Busy Weekend
We've had a very busy weekend. We've been at home and had many visitors and been working on getting many things done around the house. Saturday Grandma M came out with Brad and Dinah, and Steve and Pat stopped by for awhile too. Sunday, Grandpa came out and then Connie, Angelica and Melysa came out. Grandma A was supposed to come as well, but she wasn't feeling well and didn't want to give Rebekah anything. Thanks to everyone for your help! It feels like a lot was accomplished this weekend and it wouldn't have happened without you.
Rebekah seemed to enjoy having the company. She was playing games with different people and laughing and just having a good time. Several people commented that "it was good to see her like this". I agree!
Yesterday, we continued to try bolus feeds and she tolerated them ok until the afternoon. After getting a feeding, she coughed and then threw up. Uugh! Now she really doesn't want the bolus feeds. Meanwhile, she really didn't want to be hooked up, either. I guess tonight she'll have to have food going all night long at a pretty high rate to make up for the day. Oh well! Now let's hope and pray that she keeps it down.
She continues to wake up at least periodically during the night, although it has been getting better. Last night, I think it was only once and she went to bed without complaining every 15 minutes (like she had been doing).
Tomorrow (Monday) is a clinic day. Hopefully her counts will be ok and she won't need any transfusions. I'm not convinced that will be the case. She's bruising a little, so her platelets may be a little low. Her energy seems to be up, so it doesn't seem that she would need red blood.
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i hope that this week is good for you guys. Praying for y'all
My prayers are still with you. I continue to think about Rebekah and asking God to heal and comfort her, that she can know peace and joy as a way of life. I pray that God strenthens you, the parents, and gives you the same peace and joy. In Jesus name I pray, Amen.
Praying that clinic goes(went) well and rest and healing continue.
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Thank you from Rebekah...
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