wasn't sure whether she was in trouble. I knew that I had disconnected her before I went to bed, so I wasn't too concerned.

I have been trying to get her daily nutrition in before I go to bed, so that she can be disconnected most of the night. Having her nutrition off at night does several things: get her to more of a normal food cycle (during the day and not at night), allow her to toss and turn during the night without fear of pulling out her g-tube "button", and less likely for her to throw up overnight.

Sarah has figured out how to wiggle herself out of her high chair. At breakfast, she wiggled out and was standing on her seat. We can't leave her alone for a minute! I snugged all of the straps up, again, and have been criss crossing the shoulder straps. We'll see if that helps keep our little escape artist in her seat.

Grandpa had a bookcase and cabinet that he was giving to us, so we decided to get out of the house and go get them. That meant cleaning out the van enough so that the furniture would fit and then loading in all the required diaper bags, medicine bags, etc... Not to mention, getting the girls dressed and ready to go. Rebekah seemed to enjoy going "bye bye". Once Rebekah could see Grandma and Grandpa's house, she started saying Grandma. Can't get anything past her.

The girls stayed in their seats in the van while we loaded the furniture (Dad and Grandpa did most of the work while I supervised). Both Grandma C and Grandpa were able to say "hi" to the girls. Grandma C brought out some sliced cheese which Sarah was eating up and Rebekah wanted some of, but never really ate. Sarah was eating so much that Grandma went back in and cut up some more for us and brought some crackers. We snacked on that all the way home.

Once home, the girls settled down for naps and Mom and Dad worked on getting the furniture in and situated. It is not all situated, yet, but good progress has been made. Mom was able to get some of the boxes of books unpacked and back onto the shelves. They have been in boxes since late October when we prepared to get the new carpet and hadn't been put away because we didn't have a "final" place for them. We didn't want to unpack them only to have to pack them up again to unpack them later.

It always feels good to get some things accomplished. It sure helps with the attitude. I'm feeling better today, not quite as frustrated, and I'm sure that is in part due to getting out of the house (as well as the girls getting out of the house and a change of scenery) and also getting things accomplished. I was up late last night (or should I say this morning) getting to some of the things that I haven't been able to get to for quite some time. That felt good, too, and I actually wasn't feeling "too" tired today. Tomorrow may be another story...

There are so many cancer kids on our hearts and minds - Oliver, Josh, Kennedy, Madeleine and Nikolette (and their families) are all going through some pretty tough times right now. Please keep them in your prayers as well as Rebekah, Gage, Warren and Kaitlin.

3 Shared:

At Saturday, January 07, 2006 11:55:00 PM, Blogger Eva Left a thought...

I'm glad to hear that today seems to have gone better than yesterday.

At Sunday, January 08, 2006 4:31:00 AM, Blogger Alison Left a thought...

Today sounds great!!!!

At Sunday, January 08, 2006 10:12:00 PM, Blogger Lora Left a thought...

Glad to hear that you got some things accomplished. Sounds like it was a good day all in all. I'm so happy for you that things were easy going. Always thinking of you.

Lora & Griffin


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