Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, October 26, 2005



Some Improvement, A Milestone

Rebekah is actually eating a little bit. She ate a few bites of cheerios and apple jacks this morning, a little cheese, some veggie crackers and a couple little ravioli this afternoon, some cheese and a bite of apple this evening. It was only a few bites here and a few bites there, but she was requesting it and she was eating the bites. It is improvement!

In addition, she continues to want water in a syringe and she wants to make sure it is cold. It may be a slow way to get fluids in, but she is taking that by mouth. We want to encourage oral intake in whatever manner we can get. She wants most of her medications in her mouth, too. And she wants to do it. Give her the syringe and she will take care of it. She is actually doing a really good job of getting it all down (and not making a mess).

As far as medications, she is getting some Benadryl to help her breathe (especially while she’s trying to sleep) and occasionally some Morphine. She is complaining periodically that her mouth hurts. She also continues to get her antibiotics through her central line at 2am, 8am, 2pm and 8pm. Those will continue until Sunday – just in time to go back into the hospital. No rest for Mommy.

We are always encouraged by the hits on Rebekah’s Page. Today, we hit a new milestone: 25,000 visitors since May 1st. That is exciting! Please keep checking in on us, praying for us, commenting and supporting us through this process. It is always an encouragement.

Her temperature continues to be a little higher than her normal, but has been staying below "fever". Thanks for the prayers.

With her counts up, she seems to be healing at least some and feeling a bit better. She has times that she is all smiles and playing and enjoying herself. She has been sleeping more than normal, however, so I think she still is not feeling great. As her treatments continue, each round of chemo will knock her down more quickly and she’ll stay down longer. That means that she may not have as many good days between treatments. We seem to be seeing some of that.

We delight in seeing little improvements – like eating and drinking from a syringe and seeing smiles on her face. It is a cycle - chemo knocks her down and the shots help to bring her counts back up and help her feel better and then it is time for the next round of chemo. Each week brings us closer to the "End of Treatment" – that is the end of chemo (we hope) – in February.

9 Shared:

At Thursday, October 27, 2005 3:34:00 AM, Anonymous Anonymous Left a thought...

Thank God for little things,
this is good to hear ;-D
thanks for the update,
still praying
huggss from Missouri

 
At Thursday, October 27, 2005 7:02:00 AM, Anonymous Anonymous Left a thought...

God, that you would continue to bless this family,as well as encouraging them,protecting them and healing them. Thank you.

 
At Thursday, October 27, 2005 8:31:00 AM, Anonymous Anonymous Left a thought...

Awesome!!! Still praying. Caron

 
At Thursday, October 27, 2005 10:18:00 AM, Blogger Deb Left a thought...

It's great to hear of the increase in Rebekah's appetite --and the show of independence with the syringe! (Olivia prefers to give herself her "pop drops" too - when she has to take them --don't dare let Mom or Dad hold the syringe - she has to do it all by herself!)

Last evening, on the way home from church, Olivia told me the story she learned --how "Jesus spit in the dirt and rubbed mud on the blind man's eyes and it hurt but then he washed his eyes and guess what? he could see! Jesus made his eyes all better!" I said, "yes, isn't it wonderful when Jesus makes someone all better?" She replied, "Jesus is going to put mud in Rebekah's eyes and make her all better." I told her that Jesus uses all different ways to heal people and maybe He wouldn't put mud in Rebekah's eyes but He would think of another way. She said, "yeah, He'll just give her pop drops and that will make her all better."

....out of the mouths of babes....
Still praying here in PA!
Deb

 
At Thursday, October 27, 2005 11:34:00 AM, Blogger Katie Left a thought...

How wonderful to hear of improvement and hope of more good things to come.

 
At Thursday, October 27, 2005 12:56:00 PM, Blogger amelia Left a thought...

Praise God for the little blessings that are so big! Just wanted to let you know that I'm out here reading and praying every day even though I don't always comment!

 
At Thursday, October 27, 2005 2:50:00 PM, Blogger Sunshine Left a thought...

Prayers for your family right now.

 
At Thursday, October 27, 2005 6:34:00 PM, Blogger Valerie Left a thought...

I'm sorry that I haven't commented for awhile, and my visits have been fewer, but I still think about all of you frequently and keep you close in prayer. I know how exhausted all of you must be, so I pray for strength and rest for all of you.

 
At Friday, October 28, 2005 3:55:00 PM, Blogger Queen on the run Left a thought...

GOD please bring February in a seeming blur for Rebekah...

Prayers as always. and much love to boot!

 

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