Thursday Update

It has been a long day. Rebekah, once again, was awake early this morning - about 5 am. She wanted medicine for her owies and to go byebye in her wagon. She got the medicine, but was told it was still nightnight time and needed to go back to sleep. She didn't fuss too much and did fall back asleep and woke up again about 9 am.

Once she was awake, she wanted out of her room. I explained that Mommy needed to eat something and get dressed and then we needed to get Rebekah changed and the wagon cleaned out (it was mounded with toys and things) and then we could go. We put on Dora and she sat mostly patiently. Once I ate, I had to explain the remaining things that needed done before we could go. And so it went, but she kept asking and wasn't screaming.

We headed out for a wagon ride. All day long, she wanted to go out in her wagon. She was not at all happy when we needed to be in her room. By this evening, we had run the battery down to where it was beeping and needed to be plugged in.

The results from her stool sample were back and no c.diff. So that is good. Her blood counts showed a very low hemoglobin count, so she needs a red blood transfusion. They will start it here in the next little bit. They needed to wait until her chemo was complete and the bladder protectant iv completed (which is just about done - it runs for 10 hours).

Mid-afternoon today, we came back into the room. I don't remember why, but before we could head out again, I told Rebekah that I needed to make one phone call. She was sitting in the wagon waiting. By the time I finished the phone call (which wasn't much more than 5 minutes), she was sound asleep.



There are so many programs here to keep the kid's minds off of the treatment. One of those is the Music Rx program. They will check out instruments to the kids for them to play. Rebekah checked out a keyboard earlier this week and has enjoyed playing it off and on.



We haven't had many comments today. Where has everyone gone? We've checked several times today to see who had commented and what had been said and haven't seen much. It is always a big encouragement to see comments and know that people care. Sometimes that is the only way that I (Mommy) know people care. It has been kind of a lonely day.

Grandma A came by this evening to hang out with Rebekah, so that Mommy and Daddy could eat together in the trailer. That was great! Thanks Grandma A! Grandma C stopped by a couple of times and brought Mommy some lunch. That was great, too. Daddy had some visitors, too, including Caron who brought us some chocolate - always appreciated.