Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, September 05, 2005



Pure Daddy

This is daddy – pure daddy.  I don’t know if I can put the last hour and half into words.  We have spent the entire weekend working around the house and nothing we have done has drained me like I am drained right now.

Rebekah has been insisting on having a drink with her at all times even though she has not drank in weeks.  When Sarah came running by, Rebekah signed to Sarah that she wanted Sarah to take a drink from her.  We ended up with Sarah in Rebekah’s arms on the couch with Rebekah holding the sippy cup of juice while Sarah drank.  I thought I was in heaven watching these two girls share.  Then I looked at Rebekah’s face and there were tears flowing from her eyes.  I absolutely thought I would loose it.

I asked Sarah if she wanted more and Rebekah whispered in her faint voice, “more”.  When Sarah did not respond Rebekah signed “more”.  When Sarah still did not respond Rebekah picked up Sarah’s hands and moved them into position together, apart and then together again,  helping her make the sign for “more”.    Sarah drank and Rebekah clapped and signed “drink” with tears flowing from her eyes.  

Shortly thereafter mommy took Sarah over to the kitchen table to eat.  Not 30 seconds after they were gone Rebekah said she wanted to eat but what she really wanted was to help Sarah eat.  I asked her if she wanted mommy to come get her and she said no, “da da”.  She let me pick her up and carry her to the kitchen where she sat in my lap next to Sarah in the high chair.  She proceeded to insist that she and daddy together feed Sarah.  Mommy couldn’t do it, only daddy and Rebekah.  She continued helping Sarah sign “more” and also tried to teach her “eat”.  She was very adamant that we understood SHE was doing it.  All the while tears flowed from her eyes.  Finally, after Sarah was done Rebekah washed Sarah’s hands and face and then sat and hugged me tightly.

This was SO special to me because it has been more than a month since I have been allowed to touch her, to pick her up, to even be close to her and here she was holding me tight and crying in my arms.  

There is more to tell but I am hoping you get the idea.  What makes this even more emotional for me is that she is not getting better and seems to have back tracked today.  She slept ALL DAY and until these moments had been either in bed or on the couch with very little interaction with anyone, even mommy.  Her food is staying down at a very slow rate, but she is not well.  The radiation is getting to her again and the burns are starting to appear.  There is a constant trickle of blood out of her mouth or nose.  Her left eye is, well “lazy” and glazed over.  

I don’t know any other way to describe it except that she just doesn’t feel right.  This sudden out pouring of affection has me extremely scared.  I cannot stop crying.  Please pray for us.

30 Shared:

At Monday, September 05, 2005 9:05:00 PM, Anonymous Anonymous Left a thought...

God is so good. He is holding onto Rebekah...he is healing her, counting her tears and yours. He is working his love througout your family and all of the lives that your blog has touched. So many prayers and love and tears for you and your family right now. Caron

 
At Monday, September 05, 2005 9:15:00 PM, Anonymous Anonymous Left a thought...

Thank God for such a precious time with your sweet little girls. There is no way for me to truly know what your family is experiencing but I want you to know that my family is with yours in prayer every day. It's encouraging to see you write about something so manay dads take for granted. I have two sons and I hugged them the day God Blessed me and brought them into this world and I've never stopped. I have a baby girl on the way and I'm sure she'll get twice as many hugs.

I know things with Rebekah are not good. As one Dad to another I'm praying for strength for you and continued guidance.

God bless you all and please know you are in our thoughts and prayers daily.

David Stricklen & Family

 
At Monday, September 05, 2005 9:26:00 PM, Blogger Deb Left a thought...

Scott, what we have experienced when Olivia was born can't even begin to compare with what you are going through with Rebekah. Although we understand some of what you are feeling, we are completely overwhelmed and most times, at a loss for words.

I am reminded of a scripture in Psalms which says that the Lord collects our tears in a bottle. How precious is God that he sees each tear --feels each hurt --and loves us more than we'll ever comprehend.

I'm praying that you will feel the Lord embrace you tonight -- that you'll rest in His arms and find the comfort and peace that only He can give you at this time.

Praying continually for Rebekah and your family,
Deb

 
At Monday, September 05, 2005 9:34:00 PM, Blogger Cristina Left a thought...

I have no words of great wisdom to offer... but know that your family has my heart and prayers.
I pray God will continue to blanket your family with grace, comfort, healing, rest, and peace tonight as you get a GOOD night of sleep. I don't know of any family that needs it more.
Sweet dreams.

