Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, October 10, 2005



A Good Day

This was what would have classified as a “normal” day at the hospital.  Would have way back when during one of our first chemo sessions.  In other words, there are many ways that Rebekah has come back to “normal”.  

We arrived at the hospital parking lot last night and had a pretty good night.  Rebekah slept okay and mommy and daddy a little less than okay.  Rebekah’s feeding pump kept giving us an error every couple of hours and that took getting up, resetting, etc.   Then, about 2am, the trailer ran out of propane on the one bottle and daddy had to get up and go outside and switch them over.  

This morning we went over to clinic and got admitted.  Rebekah would not stay in her room.  We would have had to tie her down and that wasn’t happening.  She took her IV pole and we went to the cafeteria for lunch.  Mommy and daddy had salads and Rebekah had just about anything she wanted off of our plates.  She ate a few bites which was really awesome.  We actually sat with Maggie and her mom and dad.  Rebekah watched as Maggie ate everything in sight.  Go girl!  Maggie was sure talkative and it was really neat to spend some time with them.

During the afternoon Rebekah got her chemo started and went for a few more rides in her stroller.  When daddy came over in the evening Rebekah gave him a painting that she and mommy made.  To daddy it was the most beautiful thing in the world.  

There are some really tough things going on with insurance and all that, but things have been so good with Rebekah that I don’t want to put that in here right now.  Just pray for starting over, deductibles, out of pocket expenses, and all that.      

5 Shared:

At Tuesday, October 11, 2005 3:03:00 AM, Anonymous Anonymous Left a thought...

this is good to hear babydoll you eating and maggie too! will be praying for you all!
huggs from missouri

 
At Tuesday, October 11, 2005 3:28:00 AM, Blogger Alison Left a thought...

Praying that all of the money stuff works itself out. One headache you certainly do not need!

 
At Tuesday, October 11, 2005 10:39:00 AM, Blogger Katie Left a thought...

Praying that God will provide above and beyond your needs.

Glad to hear the "normal" is becoming something that is occuring more often.

Always praying and thinking of ya'll.

 
At Tuesday, October 11, 2005 11:01:00 AM, Blogger Unknown Left a thought...

I'm so happy for you all that you had a good first day for this stay.

Your family is in my prayers. As are the insurance adjusters. That their hard hearts would be softened and they would just foot the bill.
Crazier things have happened.
Thank you, for faithfully keeping us updated.
I have the prayer poster for Rebekah posted at our church at the info table.

-Jes

 
At Tuesday, October 11, 2005 11:57:00 AM, Blogger steve Left a thought...

Normal is a great word! Glad that all seems to be running smoothly with Rebekah. I am praying that the insurance issues are taken care of

 

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