Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
____________________________________

Sunday, September 04, 2005



Lots of Things Done Today

Rebekah is doing better bit by bit. She threw up pretty bad this morning but has, since then, kept everything down. Her "food" is being quite diluted and put in at a slow rate, but she is keeping it down. We are so THANKFUL!

There were a few times (far better than one or two) today that Rebekah was wanting to play with Sarah. Play ususally consisted of having Sarah climb on her. A couple of times Rebekah even insisted that she be the one to give Sarah a piece of food or a sippy cup. We had to bring the food or sippy cup to Rebekah and then coax Sarah over there, but it worked.

Sarah pretty much thinks Rebekah is a jungle gym and Rebekah, for the most part likes it. Good thing since she is too weak to do anything about it.

Between yesterday and today we had SO many helpers - so much that we have been brought to tears just thinking about how gracious so many people have been.

Annika showed up this morning early to help paint. Help is kind of an underestimate because it is kind of her project. She even brought the paint. Then she brought her neighbors Nolan, Catherine, Ryne and Meredith who all painted. Ryne and Meredith spent a bit more time outside on the play structure but helped inside every chance they got. Catherine is a twin sister to Rebekah - only about 20 some years older. She is fighting cancer, in chemo and bald just like Rebekah. They all WERE complete strangers until Annika read about Rebekah's story in the newsletter to NAFA (Northwest Adoptive Families Association - a group of adoptive families that we belong to). It was SO cool to have them come out.

Grandma M also came out and helped watch the girls. Ashley from church came and took care of some things around the house that were falling way behind. Then Karen, Dave and Ian came over. Karen is a nurse and we specifically called to see if she would come over and watch Rebekah so mommy and daddy could go - TOGETHER! - to Home Depot and pick out a ceiling fan for the playroom. It was nice to be able to get out together. While Grandma and Karen watched Rebekah and Sarah, Dave and Ian continued on the trim on the outside of the house. Rebekah only fussed once and they were able to calm her down.

Mommy and daddy got a ceiling fan, some lights and some shelving for the "pharmacy". Most of you have family bathrooms. We used to. Now we have a family pharmacy:

(Just for "perspective" these shelves are 5 feet wide and 16 inches deep) And this doesn't count the medicines in the fridge, the IV supplies in her room or the cases of "Food" for her G-Tube. This stuff had been spread throughout the house and we really needed to get it together. Not exactly "attractive" for the family bathroom, but you do what you have to do.

Thank you so much for all the help, for all the prayers and for just thinking about us. Right now we are on pretty much a high with all the progress being made around here. Aren't holiday weekends grand?!

16 Shared:

At Monday, September 05, 2005 2:36:00 AM, Blogger Alison Left a thought...

Well I call that a very productive day!
Glad Rebekah seems well enough to play. That is encouraging, and the food staying down is also very exciting. She will get a little stonger everyday and then look out!

 
At Monday, September 05, 2005 3:20:00 AM, Blogger The other me Left a thought...

What fantastic and uplifting read today! Your pharmacy is fabulous! I am thrilled that mommy and daddy got to go our together , even if it was to Home Depot....happy happy to see the gorgeous girls playing together. May the good times keep rolling! Much love and continued prayers, Helen.

 
At Monday, September 05, 2005 4:26:00 AM, Anonymous Anonymous Left a thought...

Prayers for more days like this one!

 
At Monday, September 05, 2005 6:32:00 AM, Blogger Pam Left a thought...

Each time I checked yesterday and found no update my heart was HAPPY...yes, Happy!!! I kept just knew you were too busy to be able to post, my mind was imagining happy times, family and friends times. I am so so thrilled that mommy and daddy spent time ALONE...even if it was a trip to Home Depot...it was time together-time for each other...Thank you Father for the time these precious parents were allowed to hold hands and talk, and for rest given to mommy's arms...and the assurance that their 2 darling daughters were being loved and well cared for. Thank you for the calvary that came to the rescue to care for the girls and work on the house. Oh Happy Day!! Oh Happy Day!!!

