Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, October 01, 2005



Generally a Good Day

For the most part, it has been a good day. Last night started out pretty rough. Sarah woke up screaming and couldn't be consoled. She appears to be teething and seemed to have gas. Mom gave her medications for both. She still wouldn't settle down, even in mom's arms. So mom laid her down and let her fuss for a little while. It's never easy to do, but sometimes necessary. Rebekah didn't sleep real well. She woke up screaming several times.

Her throat is sore and every time she coughs, she is in pain. I set up a humidifier in her room hoping that it will help with her throat. Her mouth is sore and she's drooling.

Friends Connie, Melysa and Angelica spent several hours with us today. Rebekah really seemed to enjoy having them here. She wanted them to read to her and showed them her new room, of course. She was up and playing around and not complaining, unless mom told her no about something - can you say 3 year old. It was good to see her being herself. Melysa had several bracelets and Rebekah wanted to wear them. She was definitely expressing her desires. Gotta love those times! Thanks Ladies for your help.

A little later, Rebekah was sitting at her desk (which is in the living room and has her books on it) looking at some books and wanted Sarah to sit with her. The two of them sat on her chair at her desk. Sarah's nose was just about even with the desk, but they sat together for several minutes. Sisterly love shines through.

As Rebekah rested throughout the day, she would wake up periodically very upset. At least some (if not all) of the times were following coughing. It just breaks my heart. I wish I could "fix" it for her and make her all better.

She's been keeping her food down and getting more than her RDA, so that is a good thing. We may try to wean her from some of the anti-nausea medications and see how she does. Step by step... Hopefully we'll start to see some improvement in her weight. So far, she's been fluctuating but "holding her own".

8 Shared:

At Sunday, October 02, 2005 12:09:00 AM, Anonymous Anonymous Left a thought...

Thank God for good days like that,
still in pray ;-D
huggs from missouri

 
At Sunday, October 02, 2005 3:37:00 AM, Blogger Alison Left a thought...

Yay for a good day!

 
At Sunday, October 02, 2005 8:31:00 AM, Blogger erinannie Left a thought...

I've been following your family's progress for several months now. And each day I wonder if Rebekah's condition is related to the little known illness Ataxia Telangiectasia? I was involved with the A-T Children's project many years ago, and everything I have read about Rebekah sounds so familiar. I am sure you have wonderful doctors, but since A-T is so rare, I just wanted to pass along its website to you. http://www.atcp.org/index.html Everything from the cancer to the cerebral palsy is so indicative of A-T, I can't help but wonder. God bless you and give you strength!

 
At Sunday, October 02, 2005 8:51:00 AM, Anonymous Anonymous Left a thought...

Good morning! God is Good! He is so good. Amen! I pray for the Holy Spirit to specifically touch Rebekah's throat today. Reduce the swelling,heal the sores and restore unhealthy to healthy tissue in her mouth and throat. In Jesus name. AMEN.

 
At Sunday, October 02, 2005 11:40:00 AM, Anonymous Anonymous Left a thought...

we had a yard sale this weekend which raised $380.00 for Rebekah's trust fund. More importantly, even more people are praying for her and asked for posters to hopely raise money for the fund. Our love and prayers your way and our hopes for more good days. Brad, Dinah, Joe and Tae.

 
At Sunday, October 02, 2005 1:26:00 PM, Blogger steve Left a thought...

I love the sister stories. I love picturing them together enjoying each other with that bond they have. Praying for you

 
At Sunday, October 02, 2005 5:47:00 PM, Blogger Jeff H Left a thought...

Every little "holding her own" is a major victory!!! God is good all the time, and all the time God is good. Blessings abound.

 
At Monday, October 03, 2005 7:34:00 AM, Blogger Katie Left a thought...

What a joyful thing to have normalcy, we take it for granted so often. I'm praying for continued healing, rest, and restoration as well as many, many more "normal" moments in your lives.

 

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