Wednesday Mid Day
Last night, Rebekah fell asleep about 8:45 (quite a bit earlier than the night before but still later than her usual bedtime). Mommy finally got to bed a little before 11 pm. At 2 am or so, the IV was beeping and needed attention waking Mommy up to silence the machine and let the nurse know. Then again at about 3 am, it was beeping again... Mommy drug herself out of bed and found Rebekah's nurse once again. Uugh!
Then at about 6 am, Rebekah woke up and wanted medicine for her owies, so I checked with the nurse to see if she could have some benadryl and/or tylenol. She could have both, so I asked for both. Once I got back to the room, she wanted to go for a ride in the wagon. Remember, it is 6am. Others are trying to sleep, as I wanted to. I explained to her (guess how well that went) that it was still nightnight time and we all needed to sleep some more. Then she wanted her diaper changed. Another delay tactic, mom was sure. Mom changed her diaper, anyway, and it surely needed it as it was poopy. After a few minutes, the explanation (and more likely the benadryl) set in and she was back to sleep. She was still sleeping at 10:30 this morning.
Since then, we have had Speech Therapy in (twice since she wasn't able to stay long the first time) and Occupational Therapy, as well as Grandma C, Grandpa, and Daddy. Sarah and Debbie and Kelsey are due in a little while.
Rebekah drew Daddy another picture this morning and it is hanging up in her room right now until Daddy gets it.
Since Rebekah is continuing to have diarrhea issues, we sent a sample away for testing to make sure that we don't still have the C.Diff that we had last hospital stay.
Meanwhile, Rebekah seems to have more of her spunk back and she is trying to use more words. Her vocabulary seems to have increased in the last week or so, which is good to see. She does seem like she's feeling better than she has in months. We know that this round of chemo will knock her down, but it is a lot better to see her starting from a more "up" position.
Share a thought or prayer: 7 Comments
7 Shared:
Wow...sounds like you guys are super busy. I'm so glad to hear that Rebekah slept in for you as I'm sure you needed the rest. It's also good to hear that her vocabulary is increasing and that she's feeling well enough to draw wonderful pictures for Daddy. I also wanted to let you know that the pictures you posted are fantastic; you all look sooo happy which is so nice to see. You are all in my prayers and I check in on you guys 1-2-3 times a day. Little Rebekah has stolen a piece of my heart...God Bless you all.....
Katrina from Illinois
thanking God for a good day!
hang in there :D
huggs from MO
Glad today went wellish.
Continuing to pray for strength and healing!
It's so heartening to hear that Rebekah is starting this round with more strength. The extra rest must have helped too. My thoughts and prayers are with you all the time, even if I don't have time to leave a comment.
Praying always. and thinking of you often.
It was good to see Rebekah up and about (and verbal!) at the hospital today. For so long it seems her pain overshadowed her spirit. We check your web-site often and pray for her daily. May God see Rebekah, Mommy, Daddy and baby sister through. I know it is a long haul, but if you take one thing at a time, you will make it through. Bless sweet little Rebekah and all the children and families affected by this horrible disease.
Kathi O'Brein, mother to Madeleine O'Brein
www.caringbridge.org/visit/madeleineobrien
Thinking about you guys!
Glad Rebekah is starting to use more of her words!
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