Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, November 01, 2005



An Emotionally Exhausting Day

It has truly been an exhausting day in so many ways. Maggie May's service being a big part of that with all the emotions, thoughts, concerns, prayers that go along with it. I (Mommy) am just emotionally and physically drained tonight.

Rebekah has been very insistent that she wanted to go bye bye from her room much of the day, either in a stroller or wagon and for the most part we have obliged her in that. She has gotten very upset any time that she was brought back into her room. Tonight, she was very agitated when we came back to the room. She needed a diaper change and some medications (including Benadryl and Tylenol) as well as a complete set of vitals. She was clearly unhappy - screaming and arching her back and throwing a pretty good temper tantrum. It was clear to Mommy that she a big part of the grumpies was that she was tired, so Mommy put her into bed (despite her objections). She wanted cold water and she wanted to do it herself, so Grandma M went to get ice "in a bowl" for Rebekah (so that Rebekah could put the ice into her cup). By the time Grandma M got back, Rebekah was asleep.

She has been entertained by many today - Brandy, Karen and Ian, Speech Therapy, Physical Therapy, Occupational Therapy, Art Therapy (that is new to her and she seemed to enjoy it), Music Rx (who brought in a keyboard for her to play and checked it out to her so she can continue to play with it), Josh and his parents, Grandma C (who stopped by for a little while this morning) and Grandma M (who stopped by after work). There may have been more, but that is all that I can think of right now.

My mind is working overtime today. Thinking of Rebekah, of Maggie and her family and all of her care-givers and friends and those who hold Maggie dear, of Josh and his family, of Gage and Oliver and Kennedy and all the other kids that we have come to know throughout this process.

And then, there is a new family - another little girl, just diagnosed this week with leukemia. They sure need prayer. For them, it has been a whirlwind few days and it is still new, raw, scary, tearful, etc... There are so many emotions that go along with a cancer diagnosis and perhaps more when it is a child who has been diagnosed.

Thank you so much for your continued prayers and support - it keeps us going.

2 Shared:

At Wednesday, November 02, 2005 3:03:00 AM, Blogger Alison Left a thought...

I find it encouraging that Rebekah is putting up these fights....it makes her like any other three year old.

I'm sorry you found it such a hard day. I'll be praying that you are able to rest today and that the angel herself isn't quite so tired and cranky.

 
At Wednesday, November 02, 2005 3:28:00 AM, Anonymous Anonymous Left a thought...

still praying here, and please tell the new family they are in our prayers here in missouri!
preaying for a restful day ;D
huggs to all
MO

 

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