We're Home - Busy Weekend

We are home. We were discharged Saturday about 11 am, the earliest I think we have ever been discharged. Rebekah had a pretty rough night Friday night. She was up and throwing up twice during the night. Her nurse thanked me for giving him something to do. Glad he "enjoyed" it.

We now have new carpet in the playroom, living room and hall. Yeah! Thanks so much to Bob and Becky for getting it done for us. With the carpet, the playroom is now usable and the girls have been enjoying it. It still needs some trim and things like that, but having the carpet done is fabulous.

Grandma M, Mom's Aunt and Uncle and cousins came to help us get things back in order after the carpet installation and just getting home from the hospital. All the gates had come down and the furniture and stuff moved, filling the bedrooms and dining room. The house is in better shape, but there is still A LOT to do to get it cleaned up. Mommy is a little overwhelmed with how much.

Saturday evening, the power went out and stayed out for about 2 and a half hours. Daddy got the generator (on the trailer) going so we could have a light and the tv working. Everything else was done by candle or flashlight or battery.

Rebekah went to bed the first time about 7 pm, but it didn't last too long and she wanted back up. She watched tv with us for a little while and drank about 8 ounces of water one syringe at a time. Then, again about 9 pm she went to bed for good. At about 1 am, she was screaming, so mom checked on her and gave her some benadryl and zofran (anti-nausea) medications, changed her diaper (and the fitted sheet on her bed) and turned her lullabies back on.

At about 2 am, while Mommy was laying still awake she realized that we had not given Rebekah her shot. Uugh! So she got it ready and gave it to Rebekah. That woke her up and it took a little bit to get her back to sleep.

Then at about 5 am, Rebekah's food pump started making noise (very loud alarm). It had run out of food. Mommy was too tired to "fix" it and turned it off. Daddy offered to help get it back running, so with his help we got it going again.

We all got up this morning and headed over to the Pancake Breakfast held in Rebekah's honor. Rebekah had a lot of energy and was walking around, playing with some of the kids who were there and just brightening the day of those she saw. The breakfast was a great success. A Big Thank You to Angela for taking this on as a High School Service Project and to Joe for helping her out as well. Thanks, too, to all the volunteers who were there to help. We were able to stay for almost 4 hours before both Rebekah and Sarah started getting tired, so Mom took the girls home while Daddy stayed.

While at the breakfast, we met a young woman who is a Ewing's Sarcoma survivor. Her husband "surprised" her with the breakfast. She had never met another Ewing's Sarcoma patient. She was a teenager when she was diagnosed and has survived many years. She has had her issues, but glad to be alive.

Once home, both girls went to sleep and Mommy was able to get a little bit of a nap. That was good, but Mommy is still pretty tired.

Rebekah continues to have diarrhea, a nasty diaper rash which is getting a little better, not tolerating her food very well (we are having to dilute it which may be part of the diarrhea issues). Her spirits are up, though, which is great to see.