 
At Monday, September 05, 2005 9:43:00 PM, Anonymous Anonymous Left a thought...

As I hear, what you are not saying, my tears I share with you and my heart aches with you. I can not know how you feel, nor can I possibly truely understand, but I am hanging onto each moment with you and your family. God is good and Rebekah belongs to Him. I am waiting and watching as God brings you all through this trial and rejoicing in every grateful moment. I ask the Lord to blanket your home and lives with His peace and renewed strength for the morning. Sending loads of love from heaven-From the Mathia family

 
At Monday, September 05, 2005 9:44:00 PM, Blogger Jeff H Left a thought...

Scott, it is clear that Rebekah shares a deep bond with Sarah--and with you. I know you cherish that bond; please don't let your scaredness overwhelm that bond. I will pray very specifically for Rebekah all day Tuesday.

 
At Monday, September 05, 2005 9:47:00 PM, Blogger Pam Left a thought...

Daddy, oh Daddy...I can feel your broken heart, your joyous heart, your worried heart...oh daddy and mommy...I am uttering to God...I have no words...only tears to mix with your tears.

Each moment is precious...each moment is a memory...treasure every second.

Father...hold this little family close, so close they all physically feel your loving arms around them, stroking their hair, patting their backs, holding their hands, looking into their eyes.

Father, we trust you with this family...thank you for the plans you have for each member of this family. Thank you Father, Thank you.

 
At Monday, September 05, 2005 9:56:00 PM, Anonymous Anonymous Left a thought...

Angels of God draw near. Angels of God draw near. Holy Father hold them close to your heart. Jesus be in their midst. Holy Spirit. Holy Spirit draw your hedge of Holy fire around their home. Be their comfort and protection. In Jesus name I ask. Amen.

 
At Monday, September 05, 2005 10:35:00 PM, Blogger steve Left a thought...

I dont have words to say that will make any of this make sense. I do know that through all of this God is working.... I think a little/lot in ALL of us that are praying for you daily/hourly.

I am thinking about you and your whole extended family all the time, every day. You all mean the world to me and I love you guys.

Father I ask you to be with Scott and his family through this trial, God. I ask you to give them strength and comfort. Let them feel your Grace God. Let them know that you and only you are in control.

In Your name Father

Amen

 
At Monday, September 05, 2005 10:55:00 PM, Blogger David Edward Left a thought...

Good night sweet children of the King, as I fade and tire I will pray for all of you. Keep strong in the spirit He has given you.

 
At Monday, September 05, 2005 10:58:00 PM, Blogger Mackey Left a thought...

I came upon your blog through a link & I just wanted to let you know as soon as I read this I stopped & said a prayer for you & your family. I am a Mom of 2 & I can't imagine how painful it must be to watch your child suffer like this. I pray that God will give Rebekah the strength to overcome this horrible disease & to give you & your family the strength to make it through this difficult time. I will definitely keep you in my prayers.

 
At Monday, September 05, 2005 11:03:00 PM, Blogger The other me Left a thought...

I think we are all crying with you, for those precious moments shared with Rebekah, who is so little and yet so wise...she knows that maybe you needed to recharge your batteries and what better way than to get some true Rebekah hugging in. I can't even imagine a tenth of your pain and fear, but God knows and He cares and He'll keep holding on to you and your family.
I am still praying for you all.

 
At Monday, September 05, 2005 11:09:00 PM, Blogger Unknown Left a thought...

Father in heaven, You had suffered the heartpain seeing Your Only Begotten Son Jesus tortured on the cross, I knew You foresaw today, You forsaw all the fears and anguish and anxiety in Rebekah's parents, You suffered, to spare them out of this suffering.

Jesus, You healed while You were on this earth, You bore all our sicknesses and diseases on the cross, so that by Your stripes, Rebekah shall live.

For You loves them so.

 
At Monday, September 05, 2005 11:19:00 PM, Blogger YellowRose Left a thought...

What beautiful precious moments spent with Rebekah, hold those close and cherish them. God will see you through this and he will answer our prayers!

Please know that Rebakah and your family are in my thoughts and prayers.

 
At Tuesday, September 06, 2005 3:24:00 AM, Blogger Alison Left a thought...

Tears coming so fast here I can hardly see to type. I am so sorry you need to go through this. Many more prayers here today as well.....

