Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
____________________________________

Sunday, October 16, 2005



Busy Weekend

We've had a very busy weekend. We've been at home and had many visitors and been working on getting many things done around the house. Saturday Grandma M came out with Brad and Dinah, and Steve and Pat stopped by for awhile too. Sunday, Grandpa came out and then Connie, Angelica and Melysa came out. Grandma A was supposed to come as well, but she wasn't feeling well and didn't want to give Rebekah anything. Thanks to everyone for your help! It feels like a lot was accomplished this weekend and it wouldn't have happened without you.

Rebekah seemed to enjoy having the company. She was playing games with different people and laughing and just having a good time. Several people commented that "it was good to see her like this". I agree!

Yesterday, we continued to try bolus feeds and she tolerated them ok until the afternoon. After getting a feeding, she coughed and then threw up. Uugh! Now she really doesn't want the bolus feeds. Meanwhile, she really didn't want to be hooked up, either. I guess tonight she'll have to have food going all night long at a pretty high rate to make up for the day. Oh well! Now let's hope and pray that she keeps it down.

She continues to wake up at least periodically during the night, although it has been getting better. Last night, I think it was only once and she went to bed without complaining every 15 minutes (like she had been doing).

Tomorrow (Monday) is a clinic day. Hopefully her counts will be ok and she won't need any transfusions. I'm not convinced that will be the case. She's bruising a little, so her platelets may be a little low. Her energy seems to be up, so it doesn't seem that she would need red blood.

3 Shared:

At Monday, October 17, 2005 12:13:00 AM, Blogger steve Left a thought...

i hope that this week is good for you guys. Praying for y'all

 
At Monday, October 17, 2005 4:52:00 AM, Blogger Ileana Left a thought...

My prayers are still with you. I continue to think about Rebekah and asking God to heal and comfort her, that she can know peace and joy as a way of life. I pray that God strenthens you, the parents, and gives you the same peace and joy. In Jesus name I pray, Amen.

 
At Monday, October 17, 2005 10:08:00 AM, Blogger Katie Left a thought...

Praying that clinic goes(went) well and rest and healing continue.

 

Post a Comment


Thank you from Rebekah...

Back to Rebekahs home page...