We Are Home

We made it home. It was a long day, but we were able to fly the coup and head for home this evening. Chemo was done at about 5 this evening, but we decided to stay to get an antibiotic that Rebekah needs every three to four weeks. It had to wait until after chemo was done and we had the choice of staying today or planning to stay for two hours next week when we were in for clinic. Since Sarah was still with Brandy (and wouldn't be next week), and leaving at 5pm isn't much fun as far as traffic is concerned we opted to stay.

Daddy had to be in court this afternoon in Tillamook, so he took the camping trailer home early this afternoon and left Mommy and Rebekah at the hospital. We had brought two vehicles to the hospital, so that Mommy and Rebekah could leave when they were ready and we didn't have to work around Daddy's schedule. Mommy and Rebekah left the hospital just after 7pm and by the time we got home, Daddy had a nice fire going to make the house cozy.

Today was Kennedy's 5th birthday and unfortunately for her, she was admitted to the hospital yesterday for her chemo so she got to spend her birthday in the hospital. Now, the good side to it was that she was treated like a princess today by lots of people. Rebekah painted her a picture for her birthday. When we went to give it to her, she was in meltdown mode and didn't want company. We found Kennedy's mom and gave her the picture to give to Kennedy (we didn't want to leave without giving it to her). Later Kennedy (and her family) stopped by to tell Rebekah thank you for the picture. Her mom explained that it had gotten Kennedy out of meltdown mode and was therefore very much appreciated. Glad we were able to help in a small way.

Once home, Rebekah wanted to play and be free from her poles and tubes. She got up on the couch to get one of her leappad books off the half wall and then went and got the leappad off the desk. She sure knows what she wants. Believe me, she has been expressing her wants all day. She has not wanted to be in her room most of the day. After lunch she wanted to go night night - in her stroller going for a walk (not in her bed like mom would have thought). We made many laps around the 3rd floor today - mostly in the stroller. This evening, when we were discharged and ready to go, she saw the wagon and had to have a wagon ride, so we went on a wagon ride around the ward before climbing into the stroller and heading for the van. Oh the things we will do to keep our kids happy!

She hasn't slept well the last two nights and last night she was getting upset (screaming) with each diaper change (every two hours). I'm not quite sure why. I asked for some morphine at one point hoping that it might help, but it didn't seem to do much. This morning she woke up kind of crabby, but there was no identifiable reason for it. It was one of those days when she didn't seem right, but I couldn't tell what was wrong to "fix" it. Should I give her pain meds, anti-anxiety meds, anti-nausea meds, just hug and love on her or what? It was hard to tell if anything would help. It is much easier when I know what is wrong, but unfortunately that is not often the case.

Hopefully, she will sleep well in her own bed and we will all have a good night.