We are Home

Doc came in about 10am, yesterday, and asked if we were ready to go home. I told him, we were waiting on him. Rebekah has been on two antibiotics for the last few days and I knew she was going home with one of them. I thought doc had said she was going home with the Flagyl, but the nurses all seemed to think she was going home on the other one. So, I asked Doc again which she was going home with and he said Flagyl. I told him that I didn't think that was the one that Home Health was expecting us to go home on. He called them and sure enough they had the wrong one, so he had to work on getting that switched to the correct one. He thought that Suzanne had everything worked out so that he wouldn't have to deal with them on a Sunday. Oops!

Her next dose of the antibiotic was due at 2pm. If we were going to get out of there and get home in time for a nurse to come and bring the equipment, supplies and antibiotics and teach us to administer them in time for the 2pm dose, we had to get moving.

The nurse finally made it out about 2:45. She was delayed in getting the "correct" antibiotic and then travel took longer than anticipated. So the antibiotic was a little late. The pump she brought was just like the one we used last time we went home with antibiotics, so we were familiar with it. She gets the antibiotic every 6 hours - at 2am, 8am, 2pm and 8pm. It runs for an hour.

The nurse also brough with her a new feeding pump and the supplies for it. Hopefully, it will be easier to use than the other style pump we had been using. Only time will tell, but I haven't had any issues yet with it. It has a little carry bag that comes with it for portability, but the bag to hold the formula and go portable is only half the size of the ones we are used to. It isn't a problem during the day, but at night could be. She did bring some larger bags that we could use at night, but then we're using two bags in a 24 hour period and there is always some wasted food that way and the bags are only good for 24 hours and I hate to be wasteful. Right now it isn't an issue, since we have to be up at 2am anyway to get antibiotics going.

She also brought a very light weight and short IV pole for our use. Rebekah can more easily move it around.

Grandma brought Sarah home around dinner time and it was good to see her. She must have been pretty pooped from the last week, since she slept in really late. Mom kept having to check on her.

It is good to be home, but unfortunately with having to give antibiotics at 2 in the morning and then again at 8, Mom didn't get a very good night's sleep. Rebekah was awake during the 2am antibiotics and up before the 8am antibiotics started. The antibiotics will continue for 7 days - just in time to go back into the hospital - yippey. Guess mom won't get much sleep this week either. Uugh!

Rebekah continues to have borderline fevers, diarrhea (although not as often and not as much volume), some nausea and lots of congestion and her mouth continues to hurt. One day at a time, one hour at a time, one minute at a time... That is all we can do.