Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Friday, October 07, 2005



A Mostly "NORMAL" Day

It has been a mostly normal day. Aside from the medications, tubes, IV Pole, etc..., Rebekah has been acting like a 3 year old. We have cut way back on the medications, eliminating the anti-nausea medications and we are down to pain medication (as needed) and anti-anxiety medication (which may go away tomorrow). We need to be working on oral care, but haven't tackled that one in earnest.

Rebekah ate several bites of mom's oatmeal this morning, lots of ice chips throughout the day, some eggs and bacon for dinner and is currently sitting in her sister's high chair and eating ice cream. Gotta love a girl who loves ice cream! I think cold feels good on her mouth.

The sore on her lip is just about gone and the drooling has diminished greatly. Her shirt is all wet down the front, but most of that is from the ice chips. I think the pain in her mouth is mostly gone. She still has a bit of a cough, but the coughs are not followed by the screaming fits.

Sarah and Rebekah have been playing together. Sarah steals Rebekah's sock off her feet and then runs away with them, while Rebekah chases after her. Rebekah says she wants a blankie and Sarah goes and gets one and brings it close to Rebekah, but not close enough for Rebekah to get it. "Ha Ha", I can hear Sarah saying... Rebekah is trying to help show Sarah how to sign more. Well, I think you get the picture.

We have found someone to watch Sarah for us next week while we are in the hospital - thanks, Brandy! We're working on all the details of getting ready to go. There is always much to do and many things to coordinate. At least this will be a short stay, so we won't be gone too many days.

6 Shared:

At Friday, October 07, 2005 7:58:00 PM, Anonymous Anonymous Left a thought...

Thanking God for the day, and for more of the same. and even better days to come!
praying for you all
huggs from Missouri

 
At Saturday, October 08, 2005 10:19:00 AM, Anonymous Anonymous Left a thought...

I continue being blessed as you are blessed. I pray for God to continue to heal Rebekah's mouth and face. I pray for direction from the Holy Spirit, that the drugs will only seek out and destroy the sickness in her body and that Jesus will heal and protect healthy bone,cells and tissue. Thank you Lord.

 
At Saturday, October 08, 2005 2:38:00 PM, Anonymous Anonymous Left a thought...

Amen - in agreement with that prayer!

 
At Saturday, October 08, 2005 3:56:00 PM, Blogger Valerie Left a thought...

How wonderful it is to read about her mostly "normal" day! It warms my heart. I'll keep you in my prayers next week when you're back at the hospital. . .

 
At Saturday, October 08, 2005 6:16:00 PM, Blogger Queen on the run Left a thought...

It is so good to read things like she is eating icecream! And playing with Sarah, How wonderful:) I pray that everything continues to go well and that her angel of healing keeps up the great work!

 
At Monday, October 10, 2005 2:05:00 PM, Blogger Jenny Left a thought...

Normal is so precious!

 

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