Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, October 22, 2005



We are all feeling a bit better.

Rebekah is doing a little bit better on her blood counts and it is looking like we are going to get to go home tomorrow, Sunday.  Of course we are still holding our breath is nothing in our lives is for sure except what happened yesterday.  You should note that “for sure” is what did happen yesterday, NOT what we think happened yesterday as that is usually wrong in our mental state.  She had a pretty rough night with coughing, getting upset, etc.  Her fever is still borderline and she is staying on Tylenol.  Even so, we are still “planning” on leaving tomorrow.

Thank you all for bearing with me through yesterday’s frustrations.  What a difference a day (and some friends) can make!  Just about everyone that did not deliver yesterday had a very good excuse and we totally understand.  Unfortunately that didn’t help things to get done, but stuff happens.

Late last night (this morning…) Mark, Steve, Caron and Kris stopped by after a concert.  They brought some food, munchies and some beer and hung out talking in the trailer until 2am.  Mommy missed it sleeping in the room but daddy felt like back in college days just hanging out talking – except we only had one beer and were quiet.  It was nice.

Then today the Juengels brought TWO pies (at their questioning daddy requested apple OR cherry so they brought both) plus a full home cooked meal that we are going to eat this afternoon and that is great.  

Then a client of daddy’s stopped by the trailer with a wonderful fruit and goody basket just because – that is totally awesome.  

Caron is at our house cleaning things up so mommy doesn’t have to come home to frustrations tomorrow – better than great or awesome!  

AND Grandma M came to the hospital and is sitting with Rebekah and mommy is actually here in the trailer sleeping while daddy works (and plays with email and stuff).  

Here I sit in the trailer tucked into and under trees with leaves in very beautiful colors.  The trailer is all opened up with fresh crisp fall air blowing through.  Beautiful mommy is lying on the couch/bed with a blanket over her sleeping peacefully.  Soothing Christian music is playing in the background.   And a scented candle (see goody basket above) burns filling the trailer with sweet delight.  

Yes, things are going a little better and, even if just for a moment, we are able to forget some of the trials.

7 Shared:

At Saturday, October 22, 2005 4:02:00 PM, Anonymous Anonymous Left a thought...

that was Awesome, so glad that Daddy got some good moments, and mommy got some sleep, praying, for a good sunday!
huggss from Missouri

 
At Saturday, October 22, 2005 4:03:00 PM, Anonymous Anonymous Left a thought...

Praise God for the good times!!! He will continue to sustain you. Amen?

 
At Saturday, October 22, 2005 4:33:00 PM, Blogger JodiTucker Left a thought...

So glad to hear of a little reprieve from all the trials you have on a daily basis. Glad that Frances can sleep peacefully outide of Rebekah's room in the trailer....as always----lifting you all up in prayer!! (Bringing food won't work from almost 3,000 miles away.) love to all, Jodi in OH

 
At Saturday, October 22, 2005 6:20:00 PM, Blogger Di Left a thought...

no one deserves some relaxation more than you guys!

 
At Saturday, October 22, 2005 8:43:00 PM, Blogger Bar L. Left a thought...

Stopping by to catch up and let you know I still pray everyday for you all! Hugs!

 
At Sunday, October 23, 2005 6:39:00 AM, Anonymous Anonymous Left a thought...

I continue to pray for your family daily and am glad to hear that Rebekah is doing better. Just continue to look to a higher power and HE will provide !

 
At Sunday, October 23, 2005 8:06:00 AM, Blogger Darlene Schacht Left a thought...

It's been a rough week for you all again, I can't wait till you get home with both of the girls again.

 

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