Tuesday Morning Update

We’re not exactly sure how to describe how Rebekah is doing now that we have had a couple of days at home.  In some ways she is doing really well and it others not so well.

She is objecting more and more to having her tubes connected to her during the day.  Obviously she’s not fond of being tied to an IV pole.  She is, however, doing real well with it when she is.  In fact she showed another “new” girl at the hospital last week the “proper” way to hold your pole and tubes so that you can walk safely.  That was kind of cute.

Rebekah is enjoying running around a couple of hours a day and then her energy diminishes.  She SO enjoys her new playroom.  Even though it is not quite finished the carpet is in and she can get there.  Some of her toys are there and even though its not connected to anything else, she can connect her new DVD player to the TV in there and watch Dora “Doe Doe” or Thomas “Choo Choo”.  Sarah is also very much enjoying it.  Am not sure how safe the two of them are together alone in there but they are having fun.  Yesterday Sarah tried to stand on or sit on (not sure which) Rebekah’s Barbie car and got both of her feet stuck through the sunroof.  Daddy thought it was hilarious but Sarah was not so amused.  

Rebekah has been able to sign “owie” or “hurt” for a while but has not been using it totally appropriately until recently.  Unfortunately she is using it a lot now.  It is real clear that her mouth and throat hurt here quite a bit.  She wants SO much to eat something and then when she does she starts screaming and yelling and “saying” owie pointing to her mouth.  She knows mommy has medicine in a syringe to make it feel a little better and she asks for that too much.  Even the morphine is not making the pain go away.  She does enjoy her ice chips and squirting water into her mouth with a syringe and I am sure that feels good for her.  

Although she was not able to come in and help give mommy a break because of her kiddos being sick, Aunt TT did some shopping for us yesterday.  THANK YOU!  Mommy really is running ragged day and night.  Can you help her around the house or come watch the kids so she can get a rest?  Let us know.

Please pray for good health and blood counts this week so we can take a “vacation” next week to a house in the mountains that Debbie and family very kindly donated to us.  Please pray also for strength and support for mommy and for daddy to be able to get some focused work done.