One of those days...
Warning – not exactly a “Rebekah” update.
Did you ever have one of those days? Daddy did today. On top of not being able to do anything to “Fix” your little girl and having to just sit there and watch her hurt and be sick, everything seemed to go wrong today. Work stuff didn’t go like it was supposed to and some people didn’t get their documents (because I didn’t get them). Then other appointments didn’t come through like scheduled. I don’t think that people realize that when you can’t do something on your own, and someone tells you they will do something/get something, that you really count on that and it hurts when they let you down. Finally, friends and family both call and ask “what’s going on” because “we don’t have time to read the blog…” Did it ever occur to anyone that we do the blog so we don’t have to answer that question 10x a day. Our normally “thick” skin to stuff gets really thin when all of this emotionally stuff is thrown on us.
Finally, I tried to do something really nice for Rebekah and it totally backfired. Rebekah has been asking for Dora and this morning said she wanted to see Veggie Tales. I talked with the trustee of her trust (www.HelpRebekah.com) and she agreed that, although it is not a medical bill, the trust can buy a small DVD player for Rebekah to watch stuff in the hospital. I went to Costco and got her one and got back and showed it to her. She was excited and pointed to the TV on the wall where she wanted to see it – and sure enough it would not work. The video output is broken – sound but no video. Brought it back to the trailer and the same thing here. It’s really tough seeing her disappointment and this was just the cap to the end of a bad day.
I'm sorry if any of you take personal offense at something you see here - it was not meant at anyone personally and I'm trying really hard to generally vent here and not to jump down someone's throat directly. I'm sorry to the rest of you for making you hear about daddy's emotional stuff but this blog is about the family too. Thanks for “listening.”
Share a thought or prayer: 11 Comments
11 Shared:
I can even allow you guys to call and complain if you'd like. count to 10, go outside and take a walk. look up at the blue sky and feel the warmth on your face. It's not much, but its what God gave us. Tough days are hard, especially when you have to sit there and endure while waiting patiently for God to work it out. I'll be praying for all of you. Caron
Dear Daddy, I'm truly sorry that this is happing to you,and your family, and to day wasn't agood day, and if you want to vent, vent , I can't even think if I could do what you 2 are having too do,
god is with you, please hold on,
praying for you
(((((()))) from missouri
Dear friend, I feel for you so much. As you, I too wish I could make everything all better for you all. I am glad you are able to vent and share of yourself. I can not walk a mile in your shoes and can not even imagine what you are going through, but I can be here to listen, to pray, a shoulder to cry on and to be your friend and extended family in Christ Jesus. Interceding for each of you--Scott,Frances,Sarah and Rebekah--to the throne of the Father. Blessings.
I'm sure that, like me, others who are thinking about Rebekah daily are in awe at all that you both do and at how well you seem to handle this situation your family has been thrown into. Vent all you want -- you deserve to!
Sending special thoughts tonight -- Debbie
Please don't dare apologize for venting to the world! All you're going through is enough to make anyone just want to scream, cry and curl up in bed with the covers over their head. Being able to function day in and day out for the both of you is a miracle!!!
I agree about the reason you have your blog. It's a way to update friends and family without having to make the gazillion phone calls to update every second something new happens. Thank God for your blog!!
I will keep you all in my prayers.
Feel free to say what you need to say. No matter what that is. This is the exact space to do just that. Vent and fume and fuss, and laugh and cry and scream and ask for help and prayers and hugs and tears of understanding from your fellow human beings.
GOD has carried you today, as surely as he stands beside you everyday. God bless and keep you.
What are you kidding? I can't believe it took this long. I can't imagine the stress you all must be going through. Vent, yell, scream all you want. People must understand and those who don't, well, they will get over it. You just do what you have to do to be there for your little girl. She is really all that matters.
It must be hard to be away from Sarah too. Keep up your strength and positive attitude. I really think that your whole family is amazing! We all have a lot to learn from you.
Oops, tried to post this earlier, but it did not show up.
Daddy, you and Mommy vent all you want and don't worry about offending anyone - if they don't understand or if they get their feelings hurt - that is their problem - not yours. People are like volcanoes - things can only build up so long before some of the pressure has to be released. Days like this are absolutely necessary to function. They will also help you to appreciate the better days even more. Rebekah knows that she is loved and that you all would do anything in this world to make her life go better. Knowing that you cannot "fix" everything is probably as frustrating to her as it is to you. There are days that Rebekah needs to release some of her pressure too. As long as everyone is not releasing their pressure at the exact same time, then all is okay. We will keep praying for strength for all of you and that God will continue to wrap his loving arms around you. Know that you are loved and prayed for daily. Also know that there are many of us out here venting at cancer also - that is the true enemy here. If enough people hate it with a vengence - then maybe that will drive us toward a cure faster. We love you all bunches.
Some of us, or maybe just me needs you guys to come out and say. Hey, I need some type of help today. I will drop what I've got going to try and fill that request. I wish that Francis could have been there last night. I had such a blast as did Kari. It's been a really long time since I went out which was fun, but when you're amongst loved ones there is no comparison and that was the highlight of my week. If the house needs to be cleaned call or email me this morning cause this would be the time I have for that. caron
vent more and vent often. you've earned it! is there a way "someone" could send you a gift certificate to a store (so that the funds don't go into the medical trust) so you could get a dvd player or other items (maybe a restaurant GC) so your lives can be easier?
It's your blog, it's your life, and we're not here for just the "sunny" days and the "easy" times. Even though many of us can't be there to help, know that you are in the minds, hearts, and prayers of many and ANYTHING is worthy of sharing with us.
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