Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, October 19, 2005



Not Much Better

Rebekah hasn't really improved all that much. Her temperature is hovering just under the fever line (38.5 C) between 38.1 C and 38.3 C. It has been hovering there since about 4 pm yesterday. Her white blood count is still nothing - it hasn't changed since Monday. I wouldn't expect it to go up until later this week under normal circumstances, so who knows what will happen with her fever and current situation. Her platelets are down to 22. I think 20 is the mark where they would give platelets. With it being close, they may want to go ahead and give her platelets anyway. We will have to wait and see what doc says when he comes in.

I don't expect that we will be going home today and it just has to be taken day by day. Her counts are still in the dumps, fever is borderline, she continues to throw up and have diarrhea. She does seem to be doing a little better with the vomiting now that she has the ativan, but she is sleeping more too. Last night she wasn't up every hour and there was one stretch when Mom got about 3 hours straight to sleep. It is really sad that 3 hours of sleep is worth rejoicing over, but nonetheless it is an improvement.

Already this morning, she has had Speech Therapy and Physical Therapy in. Actually, they worked with her together. Rebekah had been looking tired before they came in, but perked up so that she could play. She was pretty tuckered out at the end of it and is sleeping now. It was clear to the Physical Therapist Amy (who has worked with her before) that she wasn't feeling too well.

Update: Rebekah coughed in her sleep which woke her up. She screamed, wanted some attention from Mommy and did not throw up. She is laying back down and thinking about going back to sleep.

It is a big waiting game. We never know what is going to happen. Neither Scott nor I want to rush home. We are here and until there is some improvement it doesn't make sense to us to head home only to expect to have to come back.

1 Shared:

At Wednesday, October 19, 2005 10:43:00 AM, Anonymous Anonymous Left a thought...

I'm still here praying for you guys. Caron

 

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