Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, November 02, 2005



Wednesday Mid Day

Last night, Rebekah fell asleep about 8:45 (quite a bit earlier than the night before but still later than her usual bedtime). Mommy finally got to bed a little before 11 pm. At 2 am or so, the IV was beeping and needed attention waking Mommy up to silence the machine and let the nurse know. Then again at about 3 am, it was beeping again... Mommy drug herself out of bed and found Rebekah's nurse once again. Uugh!

Then at about 6 am, Rebekah woke up and wanted medicine for her owies, so I checked with the nurse to see if she could have some benadryl and/or tylenol. She could have both, so I asked for both. Once I got back to the room, she wanted to go for a ride in the wagon. Remember, it is 6am. Others are trying to sleep, as I wanted to. I explained to her (guess how well that went) that it was still nightnight time and we all needed to sleep some more. Then she wanted her diaper changed. Another delay tactic, mom was sure. Mom changed her diaper, anyway, and it surely needed it as it was poopy. After a few minutes, the explanation (and more likely the benadryl) set in and she was back to sleep. She was still sleeping at 10:30 this morning.

Since then, we have had Speech Therapy in (twice since she wasn't able to stay long the first time) and Occupational Therapy, as well as Grandma C, Grandpa, and Daddy. Sarah and Debbie and Kelsey are due in a little while.

Rebekah drew Daddy another picture this morning and it is hanging up in her room right now until Daddy gets it.

Since Rebekah is continuing to have diarrhea issues, we sent a sample away for testing to make sure that we don't still have the C.Diff that we had last hospital stay.

Meanwhile, Rebekah seems to have more of her spunk back and she is trying to use more words. Her vocabulary seems to have increased in the last week or so, which is good to see. She does seem like she's feeling better than she has in months. We know that this round of chemo will knock her down, but it is a lot better to see her starting from a more "up" position.

7 Shared:

At Wednesday, November 02, 2005 2:44:00 PM, Anonymous Anonymous Left a thought...

Wow...sounds like you guys are super busy. I'm so glad to hear that Rebekah slept in for you as I'm sure you needed the rest. It's also good to hear that her vocabulary is increasing and that she's feeling well enough to draw wonderful pictures for Daddy. I also wanted to let you know that the pictures you posted are fantastic; you all look sooo happy which is so nice to see. You are all in my prayers and I check in on you guys 1-2-3 times a day. Little Rebekah has stolen a piece of my heart...God Bless you all.....
Katrina from Illinois

 
At Wednesday, November 02, 2005 2:50:00 PM, Anonymous Anonymous Left a thought...

thanking God for a good day!
hang in there :D
huggs from MO

 
At Wednesday, November 02, 2005 2:55:00 PM, Blogger Alison Left a thought...

Glad today went wellish.
Continuing to pray for strength and healing!

 
At Wednesday, November 02, 2005 3:17:00 PM, Blogger The other me Left a thought...

It's so heartening to hear that Rebekah is starting this round with more strength. The extra rest must have helped too. My thoughts and prayers are with you all the time, even if I don't have time to leave a comment.

 
At Wednesday, November 02, 2005 4:33:00 PM, Blogger Queen on the run Left a thought...

Praying always. and thinking of you often.

 
At Wednesday, November 02, 2005 4:39:00 PM, Anonymous Anonymous Left a thought...

It was good to see Rebekah up and about (and verbal!) at the hospital today. For so long it seems her pain overshadowed her spirit. We check your web-site often and pray for her daily. May God see Rebekah, Mommy, Daddy and baby sister through. I know it is a long haul, but if you take one thing at a time, you will make it through. Bless sweet little Rebekah and all the children and families affected by this horrible disease.

Kathi O'Brein, mother to Madeleine O'Brein
www.caringbridge.org/visit/madeleineobrien

 
At Wednesday, November 02, 2005 9:49:00 PM, Blogger steve Left a thought...

Thinking about you guys!

Glad Rebekah is starting to use more of her words!

 

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