Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, October 08, 2005



Getting Ready for Next Week's Chemo

We're making preparations to head down to the hospital tomorrow in preparation for Monday's admission. It is always a lot of work to get things buttoned up at home, the camping trailer ready, etc...

Rebekah talked on the phone with Grandma A and Daddy today. She always seems to enjoy talking on the phone. When she was talking with Daddy, Sarah was trying to get to the phone, too. I think we may have two phone-a-holics on our hands.

Rebekah is off the anti-anxiety, pain, anti-nausea medications that we've had her on for the last several weeks. Today was the first day of being off them all. We've slowly been working on getting her off them, but today she was off them all. Meanwhile, she allowed me to give her the mouthwash this morning and she brushed her teeth and wanted flouride drops. Those are all improvements. So Mommy doesn't need an alarm in the middle of the night tonight. Yeah!

Rebekah really seems to like being read to these days. I think she would be content with Mommy reading to her all day long. If only Mommy had the energy and ability to do that. Grandma A came over for several hours and read to her quite a while.

Friends Kathleen and Kevin brought us a scrumptious dinner. That was fabulous - Thanks Kevin and Kathleen! Sarah wouldn't stop eating.

It has been a pretty normal day, again. For the last few days, Rebekah has fought her naps and bedtime (which is par for the course). Last night, during the night, she was up and wanting Mommy several times. For a period of about 3 hours during the night, Mommy didn't sleep between Rebekah wanting her and then not being able to fall right back to sleep. Uugh! Hopefully tonight will be better. Needless to say, Mommy is a bit tired.

3 Shared:

At Sunday, October 09, 2005 10:02:00 AM, Blogger Jeff H Left a thought...

Glad to hear God is blessing Rebekah with some improvement.

Sorry 'bout Mommy's lack of sleep.

 
At Sunday, October 09, 2005 3:45:00 PM, Blogger Deb Left a thought...

For the past few nights, Olivia, too, has been up several times during the night - crying for Mommy. Usually she goes to bed and sleeps through the night --and then appears in our bed at around 6am. Not so these past few nights --up every couple of hours. I have been prompted to pray for you guys in the middle of the night....just so you know...prayers are going up 'round the clock!

Deb

 
At Monday, October 10, 2005 2:07:00 PM, Blogger Jenny Left a thought...

Praying that God will renew the spirit of Francis with each passing minute, and grant her true rest in her body and soul.

 

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