 
At Tuesday, September 06, 2005 4:24:00 AM, Blogger Ileana Left a thought...

This was a hard post to read and must've been extremely difficult for you to write. Wow! I'm just amazed at the strength and courage you have and the depth of love you are experiencing through Rebekah. God made this special little girl and He is with her always. I pray for her comfort and healing, for your continued strength and hope, and I thank God for being introduced to your family via the internet. I am praying for all of you every day.

 
At Tuesday, September 06, 2005 4:30:00 AM, Blogger Valerie Left a thought...

Your love and your tears for your little girl are being shared by so many people - you have touched so many beyond what you can comprehend. There is always profound meaning behind suffering. Please know that prayers for strength, grace, and healing are pouring out to the Lord.

 
At Tuesday, September 06, 2005 7:08:00 AM, Blogger Katie Left a thought...

Father, you know the heartache and the pain of watching a child in pain. Your heart is so tender to all Your children. Lord you have created this man with such compassion and love for his daughter, You have choosen him specifically to be the father of your precious child Rebekah. Lord, comfort him, strenthen him, fill him with your love. Thank you for this daddy, thank you for his heart. Lord, we know You are wise beyond our understanding, we know you are loving beyond our capacity. Surround this famiy with that love.
Amen.

Scott, you're a good daddy, you're a good man. Thank you for sharing with us your honest emotions and thoughts. It blesses my heart beyond what you may realize.

 
At Tuesday, September 06, 2005 7:37:00 AM, Blogger Cindy-Lou Left a thought...

I've adopted your little Rebekah in my heart as if she's my own... such love in such a little girl pierces my heart! I'm praying for her and all of you, she is constantly on my mind and in my heart. I've been forwarding requests for prayer for her to everyone I know. Thank you for sharing her with us and for sharing your burden with us!

Dear Abba-Father, we love you. We know that You have a plan for each of us, a plan for hope and a future, a plan to prosper us... Lord we ask right now that You take all fear from my dear friends and that You put You healing touch on little Rebekah. Father, we see You shining through her so brightly... give her comfort, heal her little body. Give mom and dad comfort and peace. Father we thank you for all the blessings we've received by being able to be a small part of this family's life. Lord, bless them 100-fold.
We give You all the honor, glory, and praise... may You name always be lifted up. We love You, Amen.

 
At Tuesday, September 06, 2005 8:20:00 AM, Blogger David Meigs Left a thought...

May healing and favor flow from the throne of God to Rebekah, and to your entire family. May you have the peace that passes all understanding. May He give you quality sleep when you lie down, and never ending energy when you arise. Amen.

 
At Tuesday, September 06, 2005 8:33:00 AM, Blogger jomo Left a thought...

Scott,
This post affected me more than any other thus far, for I know the feelings you have with Rebekah. I have been there. I know how precious those moments are.
Let me tell you this Scott. God wants you to have peace through this. I know it's difficult, but good things always are. God wants you to rest in the certainity that Rebekah is His child, and He loves her even more than you do. NOTHING will change that certainity. All you have to do through this is savor those moments you have with her. Treasure them as nothing else on this earth. Whether she is with you for 20 years, 20 hours, or 20 seconds, she is a glimpse of God's glory and God's love for you to savor. Do not fear nor regret a single moment of this time with her. So many people are being affected by her glorious testimony on this earth. Give God thanks and praise for the mission He has given such a little missionary. She is simply carrying out her mission, and when that mission is completed, He will reward her sacrifice and yours. Glory in that FACT!
You have been given such a glorious gift and an awesome responsibility. God is telling me to tell you that He is well pleased with you, Frances, Sarah, and Rebekah. He is joyous at what is being accomplished within this trial.
My prayers are with you and your family. Your trial has definitely changed my life and the lives of so many others.

 
At Tuesday, September 06, 2005 9:25:00 AM, Blogger Heather/SHTEZQ Left a thought...

daddy last night you were her strength something she does not have but she knows that you do. sorry to hear she is not doing well. We have grown to love her here at my house. i will be praying for her more today then normal. hang in there daddy.

 
At Tuesday, September 06, 2005 9:49:00 AM, Anonymous Anonymous Left a thought...

