Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, October 04, 2005



Tantrums and a Self-Directed Walk Outside

Yesterday was really exciting. Late in the day daddy responded to a medical call (for those of you who don’t know, daddy is a volunteer firefighter/emt). When he got back, Rebekah had wanted her tubes disconnected and was playing with Sarah on the floor. They were playing like “normal”. They were fighting each other over toys, pushing each other around, hugging each other and pulling each other around by the hand.

Then, Rebekah decided it was time to go "bye bye". All by herself she went and put on her shoes (ok, tried – getting the wrong foot in each shoe). She also got her hat and and put it on. Finally she went and got a jacket and tried putting it on. She also noted that Sarah needed socks and shoes (Rebekah had already gotten Sarah a hat). When daddy told her that we were not going anyway as it was night time she became indignant and headed for the door. Telling her she could go out by herself if she wanted to we opened the door and out she went.

Of course daddy quickly followed a few steps behind. She went down the walk and headed straight to the van pounding on “her” door. When daddy told her we were not going anyway in the van she turned and pointed to Grandma C’s car (that Grandma and Grandpa are letting us borrow). She was REALLY upset when daddy told her the car was not going anywhere either. Finally she walked to the mailbox and got the mail with daddy.

After coming back up the walk we told her it was time to go in. No go. Temper tantrums and more pointing to the van. Daddy said “okay, you stay out here by yourself then” and walked back inside (or at least she thought he did). After a short while of walking around in circles by herself she walked up the walk, pushed the door open and came inside.

Once inside she would not take her coat off and was throwing another tantrum. When mommy tried to help her Rebekah actually reached out and hit mommy which got her a “time out” until she took off her coat and shoes. After about 5 minutes she followed instructions. Rebekah then came over to her spot on the couch and got her tubes hooked up and ate as much crushed ice as we could give her. (Thanks to Grandma M for starting the crushed ice thing!)

If you are new to this blog you might wonder why an hour or two of typical child hood behavior deserves such space? Well, it has literally been months, many months since we have seen such behavior. To have her be able to play, to walk outside (which involves steps) and to engage in such behavior as to deserve a time out is WONDERFUL! It might not have lasted for too long, but for a very brief moment there were signs of life coming back to Rebekah and we were SO OVERJOYED.

It seems crazy, but please rejoice today when your child acts like a child. Rejoice for their good health and rejoice just because they can.

Now it is even more important that we get the final stuff in the van so that we can take Rebekah out more often and we thank those of you who are helping with that!

15 Shared:

At Tuesday, October 04, 2005 8:55:00 AM, Anonymous Anonymous Left a thought...

It's so wonderful to hear that Rebekah is getting her spirit and independence back. You don't realize how much you miss it until they're sick. Take care,
Wyla

 
At Tuesday, October 04, 2005 8:56:00 AM, Blogger Katie Left a thought...

My heart is jumping with JOY to read this story. Ah, what a blessing to have Rebekah act out (what a funny statement to make). I know that this brings so much joy and happiness to you. Praying for many many many more NORMAL days.

 
At Tuesday, October 04, 2005 9:05:00 AM, Anonymous Anonymous Left a thought...

Hallelujah! Praise God for the child in her coming back...

 
At Tuesday, October 04, 2005 9:42:00 AM, Anonymous Anonymous Left a thought...

You told us:

"It seems crazy, but please rejoice today when your child acts like a child. Rejoice for their good health and rejoice just because they can."

Today I rejoice with great joy, partly because of you Scott. I've never met you, but today we get to adopt our little girl Leeann, because of your help. I honestly believe that hearing your story will help me to always hold her a little tighter and to rejoice with those little things. Your family is an inspiration to so many!

Robyn

 
At Tuesday, October 04, 2005 10:21:00 AM, Anonymous Anonymous Left a thought...

Thank you Lord for making our prayers reality, Thank you for each step forward Rebekah is taking.
God is SO good! Go Rebekah GO!!! :)

 
At Tuesday, October 04, 2005 10:39:00 AM, Anonymous Anonymous Left a thought...

you go babydoll, you play and be 3
God is good
huggs from missouri

 
At Tuesday, October 04, 2005 2:04:00 PM, Blogger steve Left a thought...

I LOVE THIS POST!!

Classic Scott, just classic! Goes to show you how its all about perspective. I am glad she is being so fiesty!

 
At Tuesday, October 04, 2005 2:31:00 PM, Blogger Corry Left a thought...

I couldn't help but smile reading this post. It is so good to see her behave like any other child her age. Thank you Lord, please let this path of recovery continue.

God's Grace.

 
At Tuesday, October 04, 2005 2:32:00 PM, Anonymous Anonymous Left a thought...

How wonderful for the "behavior" My heart jumped for joy to hear the story !!! I i visited the blog and read about past days I experienced a roller coaster of emotions. My heart sings onemoment and crys the next ! Be stong and lean on God he is the one stable, constant fixture in your life ......

Love and prayers,
Dale and Leslie Mickley

 
At Tuesday, October 04, 2005 2:38:00 PM, Blogger JodiTucker Left a thought...

It's just mind boggling that she can be such a "spunky monkey" with all the tubes and past chemo and radiation and everything. While it's mind boggling for me, it isn't for Her Creator. Thank you Lord for her life!!

 
At Tuesday, October 04, 2005 5:14:00 PM, Blogger Deb Left a thought...

Scott and Frances, We have been on vacation and haven't had access to the computer since 9/22 ---I just spent the last few moments "catching up" on all the entries....We, of course, continued to pray for you all while we were away ---Olivia asks me all the time, "Mommy, are you sad because Rebekah's sick?". It's the best segue into praying for her - and you! It's nice to hear that she was exhibiting some normal 3-year old behavior! I know you must really cherish those moments and pray that ALL her moments become normal soon. It's nice to be "connected" again --- May God fill you this day with renewed strength and patience as you deal with all the STUFF that comes with this journey! Love - in Jesus!, Deb, Randy and Olivia

 
At Tuesday, October 04, 2005 7:18:00 PM, Blogger Mackey Left a thought...

Rebekah got a time out???Yay Rebekah!!:D
It is so great that she is staring to feel well enough to act like a little girl. Way to go!!!

 
At Tuesday, October 04, 2005 10:12:00 PM, Anonymous Anonymous Left a thought...

Very awesome. You guys are all still in my prayers daily, hourly etc... Caron

 
At Wednesday, October 05, 2005 4:13:00 AM, Blogger Jenny Left a thought...

Amazing! Praise God for NORMAL!

 
At Thursday, October 06, 2005 12:46:00 PM, Blogger Nettie Left a thought...

I don't think it's crazy at all, just very encouraging.

 

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