Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, October 03, 2005



It's Monday

Not quite sure what happened to yesterday, but it was very busy.

Friend Allie had offered to come out with her daughter. That was awesome because we did not have any other help - or so we thought. Then Grandma M came, and later in the day Grandma A came. There were a lot of people that we did not expect but Rebekah loved it, playing with everyone. Rebekah was up and playing almost all day yesterday which is really really great.

In addition to all of the above, we had a visit from Joe, Anne and JJ as well as Rebekah's Aunt and Trustee, Molly. They came to tell us about a fundraiser that they have been putting together in the background. They are putting on a pancake breakfast at the High School in Banks on November 6th. Actually, they are helping Angela Kohama, a daughter of one of Rebekah's teachers/therapists who is doing it as a High School Service Project. We have had nothing to do with this but I understand that Angela is really doing a bang-up job!

Saturday Rebekah got more than the daily recommended allowance of calories for the first time in 3 or 4 months. Maybe that had something to do with her energy on Sunday? She is still throwing up but not as much.

Today all the girls (mommy, Rebekah and Sarah) are off to clinic. We expect that this will only be a quick check up so pray for good counts.

Rebekah still is not talking and has regressed with some of her signing. Please pray that she will "come back" a bit here so we can understand her. That would be less frustrating for her and for us.

8 Shared:

At Monday, October 03, 2005 10:29:00 AM, Anonymous Anonymous Left a thought...

Hmmmm, Pancake Breakfast, Banks, on November 6th. Count us in! Glad to hear Rebekah has a little more energy. Hope you all have a good day with lots of lovin, rest, and laughter. With Love from the Mikalow's and Grandma too.

 
At Monday, October 03, 2005 11:07:00 AM, Anonymous Anonymous Left a thought...

Glad to hear this ;)
praying for good report!
huggs to all
huggs from missouri

 
At Monday, October 03, 2005 11:46:00 AM, Blogger steve Left a thought...

Did someone say PANCAKES!?!?! I am in!!

Glad to hear that she had a good play day and she got some calories in.

Praying

Steve

 
At Monday, October 03, 2005 12:29:00 PM, Blogger Katie Left a thought...

Lord, give sweet Rebekah words to speak. Take away the pain and discomfort in her mouth and throat and let her sweet voice be heard.

 
At Monday, October 03, 2005 2:43:00 PM, Anonymous Anonymous Left a thought...

We had such a great time visiting your sweet family! Rebekah looked great.. Sarah is darling.. and I loved that Rebekah let Lanie read to her! See you Tuesday evening! You remain in our thoughts and prayers, as always! Allie

 
At Monday, October 03, 2005 5:26:00 PM, Anonymous Anonymous Left a thought...

Lord bless Rebekah with the gift of voice. Restore and heal every part of Rebekah's face and mouth and throat, just touch everything Lord. Let her just forget herself and ramble with words for her mommy and daddy.Amen.

 
At Monday, October 03, 2005 10:07:00 PM, Anonymous Anonymous Left a thought...

still praying for rebekah... glad to hear that she got more nutrients now.

 
At Wednesday, October 05, 2005 4:15:00 AM, Blogger Jenny Left a thought...

Praying as always!

 

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