Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, November 10, 2005



Back from Clinic, No Transfusions

We are home from clinic without needing blood or platelets today. That is always a good thing. Rebekah's counts are still dropping, so Doc says we should expect to need blood and platelets on Monday. I, personally, don't think we will, but I'm not an expert.

I talked with the doctor about Rebekah's eye and he suggested that we get her examined by an Opthamologist. I agree that it makes sense to do so. He called the doctor Rebekah has seen in the past to touch base with her and the Eye Clinic called to set up an appointment. That is now scheduled for the week after Thanksgiving.

I also talked with the doctor about the continued complaints of pain. There are no visible sores in her mouth at this time. Hooray for that! It has been a long time since that was true. He will probably check with a gastroenterologist and potentially have them put a scope down her throat next time we are admitted to have a look. I'm frustrated that her throat hasn't seemed to heal after radiation and want to make sure that we aren't missing something.

Meanwhile, when we checked her weight this morning it was 16.7 kg (almost 37 lb). That is more than a pound heavier that when she was diagnosed with cancer. That is great! Despite how often it seems that we are failing with the nutrition (vomiting, not getting her 6 cans each day, etc...), it seems to be doing the trick. We are supposed to continue as normal. After her dramatic weight loss during radiation, I'm happy to finally be above 16 kg (where she was at diagnosis).

Well, I had better finish this up. Sarah keeps escaping from the playroom (the doors are not on, yet and she can scoot around the temporary fencing and Rebekah is sitting in Sarah's high chair and saying she wants to eat and drink. So far, it has been more talk than reality.

15 Shared:

At Thursday, November 10, 2005 3:16:00 PM, Anonymous Anonymous Left a thought...

So wonderful to read todays post. Still praying for you guys. Caron

 
At Thursday, November 10, 2005 3:30:00 PM, Blogger Queen on the run Left a thought...

Glad that she is at least saying she is hungry. Hopefully she will continue to gain weight. I will pray and pray and pray that she continues to get better and that pain will leave her body.

 
At Thursday, November 10, 2005 4:13:00 PM, Blogger Alison Left a thought...

Good news... hoping and praying that they can figure out where her pain is coming from.

 
At Thursday, November 10, 2005 4:38:00 PM, Anonymous Anonymous Left a thought...

Thanks for the good news. Always praying, and thinking of your family.

 
At Thursday, November 10, 2005 5:34:00 PM, Anonymous Anonymous Left a thought...

Glad things are looking more positive...have a great weekend.

Still praying...

: ) Chris

 
At Thursday, November 10, 2005 6:09:00 PM, Blogger Heather/SHTEZQ Left a thought...

wow things are really sounding awsome !!!!!!!god is so listening

 
At Thursday, November 10, 2005 7:08:00 PM, Anonymous Anonymous Left a thought...

What a wonderful way to end my day - hearing such good news about our little Rebekah! I'm sure mom & dad sighed a breath of relief.

I work a lot with children who have oral motor conditions/concerns and either are tube fed or picky eaters. It is a great step that Rebekah is still showing interest in and saying she wants to eat! Keep up that attitude, little girl!

Hugs to you all,
Thoughts & prayers always from,
~Molly~

 
At Thursday, November 10, 2005 7:57:00 PM, Blogger JodiTucker Left a thought...

Continuing to pray for all of you.....one day at a time. Thank you for continuing this blog through the joyful and sorrowful times (and everything in between).
Love to you, Jodi

 
At Friday, November 11, 2005 5:51:00 AM, Blogger Jenny Left a thought...

You two as such strong warriors, and so tenderhearted! God bless you in your constant struggle, and may He give you peace and rest.

I continue to pray for Rebekah and your family as a whole, but it's Mommy and Daddy as caretakers that I have such a heart for. Only people in that situation can possibly understand the exhaustion and depression, and then the almost manic joy when something goes right.

God is with you always, lifting you up, and steadying your footsteps.

**hugs**

 
At Friday, November 11, 2005 7:35:00 AM, Anonymous Anonymous Left a thought...

Still praying for your family. God bless you.

 
At Friday, November 11, 2005 10:01:00 AM, Blogger Katie Left a thought...

Gald to hear no transfusions were needed.

Prayers for answers on Rebekah's eye and the sores in her mouth/throat.

 
At Friday, November 11, 2005 11:05:00 AM, Blogger steve Left a thought...

I can never get away with saying this anywhere else at any other time so here it goes:

THANK GOD FOR GIRLS GAINING WEIGHT!!!

love you guys.

 
At Friday, November 11, 2005 12:42:00 PM, Anonymous Anonymous Left a thought...

May God be with your little angel, and with you both as you all go through this very difficult time. I think it's wonderful that you are sharing your story. Not only to receive support... but also to spread hope. I am praying for you all. Leah

 
At Friday, November 11, 2005 1:00:00 PM, Anonymous Anonymous Left a thought...

Awesome that no transfusions were needed. I'll keep my paws crossed and pray that Monday will show the same. Great news on the weight too! Congratualtions :)

 
At Tuesday, November 15, 2005 7:57:00 AM, Blogger Jeff H Left a thought...

Haven't stopped by for awhile. Glad to hear Rebekah's doing better--no transfusion and increased weight. WOOHOO!!! God is good all the time, and all the time God is good. Hope your vacation goes well. You deserve it.

 

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