Dear Family of Rebekah,
I have been reading your story for quiet sometime now. I was a friend of Steve Sporre, and that is how I found your page. I am a mother of a 3yr old (her 3rd bday is on thurs, its goes by so fast, as you know all too well) I have been praying ever so hard for Rebekah, and your family to be ever so strong in your most difficult times. I look at my sweet Emili, and thank the good Lord for her every single day, and her healthy body. That only makes me pray harder for Rebekah that the Lord stregthens her body so that she can too, run jump and play again some day, soon! You have grown so close to my heart just by reading about Rebekah, and your family. I love you all, and look forward to seein you all in Heaven, if I don't get the chance to meet you face to face until that glorious day.
God Bless you all!
-Toni

 
At Tuesday, September 06, 2005 11:29:00 AM, Blogger Heather Left a thought...

Scott and Francis ~

Thank you so much for letting me into your home. It was an honor to meet you and your family. The love that you have for each other is so obvious.

I am so happy for you that Rebekah chose a to have a daddy day and I wish there was some way to ease your fears. Please know that many people are praying for you and your family.

 
At Tuesday, September 06, 2005 12:33:00 PM, Anonymous Anonymous Left a thought...

The only time I check this blog is during work, and today it is quite impossible to maintain my composure. Scott, I have no idea how hard this is on you, I can only imagine and feel for you all. Hugs to everyone for me. Love, Suzanne

 
At Tuesday, September 06, 2005 2:05:00 PM, Blogger Jenny Left a thought...

Amen to all of the prayers. God is with you, and he will never forsake you.

 
At Tuesday, September 06, 2005 4:49:00 PM, Blogger Darlene Schacht Left a thought...

My son was such a Daddy fanatic, everything was Daddy-do. He went to Teddy Bear camp at a young age, and when he returned he said in the car, "Mommy, I missed you." I was so touched because my husband and daughter were also in the car, but he showed affection for just me. It's a good feeling and overwhelming.

 
At Tuesday, September 06, 2005 8:31:00 PM, Blogger Di Left a thought...

Just remember even when she doesn't want you holding her she is still loving you. Your day sounds beautiful, how I wish your family could spend it without pain. My thoughts and prayers will remain with all of you!

 
At Friday, September 09, 2005 4:08:00 PM, Blogger Jody Left a thought...

I am speechless. What a beautiful, tender moment with your daughters.

I just came upon your site several days ago, and just wanted to let you know that I will be praying for you all and passing on your website to all I know.

Much love,
Jody
http://jody2ms.typepad.com/

 
At Wednesday, May 07, 2008 2:19:00 PM, Blogger Unknown Left a thought...

My Name is joyce, and i will like to say, that i came along, this page, because, i have a friend who is facing some difficult, time, and i remember reading the, Bible and saw this Scripture, where the Lord, says he collect our tears in a bottle , seacch the whole bible , Concordance i could not find it , so i just realize this is the Lord doing, i just decided to look it up on line, i type in , You Collect My Tears in your Bottle and this is where i came to, i thank the Lord for sending me here, I pray , that our Heavenly, Father Shine, is Light upon you sweet People and heal, Little Rebekah'sbody , touch Father in Jesus Name , Make her whole again God the way she was , when you created her in her mother's womb put her body back into devine order , God in Jesus name father God line up, these precept upon, precept, line up on line , Here a little, there a little, do these same thing for Christ sake, put Every part of Rebeka's body back in order, put all veins, all body parts in the same proper order you created them for , all bones, all muscles, touch, her from the top of her Head to the bottom of her feet, put your angel to Emcamp around ad about, grant her parents the desirer of ther heart, Listen to my humble peticion, and supplication, to The m aker of the body, the heart, the mind the soul the eyes, the mouth, the ears, the noise ,all of the rest of the body, that makes up, the body of Christ, for you son Jesus is the head and the Lord of all of your beautiful, creation, Lord God We All thank, U for all of what you are going to do, We thank U in advance, for your tender Mercy and Loving=Kindness You show to your people, for God, We are your People, and We are Called by Your Name, God we need you we are nothing with-out You, For God we cannot do any thing, nor go any where, that your Grace and Mercy cannot keep us, Thank You, that we can come to you, and agreed with one another for our , healing, and our blessing, you said in your word's, that you send your word, and healed us, and Deliver us from our Destructions, thank you God We believed, and we speakes, as Jesus did, he spoked and it came about, this same Spirit, that is in Jesus, it is in all believer, so We received, this gift of healing, in Jesus name Amen, and we all say Amen,,,,,, God bless you All in One, Peace.

 

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