Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Photo Update at www.HelpRebekah.com
www.HelpRebekah.com has now been updated to include photos of the pancake breakfast! Check out the Photo and Video Album link down the left side.
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Great shots!
Thanks so much for posting the photos. Brings a smile to my face. Always praying for you.
I found your site from Chris ~ A Mother's story's site. I have just begun to read the diary of Rebekah's journey. She is a tough little girl and has a tough family taking care of her. I will pray for all of you and be back to check in.
Thank you so much for sharing your pictures. What a beautiful little girl you have there and a darling family.
I pray your evening is a peaceful one and everyone is able to get a good nights sleep.
Hugs & warm thoughts,
~Molly~
I'm sure you've already seen this but I wanted to share it:
Welcome to Holland
(aka The Beauty of Holland)
by Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby, it's like planning a fabulous vacation trip to Italy. You buy a bunch of guidebooks and make your wonderful vacation plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very, very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The flight attendant comes in and say "Welcome to Holland".
"Holland?!?", you say. "What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
"But there's been a change in the flight plan. They landed in Holland and there you must stay."
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine, and disease. It's just a different place.
So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you never would have met.
It's just a different place. It's slower-paces that Italy, less flashy than Italy. But after you've been there for awhile and you catch your breath, you look around, and you begin to notice that Holland has windmills. Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Itlay, and they're all bragging about what a wonderful time they had there. And for the rest of
Your life, you will say, "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever go away, because the loss of that dream is a very significant loss. But if you spend your life mourning the fact that you did'nt get to Italy, you may never be free to enjoy the very special, the very lovely things about Holland.
My thoughts and prayers are with you.
It is so wonderful to read so much love and care being poured out on your family and I pray it continues to do so. God is so great and merciful to you and to so many as we all continue to pray and thank Him for everything.
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