Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, October 31, 2005



Starting All Over Again

We are here – but aren’t we always.  Here, for those who might have just come across this Blog, is Emanuel Hospital, Portland, Oregon.  Yesterday we finally got out of the house which took a bit more than usual since there is a chance that carpet might be installed in the new playroom and living room this week so we had to have all the furniture and everything else moved – lots of work!

We dropped the trailer off at the hospital and then drove up to Debbie’s to drop Sarah off for the week.  Even though we have known her for quite a while, we have never been to Debbie’s house before. It is BEAUTIFUL – no wonder Sarah never wants to come home.

We got back to the trailer last night and started setting things up.  That’s when daddy asked “Where are my files?”  Since the trailer is only 150 sq feet or so it did not take too long to figure out we left them in the office.  UGH!  Daddy made a late night trip back to the office and mommy continued getting the trailer set up, the beds made and Rebekah off to sleep.

Rebekah did not sleep real well in this newer, noisier environment.  Every time we heard an ambulance or a train or … she kept trying to tell us what she heard.  The first couple of times she heard it I thought she was asking for her sister, “chi chi” but then realized it was in conjunction with a train from the train yards about a mile away – “choo choo”.  Phonetics.  Then an ambulance or fire truck – “uh oh” and on the night went.  

About 1:30am the wind was so bad that it was shaking the trailer and flapping the awning so much that I had to go put the awning back down.  Then, about 3:00am Rebekah started throwing up.  I don’t think I have seen her throw up that much stuff in a long time.  There is now a completely full trash bag of rags, clothing and bedding.  Now, back to the 150 sq feet…  Daddy was not doing too much better than Rebekah as daddy has an overly sensitive nose and can handle just about any bodily fluid except throw up.  

We obviously did not get a lot of sleep but it was all worth it this morning when we were listening to the radio and traffic reports which were reporting “stop and go” traffic for just about our entire commute had we been trying to get here at 9:00am from home this morning.

Every day is an adventure and every hospital week even more so.  Please lift us up in prayer such that there not be too much excitement this week.

4 Shared:

At Monday, October 31, 2005 9:30:00 AM, Blogger Katie Left a thought...

Praying for an uneventful course of treatment and lots of moments of peace and rest for all of you.

 
At Monday, October 31, 2005 10:24:00 AM, Anonymous Anonymous Left a thought...

I will pray you guys will have a very very boring week ahead, maybe mom can fall asleep from boredom. Caron happy halloween!

 
At Monday, October 31, 2005 11:18:00 AM, Anonymous Anonymous Left a thought...

me praying too, for a dull week!
love ya ;-D
huggs from missouri

 
At Monday, October 31, 2005 8:29:00 PM, Blogger Queen on the run Left a thought...

I am still giggling over the uh oh!!! So cute!

Prayers are forth coming!!:) (((hugs))) for all of you!

 

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