 
At Monday, September 05, 2005 6:40:00 AM, Blogger Corry Left a thought...

Praying the good days and recovering will continue.

God's Grace.

 
At Monday, September 05, 2005 7:26:00 AM, Anonymous Anonymous Left a thought...

Let the earth rejoice and the angels sing praise for all He has done and all He will continue to do for you. We continue standing in the gap with prayer,expecting great blessings and miracles to continue to come from heaven and earth. Love, the Mathia family

 
At Monday, September 05, 2005 8:16:00 AM, Blogger Cheryl Left a thought...

What a blessing to have such a great support team gathering around you! yay God!

 
At Monday, September 05, 2005 9:29:00 AM, Blogger JodiTucker Left a thought...

Glad for a weekend full of help and His provision! Also, neat to see Sarah playing "jungle gym" on Rebekah. Still praying!

 
At Monday, September 05, 2005 10:37:00 AM, Blogger Darlene Schacht Left a thought...

Your house is humming like a bee hive. Bless those busy little bees for the work they are doing. And praise God she's keeping down food now.

 
At Monday, September 05, 2005 11:20:00 AM, Blogger Queen on the run Left a thought...

Glad to see things are going so well for Rebekah. Reads like alot is getting accomplished around there!!!! So sweet to see Rebekah and Sarah being able to have time together. They remind so much of me and my sister Vicki when we were little.
I was able to get more pictures on the flikr badge. Prayers always:)

 
At Monday, September 05, 2005 11:23:00 AM, Anonymous Anonymous Left a thought...

Hi,
My name is Betty, aka B.J.. I was sent a prayer request for your beautiful daughter Rebekah. I intend to keep praying for her. I wanted to also invite you to join a host of intercessors over on the conquering cancer through Christ message board. Most of these gals and guys have or have had cancer or have someone dear to them who are battling cancer. They interact and support and encourage one another all day long. I must warn you though...many, many miracles are happening there! The webaddy is: www.urcctc.com , then go to the message board.

Also, I would like to ask you if Rebekah has ever tried the Dee Simmons Ultimate Living Products? They are just great and many cancer patients at the Cancer Treatment Center of America are taking them. Her webaddy is: www.ultimateliving.com . If you need to talk to someone about it, you can call Dr. Katy MacDonald at: 1-877-276-3068 .
Thanks and God bless, Luv, Betty

 
At Monday, September 05, 2005 4:08:00 PM, Blogger Valerie Left a thought...

I am so glad you had a "normal" day with lots of activities, Mom and Dad having a "date", daughters playing together, and getting work done around the house. That picture is just so precious of Rebekah and Sarah. Prayers continue from Ohio.

 
At Monday, September 05, 2005 5:31:00 PM, Anonymous Anonymous Left a thought...

So happy you had a good day :)
you gotta do what ya gotta do i think it's very creative what you've done with your bathroom. Your always in my prayers. Glad you all got alot of help today, and that you got away for a bit together that's great. God Bless

 
At Monday, September 05, 2005 6:51:00 PM, Blogger jomo Left a thought...

Thanksgiving to God for the blessed weekend for your family.

 
At Monday, September 05, 2005 7:58:00 PM, Anonymous Anonymous Left a thought...

i'm glad rebekah is doing better. thank God! still praying for her and of course, mom and dad too.

 
At Monday, September 05, 2005 8:18:00 PM, Blogger Heather/SHTEZQ Left a thought...

i am so glad mam and dad got to get out TOGETHER even if it was for a little bit that was sooooooo important. also happy to hear she is tolorating her food. It is so awsome to see how god is working through all these amazing people. still praying every day. lots of love and prayers.

 

Post a Comment


Thank you from Rebekah...

Back to Rebekahs home page...