Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Friday, October 21, 2005



Seems to be Doing Better

Things are looking at least a little better. Her White Blood Count was 300 today which is up, still not real great but we'll take any improvement. Please continue to pray for higher White Blood Counts.

The diarrhea seems to have subsided. I haven't seen the one diarrhea diaper after another after another this morning like I have at least the last two days. It is possible that she eliminated (in her diaper) all of the icky bacteria. And I'm sure the antibiotics are helping, too!

Her temperature has been down and no longer borderline for fever.

When doc was in today, he was talking about having his staff make sure that our Home Health company would be ready if we are discharged on Sunday to bring out antibiotics for us, so that we wouldn't have to stay until Monday just because we couldn't get Home Health antibiotics. So it sounds like Sunday might happen. At least today the estimated departure date didn't get put out farther...

Since our insurance changed the beginning of this month, we had to change Home Health companies. The old company finally got paperwork switched to the new company late last week and we haven't had a chance to get supplies and equipment from the new company, yet. They were planning to deliver supplies to us Wednesday of this week, but we weren't home. We still have equipment from the old company, however they were pushing to pick it up this week because the new company has to be ready as soon as we are discharged. I had to explain to them that there was no way for them to do that because I didn't have all the equipment with me and there wasn't anyone where the equipment is. Uugh! Just one more of the frustrations that we have to deal with in this whole ordeal.

Mom and Dad got a chance to eat some homemade spaghetti last night (thanks Wyla) while Uncle Chuck sat with Rebekah. We also were able to see Sarah at the same time. It was good to see her and she seems to be doing well. Unfortunately we couldn't take her in to see Rebekah. We would not have been able to let Sarah down or let Sarah and Rebekah touch for fear of Sarah getting the bacteria that has caused Rebekah so much trouble. We felt it would be worse for Rebekah to see her from a distance and not be able to hug on her than it would be for Rebekah to not see her sister at all. It was a hard decision, but I think the right choice - as much as we hated to keep them apart.

2 Shared:

At Friday, October 21, 2005 2:11:00 PM, Anonymous Anonymous Left a thought...

Thank God for the answers to our prayers! I just give Him praise for hearing the prayers and for the improvement you have seen already. I am sure it was a hard decision not to let her see Sarah, but it was for the best. Just will make the reunion that much happier when they are together again. Still praying ...
Dawn

 
At Friday, October 21, 2005 2:46:00 PM, Anonymous Anonymous Left a thought...

I am so glad to hear that lil' Rebekah is doing better. I am praying that she will be able to return to the comforts of her own home soon and that mommy and daddy are able to get some well deserved rest. You are ALWAYS on my mind, in my heart and in my prayers. Katrina

 

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